MemberHi everyone,
Firstly, I still have tinnitus, but it no longer bothers me at all. I developed tinnitus on February 11, 2014, a day I will never forget. What followed was the worst day, the worst week, the worst month, and the worst year of my life. I was on this forum a lot for the first few years (I have many posts in the Retigabine thread). I could have written this many years ago, but I felt compelled to share my current status, if it helps anyone going through any hardship. I can live my life without it affecting me at all. I will occasionally pay attention to the tinnitus, but can just as quickly pass my attention elsewhere. It is a skill to develop, no doubt, and one that makes you even stronger, somewhat like cultivating a healthy sense of detachment. The last band-aid that was peeled off was the need for masking during sleep, which I no longer require (I stopped using it about 6 years ago).
I was a major contributor to the Retigabine thread and even took a short course myself. With the passage of time, I remain undecided about its ultimate efficacy; much of it may have been a placebo effect, although one noticeable thing that occurred was an attenuation of my hyperacusis. However, the attenuation may have simply been the usual course of events after initially experiencing tinnitus. While a few individuals who have taken it have reported visual snow and other visual side effects, I must report that I have not experienced any adverse side effects ten years later. I have undergone at least four different eye exams, which have shown no effects.
Shoutout to @Markku, I know there are a lot of supporting members now, but at the time it seemed he was holding this site up single-handedly. Much love to everyone here, and I send my power to you. Just remember that time is the best salve for this condition.
-Locoyeti
Firstly, I still have tinnitus, but it no longer bothers me at all. I developed tinnitus on February 11, 2014, a day I will never forget. What followed was the worst day, the worst week, the worst month, and the worst year of my life. I was on this forum a lot for the first few years (I have many posts in the Retigabine thread). I could have written this many years ago, but I felt compelled to share my current status, if it helps anyone going through any hardship. I can live my life without it affecting me at all. I will occasionally pay attention to the tinnitus, but can just as quickly pass my attention elsewhere. It is a skill to develop, no doubt, and one that makes you even stronger, somewhat like cultivating a healthy sense of detachment. The last band-aid that was peeled off was the need for masking during sleep, which I no longer require (I stopped using it about 6 years ago).
I was a major contributor to the Retigabine thread and even took a short course myself. With the passage of time, I remain undecided about its ultimate efficacy; much of it may have been a placebo effect, although one noticeable thing that occurred was an attenuation of my hyperacusis. However, the attenuation may have simply been the usual course of events after initially experiencing tinnitus. While a few individuals who have taken it have reported visual snow and other visual side effects, I must report that I have not experienced any adverse side effects ten years later. I have undergone at least four different eye exams, which have shown no effects.
Shoutout to @Markku, I know there are a lot of supporting members now, but at the time it seemed he was holding this site up single-handedly. Much love to everyone here, and I send my power to you. Just remember that time is the best salve for this condition.
-Locoyeti
