Severe Tinnitus Worsening During Corticosteroid Withdrawal After Long-Term Use

[BootsNoMore]

Hi everyone,

I just wanted to reach out and see if anyone could share their experience with a severe increase in tinnitus during a withdrawal reaction to medication. I'm experiencing a change in my tinnitus that is severe, and I mean totally unmaskable, audible anywhere, severe, since lowering the dose of my long-term corticosteroids. I've been on high doses since 2018 for an autoimmune issue.

I don't believe this is inflammation returning, because I'm also experiencing many other symptoms similar to those people report when withdrawing from benzodiazepines or SSRIs, and this has been going on for many months.

Any hope or personal anecdotes would be appreciated. Despite having had tinnitus for 14 years, this is truly at an unfathomable level, and I just don't know how to move forward.

P.S. I should add that in the past two days, I have also developed a constant low-frequency pulsating hum or drone in my right ear. It is not in sync with my pulse.

 

[delta784]

Hi everyone,

I just wanted to reach out and see if anyone could share their experience with a severe increase in tinnitus during a withdrawal reaction to medication. I'm experiencing a change in my tinnitus that is severe, and I mean totally unmaskable, audible anywhere, severe, since lowering the dose of my long-term corticosteroids. I've been on high doses since 2018 for an autoimmune issue.

I don't believe this is inflammation returning, because I'm also experiencing many other symptoms similar to those people report when withdrawing from benzodiazepines or SSRIs, and this has been going on for many months.

Any hope or personal anecdotes would be appreciated. Despite having had tinnitus for 14 years, this is truly at an unfathomable level, and I just don't know how to move forward.

P.S. I should add that in the past two days, I have also developed a constant low-frequency pulsating hum or drone in my right ear. It is not in sync with my pulse.

Mine started after IV Methylprednisolone. I would not be surprised. Do you take it orally or through IV, and which one?

 

[Sydnears]

I have no personal experience with this, OP. You have my sympathies, though. Can you go back up in dosage and try a much slower taper? I know this did work for somebody who was on mirtazapine - I remember reading about it last week.

FWIW, I have three tones. I just went out for breakfast, and now my most annoying tone is reactive. I can hear it everywhere, all the time. You're not alone.