Orchestrating Silence for Patients with Pulsatile Tinnitus

Discussion in 'Support' started by Jon J., Aug 19, 2013.

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    1. Jon J.

      Jon J. Member

      Tinnitus Since:
      4/2005
      I found this article in the most recent edition of Tinnitus Today about treatment of Pulsatile Tinnitus.

      I hope everyone who suffers from this condition will find this article useful.

      I may contact Dr. Robb in Arizona. He seems to be an expert in treating Pulsatile Tinnitus.


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      Jon
       
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    2. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Thanks, @Jon J.,

      Do you have pulsatile tinnitus yourself, or are you just providing this information for those of us who do? If so, have you had any of the usual tests? I've had an MRI, MRA, CT scan, and carotid Doppler. All were unremarkable.

      I'll be interested to hear whether you are able to reach Dr. Robb, and what he has to say.

      Thanks for this information!

      Best wishes,
      Karen
       
    3. Jon J.

      Jon J. Member

      Tinnitus Since:
      4/2005
      I was unsuccessful in posting the article. I think I figured it out. Here it is again. Yes I do have PS.

      Jon
       

      Attached Files:

      • Like Like x 1
    4. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Jon,

      Thanks for posting this hopeful article! I've kind of given up (for now, at least) on finding a cause for my PT, and have been trying to "live with it". It's not easy! If you find a great doctor who will take the time to run lots of tests, there is a good chance of finding a cause, and possible cure.

      I'd like to hear more of your story. Have you had PT since 2005? Do you have other symptoms? What do you think might have caused your PT?
       
      • Hug Hug x 1
    5. JustAName

      JustAName Member

      Thank you for the article.
       
    6. Piper the great
      Amused

      Piper the great Member

      Location:
      Grand Prairie, Texas
      Tinnitus Since:
      8/2012

      When my T started I had PT, a RING, two hisses, and a Flutter..... OMG.. it was hell. it finally went to a low hiss and ring, but I am telling you, PT and the Flutter was the worst.... I am only saying this to separate the PT and flutter from the rest, it comes back once and a while, and I PRAY to baby Jesus to give me my hiss and ring back.. GOD bless you child...
       
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @Piper the great,

      That is good news that your PT and flutter went away on their own. I agree that the PT and the flutter are the worst; it's very scary when it is at its worst, because your mind tells you that there is something wrong. I had terrible fear, panic and anxiety when this first started back in 2010. Now, it has improved, so maybe there's hope that mine will finally subside, too.

      I'm glad that yours is now down to a low hiss and a ring. That seems to be the way mine is going, too. Every so often, I'll have a bad day, but overall, it seems to be improving.

      Thanks for your comments, and I'm glad you're doing so much better now!
       
    8. Rog

      Rog Member

      Location:
      NY and Brazil
      Tinnitus Since:
      02/2014
      Hi Karin , have done the exam angiogram?
       
    9. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Rog ,

      No, I have not had an angiogram, or a CT angiogram (that's a CT scan with contrast dye). Do you have pulsatile tinnitus?
       
    10. Rog

      Rog Member

      Location:
      NY and Brazil
      Tinnitus Since:
      02/2014
      I do have PT and hissing . Ive done MRI and MRA and everything came back OK. Now I planning on have an angiogram done . This is the best exame when you suspect that you a PT.

      Best

      Rog
       
    11. kevin b
      Fine

      kevin b Member

      Location:
      Hope well junction, NY
      Tinnitus Since:
      1/2014
      HI Rog,
      Do you mind me asking what leads you to have this test done. I had an MRI, MRA and Cartoroid Sonogram and everything came back fine.
       
    12. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @Rog,
      Where are you having the angiogram done? Are you in the US? I wish you success, and hope that the angiogram will help you find a cause for your PT.
       
    13. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      My doctor didn't order an angiogram for me. There is a test, called a CT angiogram, which is actually a CT scan with contrast. He did suggest that to me, but I haven't had it done as yet.
       
    14. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
    15. Rog

      Rog Member

      Location:
      NY and Brazil
      Tinnitus Since:
      02/2014
      Hi @Karen , sorry for the delay . I am going to have my exam done here in Brazil on June 6th. I hope i will get good news from it. Ill keep you posted .

      Have a nice week .
      Best .

      Rog
       
    16. Rog

      Rog Member

      Location:
      NY and Brazil
      Tinnitus Since:
      02/2014
      Hi @kevin b , sorry for the delay. The angiogram is the best exame when you have PT. Went to 2 neurosrgeon and they asked me to get them done once nothing came up with the exames .

      Best
       

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