Orchestrating Silence for Patients with Pulsatile Tinnitus

Thanks, @Jon J.,

Do you have pulsatile tinnitus yourself, or are you just providing this information for those of us who do? If so, have you had any of the usual tests? I've had an MRI, MRA, CT scan, and carotid Doppler. All were unremarkable.

I'll be interested to hear whether you are able to reach Dr. Robb, and what he has to say.

Thanks for this information!

Best wishes,
Karen

 

Jon,

Thanks for posting this hopeful article! I've kind of given up (for now, at least) on finding a cause for my PT, and have been trying to "live with it". It's not easy! If you find a great doctor who will take the time to run lots of tests, there is a good chance of finding a cause, and possible cure.

I'd like to hear more of your story. Have you had PT since 2005? Do you have other symptoms? What do you think might have caused your PT?

 

@Piper the great,

That is good news that your PT and flutter went away on their own. I agree that the PT and the flutter are the worst; it's very scary when it is at its worst, because your mind tells you that there is something wrong. I had terrible fear, panic and anxiety when this first started back in 2010. Now, it has improved, so maybe there's hope that mine will finally subside, too.

I'm glad that yours is now down to a low hiss and a ring. That seems to be the way mine is going, too. Every so often, I'll have a bad day, but overall, it seems to be improving.

Thanks for your comments, and I'm glad you're doing so much better now!

 

Hi, @Rog ,

No, I have not had an angiogram, or a CT angiogram (that's a CT scan with contrast dye). Do you have pulsatile tinnitus?

 

@Rog,
Where are you having the angiogram done? Are you in the US? I wish you success, and hope that the angiogram will help you find a cause for your PT.

 

My doctor didn't order an angiogram for me. There is a test, called a CT angiogram, which is actually a CT scan with contrast. He did suggest that to me, but I haven't had it done as yet.

 

Here is some information on CT angiography:

http://www.hopkinsmedicine.org/heal...r/computed_tomography_angiography_cta_135,15/