Stepping Up to the Plate

Discussion in 'Awareness & Fundraising' started by Jazzer, Dec 10, 2018.

    1. Jcb
      No Mood

      Jcb Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      December 2017
      Cause of Tinnitus:
      possible TMJ, came on after severe cold and chest infection,
      Good stuff Dave, I will try and use my influence for the greater good from this moment forward :cool:
       
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    2. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      if your tinnitus was cured with something like fx322 or stem cells would you go back to playing music?
       
    3. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      “Yeeeeeeeeeessssss !!!!!”
       
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    4. david c

      david c Member

      Tinnitus Since:
      01/2012
      Hi I didn't know that you had had to give up playing music because of your tinnitus @Jazzer.

      I just wondered what you thought about the advice the BTA gives on its website that:

      "The most important thing to do is to keep doing the things you enjoy. If you start living your life differently to accommodate the tinnitus it’s just going to seem more of a problem."

      Do you @Jazzer find this helpful advice? Or do you like me find it patronising and failing to consider the severity of some patients tinnitus and the impact that tinnitus has on their lives? I'm sure you would absolutely love to go back to playing music. The reality is because of the impact of tinnitus on your life that isn't possible and you don't need some patronising individual at the BTA who probably has never had severe tinnitus to tell you what to do.

      I'm genuinely interested in your answer - one of my main goals has been to get much of the information on websites such as the BTA's or the NHS about tinnitus rewritten or removed? So far this year I have had some success and I intend to continue next year.
       
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    5. AUTHOR
      AUTHOR
      Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      My tinnitus is at about 50/60 dB.
      I dare not risk more damage.
      Severe Tinnitus is a sack full of SHIT !!
      I have to log off - I’m on the QE 2.
      Expensive!
       
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    6. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      What is more expensive?
      Or
      I think that 50/60 dB. is the most expensive.
       
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    7. Finnigan
      Stressed

      Finnigan Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Injury maybe
      This is great. I will donate $500 in my Mom’s memory as soon as my house sells. I’m not sure how much this will help but at least it is something. Can’t wait to see the video.
       
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