Silence for 2 Days, Then NOISE!!

[Bobbie7]

I couldn't believe it! 3 days ago I awoke and soon afterward realized something was different; I was experiencing silence --- beautiful, golden silence. Ahhh... I listened carefully and couldn't even fathom this wonderful feeling for it was so unfamiliar to me now.

Then... this morning I was awakened by what I had dreaded... my T had returned and was demonstrating its superiority over me and dashing my hope that some how, in some way, those great 2 days of silence "might" continue. Now this sound was even louder than previously, this high-pitched shrill sound of a smoke alarm had replaced the various alternating (but not piercing) sounds I had grown accustomed to hearing.

I searched my memory for anything differently which I may have done which caused the temporary suspension of my T and there was nothing. I did absolutely nothing out of the ordinary. T is such a strange and mysterious phenomenon/malady that who can truly understand why we all experience such a tremendous range and volume of sounds. Both my husband and son try to lend themselves to me, try and succeed at being understanding and sympathetic but who can truly empathize who doesn't actually experience the torment of T? I recall now that some years ago we helped a neighbor who had no family with some chores and she would tell us to speak with her on her left side since she was nearly deaf in her right ear and she had tinnitus. At that time, I had no familiarity with T and what she said was completely foreign to me and I had not a clue what she might be feeling. How can anyone who is capable of experiencing beautiful silence in their solitude understand! They simply can not.

Well, that overworked phrased "If something is too good to be true, it probably is." certainly is relevant for me today, unfortunately. Just when I was slowly habituating to the menu of sounds I was experiencing, I got that brief bit of delightful absence in my right ear only to lose it once again.

Wishing everyone a peaceful Sunday, if possible.

Best wishes.

P.S. Back in February 17th I had also reported to the group a 2-day respite.

 

[AlexSongitus]

I know the feeling. I just finished my third AM-101 injection yesterday and I'm honestly even afraid to write this...since 5am this morning I am experiencing silence.

Never had 2 days, that's awesome. But I have had almost a full day about 2 weeks ago of near silence, and had about 5-6 hours my first day on Prednisone and today is the first day in over 2 weeks that I have experienced this low of a T or silence and it's amazing. Paranoid about going to sleep because it always resets it. Paranoid about listening to it, because it's like there are times when I can barely hear something as low as 0.5. I had silence last night too, went to sleep and I woke up with a 1 or a 2 at most which died down in about an hour. I don't know if it's still the numbing agent having this effect, placebo or AM-101. Whatever the heck it is...I just want it to stay this way and I'm pretty anxious that it's going to come back any minute or if I fall asleep. UGH!

Those 2 days breaks for you though are definitely awesome. Worst case scenario at least you can always cling to the fact that if you had them before, seemingly for no reason, you might get them again. So keep accepting it for now, don't stress when it comes back and let it do it again.

 

[Bobbie7]

Alex, may your silence continue and here's hoping! Not so sure about sleep always resetting it since I had gone to sleep both nights and when I awakened, I still did not hear my T. I sure hope your silence continues but, of course, I understand the fear.

Best wishes.

 

[AlexSongitus]

Alex, may your silence continue and here's hoping! Not so sure about sleep always resetting it since I had gone to sleep both nights and when I awakened, I still did not hear my T. I sure hope your silence continues but, of course, I understand the fear.

Best wishes.

In my case it never fails to reset when I sleep. I think I would have been cured 2 weeks ago if it wasn't for sleeping. I wish I could just stay awake for like 3 straight days and see what happens.

 

[Christian78]

In my case it never fails to reset when I sleep. I think I would have been cured 2 weeks ago if it wasn't for sleeping. I wish I could just stay awake for like 3 straight days and see what happens.

try not to sleep 2 days

 

[Bobbie7]

try not to sleep 2 days

Good grief!!!! If Alex didn't sleep for 2 days Christian, THEN he might possibly hallucinate and begin to hear voices!

 

[AlexSongitus]

Good grief!!!! If Alex didn't sleep for 2 days Christian, THEN he might possibly hallucinate and begin to hear voices!

Oh I've done that before. It just makes me feel like a zombie, gets me in this calm state, and helps me write and produce music. The only problem is I can't do music. That's how I got it in the first place. Hard to stay awake like that without something like music inspiring me to stay up.

 

[Christian78]

Good grief!!!! If Alex didn't sleep for 2 days Christian, THEN he might possibly hallucinate and begin to hear voices!

many of us happen to not sleep 2 days...

 

[John Meyers]

Good grief!!!! If Alex didn't sleep for 2 days Christian, THEN he might possibly hallucinate and begin to hear voices!

Ha ha.. I'd rather hear voices than T!

 

[Christian78]

try not to sleep 2 days

Well yes, he say he thinks he could survive if he could not sleep 3 days, but as every night brain reset dont sleep 2 days, or 48 h, I done it, it is nothing new, when you work it happens you dont slee 48h and YOU DONT DIE.

There is many people here in tt who did not sleep 2 day becouse T did not let them...

Do you understand me better now what I ment, One can try and if does not go, run to the bed...

 

[AlexSongitus]

Just wanted to let you know that yes, it's as I predicted. So I'm in your boat today. The SOB is back this morning. I had complete silence from 4am Saturday morning until this morning at 2am when I finally crashed and went to bed. I stretched it as long as I could. Not a sign of it.

I slept, woke up then BAM its baaaack! I woke up with 3-4 in my left and a 1-2 in my right. I don't know what it was yesterday, but now I have a hard time believing it was the numbing agent, and certainly not the AM-101 doing that, because you would figure the numbing would gradually wear off since Friday morning, thus my T should have gradually returned by the time I went to sleep. But no. It stayed COMPLETELY GONE all day. I have never had a full day of silence silence I got T until yesterday. F*ck sleeping!

 

[Bobbie7]

I slept, woke up then BAM its baaaack!

Alex, sorry to hear your T has returned after a brief period of blissful silence. I don't know why in my case this occurred twice for 2 days and then WHAM... back again... that's why I say this malady is so strange and mysterious. I'll never be able to understand it nor for that matter, does it seem most of the doctors ever will.

Best wishes.

 

[AlexSongitus]

Alex, sorry to hear your T has returned after a brief period of blissful silence. I don't know why in my case this occurred twice for 2 days and then WHAM... back again... that's why I say this malady is so strange and mysterious. I'll never be able to understand it nor for that matter, does it seem most of the doctors ever will.

Best wishes.

Thanks. Same to you Bobbie. I actually had another day of silence to near silence monday, and then it came back loud again yesterday, and now again very low today. It's a total tease! Mine is most likely responding to the injections, but in your case, yeah, it is pretty strange to get it out of the blue. I would definitely take any change as a positive. The fact it gave you those 2 days means it's at least possible for you to hear silence again, so you never know, maybe one day when you are not paying attention, it will go on its merry way again. Hopefully for more than 2 days.

 

[Bobbie7]

Hopefully for more than 2 days.

~~ and thank you Alex for your good wishes. Oh...how I hope some miracle cure will soon be on the horizon for each and every member of this group!

Take care and be well.

 

[Greg Sacramento]

I couldn't believe it! 3 days ago I awoke and soon afterward realized something was different; I was experiencing silence --- beautiful, golden silence. Ahhh... I listened carefully and couldn't even fathom this wonderful feeling for it was so unfamiliar to me now.

Then... this morning I was awakened by what I had dreaded... my T had returned and was demonstrating its superiority over me and dashing my hope that some how, in some way, those great 2 days of silence "might" continue. Now this sound was even louder than previously, this high-pitched shrill sound of a smoke alarm had replaced the various alternating (but not piercing) sounds I had grown accustomed to hearing.

I searched my memory for anything differently which I may have done which caused the temporary suspension of my T and there was nothing. I did absolutely nothing out of the ordinary. T is such a strange and mysterious phenomenon/malady that who can truly understand why we all experience such a tremendous range and volume of sounds. Both my husband and son try to lend themselves to me, try and succeed at being understanding and sympathetic but who can truly empathize who doesn't actually experience the torment of T? I recall now that some years ago we helped a neighbor who had no family with some chores and she would tell us to speak with her on her left side since she was nearly deaf in her right ear and she had tinnitus. At that time, I had no familiarity with T and what she said was completely foreign to me and I had not a clue what she might be feeling. How can anyone who is capable of experiencing beautiful silence in their solitude understand! They simply can not.

Well, that overworked phrased "If something is too good to be true, it probably is." certainly is relevant for me today, unfortunately. Just when I was slowly habituating to the menu of sounds I was experiencing, I got that brief bit of delightful absence in my right ear only to lose it once again.

Wishing everyone a peaceful Sunday, if possible.

Best wishes.

P.S. Back in February 17th I had also reported to the group a 2-day respite.

 

[Greg Sacramento]

@Bobbie7 From quoting you above, I'm glad that your high-pitched shrill spike after having "golden silence" subsided from a "dreaded experience". I'm also glad that you don't have to deal with the fear of the high pitch not going away as mentioned in another post.

I'm sure that you wish the same for all of us that have very severe tinnitus often accompanied by other serious medical problems. Other problems such as neck disease or Meniere's goes beyond tinnitus. You have shown compassion to us with added problems and I thank you for that.

As you say who can understand, but I glad that you can for those with very severe tinnitus that hasn't gone away.

 

[Bobbie7]

@Greg Sacramento - Of course I have compassion for all with this malady as I experience tinnitus as well although not Meniere's. I also feel for those who have a dual-diagnosis; suffering from mental illness along with tinnitus which further complicates matters. I had mentioned I facilitated a local caring and sharing support group for family members and loved ones of those suffering from mental illness and fully understand how challenging this is; I can only imagine the additional stressors which are placed on those with severe intrusive tinnitus. I strongly feel hope is an important and vital element no matter what diagnosis/serious malady we suffer with. Every one needs encouragement and emotional support as it always helps to know we are not isolated and alone.

 

[Greg Sacramento]

@Bobbie7 Sometimes those with tinnitus are crying out and may also be expressing a lot of other things, but it's not usually clinical mental illness. Many of us have mentioned on this board that I'm in a bad way today and feeling stressed. Some do express hopelessness. Love and understanding is shown here from others. I honor your caring and support for family and love ones.

I worked in a trauma hospital for 28 years. Nurses and therapy were not allowed to use the word habituation for those with severe conditions. Each caregiver had to take a 6 credit course on coping methods and improvement psychology for those with severe conditions, diseases or stress. Those that work in therapy areas; physical, occupational, patient psychology and family support understood that habituation expressions could do more psychological harm than good for those with a severe condition.

 

[Bobbie7]

Hi @Greg Sacramento - I am sorry to hear you are experiencing severe stress lately and I hope that very soon you will have some relief. I see you have tinnitus for quite a while with an added issue concerning dental work. This life is filled with challenges and with the addition of each new one, I would like to think we become stronger and develop the capability of handling it. Some times we do surprise ourselves.

Sending my very best wishes your way. Take care and feel better soon.

Sincerely,
Barbara

 

[Greg Sacramento]

@Bobbie7 Thank you for the kindness.

I just wish that some in the medical community were a little more honest. I been there and seen many cover ups within medicine.

I went to a dental pain specialist and he said that not one case of tinnitus has ever happened to a dental patient. My dentist who has been practicing for 25 years said that he never heard of a dental patient getting tinnitus. My dentist and dental pain specialist are friends.

We can come to this board and find "the softest cushions to lean on in adversity". Your quote in blue above by Robert Burton.

I'm going to soon take a leave from posting because I'm finding it difficult to impossible to post most of the time. I will use my time to focus more on physical exercise and treatment. I still will probably check messages that others have written from time to time. Also to come here and do research.

Wishing the best to all.