Pulsatile Tinnitus Advice

Hi, @Ano.

I just came across your post about PT, and thought I'd respond. It has been about 2 weeks since you posted the above, and I was wondering if you decided to use the nasal spray for those two weeks. If so, what was the result? Did the pulsatile tinnitus improve, or did you notice any changes at all? Are you scheduled to go back to the doctor after you used the nasal spray?

If you return to the doctor, I think you should mention to him what you've said above about the pulsatile tinnitus. Then, he may have additional suggestions for you. There are various tests that can be given to try to determine a cause for the PT, and he could perhaps schedule you for one of those. Most common tests: CT scan of temporal bone area; MRI and sometimes MRA or MRV with contrast dye.

Please don't worry about the fact that you have pulsatile tinnitus. Many people have it with no apparent cause, and for some lucky people, it eventually goes away on its own. There are a few people who have tumors, etc., but they are definitely in the minority! I'm a PT sufferer myself, and I've had various tests, and no cause has been found.

Have you checked out Whooshers.com? It is a website with lots of information about PT, including causes and success stories. Also, there is a Facebook group for Whooshers (it's a closed group) that you can join, where you can learn a lot more about it from other sufferers. I've heard that, in the UK, many whooshers have gone to Addenbrookes hospital for further testing. It might be worth checking into this if you are concerned.

I hope you are doing well, and will be interested to hear how you're feeling these days.

Best wishes,
Karen

 

Hi, @Ano,
Sorry to hear that nothing has changed so far. It's good that you are going to get an MRI, and if your ENT doctor cannot find anything, maybe you could try another specialist. I've heard great things about a doctor in New York (U.S.A)., Dr. Maksim Shapiro, who has evaluated people's scans via long distance. Also, you might want to check on Whooshers.com with other PT sufferers in the UK, who might know of a specialist that you could go to closer to where you live.

I wish you well, and I certainly understand what you're going through. The main thing is that, if there is a physical reason for your PT, there may be some kind of solution. Please don't give up hope! I haven't, and mine (after four long years of PT) has subsided somewhat.

Best wishes,
Karen