Tinnitus Getting Worse and New Hearing Loss: Could I Have Cochlear Hydrops?

Discussion in 'Introduce Yourself' started by S12345, Sep 17, 2020.

    1. S12345

      S12345 Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unknown
      Hi all.

      I have suffered from tinnitus and 90% hearing loss in one ear since 2014. ENT doctor did an XRay but never found the cause.

      Over the past 3 months I have developed mild hearing loss (15%) in the other ear and the tinnitus which was in the background is now overwhelming. It's the main thing I hear all the time and is really loud.

      Any ideas? I don't think it's Meniere's as my tinnitus is there all the time, plus I have no vertigo.

      Could it be Cochlear Hydrops?

      Happy to hear suggestions however obscure to go to ENT doctor with. At present I just feel like jumping off the nearest bridge!
       
      • Hug Hug x 2
    2. Jrblovsky

      Jrblovsky Member

      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      Gunfire (Maybe) & Menieres
      I'm sorry to hear of your struggle. I have cochlear hydrops and it progressively destroys your inner ear. Mine has progressed from a 10% loss in January of this year to 50% now. I have severe tinnitus and the pressure in the ear is really bad. I hope you find relief. I'm a total disaster.
       
    3. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      @Samantha R
       
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    4. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      sorry to hear about your cochlear hydrops.
      Ear pressure can be relieved and hearing May recover with the help of a diuretic.
      This will drain the ear of fluid and proactively prevent fluid build up.
      If you can keep the fluid at bay, you will slow the progression of the hydrops.
      You might also want to read about the John of Ohio regimen which is a supplement regimen based on the theory that the herpes virus gets into the inner ear and causes Meniere’s / Cochlear Hydrops.
      One last recommendation would be to explore autoimmune causes.
      my specialist believes that a large proportion of a Meniere’s and cochlear hydrops is auto immune in nature.
      she typically puts patients on high doses of steroids to see if this helps.
      If so, then the cause might be autoimmune and steroid drops can be administered to the inner ear via a grommet.
      I lost low frequency hearing this year in June, had horrible tinnitus, hyperacusis and diplacusis. I was suicidal.
      Moduretic was my saviour and though I didn’t appear to respond to prednisolone, I took an immune modulating drug called low dose naltrexone. I’ve been symptom free for nearly three months now.

      @S12345
      sorry to hear about your struggles.
      Do you have other symptoms - ear pressure, ear fullness? In your ‘good’ ear, is the hearing loss low or high frequency?
      Typically, hydrops hearing loss begins in the low frequencies.
      Cochlear hydrops is basically Meniere’s without the vertigo / vestibular symptoms and treatment is the same.
       
      • Like Like x 1
    5. Jrblovsky

      Jrblovsky Member

      Tinnitus Since:
      Christmas 2019
      Cause of Tinnitus:
      Gunfire (Maybe) & Menieres
      Dear Samantha,

      Which doc do you see? The doctors I have seen in the metro Detroit area have been useless. I've seen five in total and still have no firm diagnosis. It's a guess. I will travel out of state at this point.
       
    6. AUTHOR
      AUTHOR
      S12345

      S12345 Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unknown
      @Samantha R It's at 50 dB -60 dB mainly, although high frequencies have dropped to 35 dB. I've had prednisolone but did not do anything. I will ask about Naltrexone.
       
    7. AUTHOR
      AUTHOR
      S12345

      S12345 Member

      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Unknown
      To update:

      I have had 2 intra-tympanic injections. After the first the audiogram showed an improvement with some of the hearing returning to normal in the mid range frequencies.

      I had another on Thursday and all went well... untill 7pm yesterday. I had heard fine on my Teams calls for work and on a 1hr call to my mum. Then just after 7pm nothing. I couldn't hear anything - I was lip reading the TV at volume 40 (so basically watching a quiz show where I couldn't hear a single thing) . This morning my other half is literally having to stand right next to me for me to hear him and even with aids in all sounds seem really quiet.

      Is this just an effect - will it go or is it more that the treatment hasn't worked? I was hopeful as it made a difference. I have another Friday and I am dreading the audiogram and them saying it is not worth doing.
       
      • Hug Hug x 2
    8. Kendra

      Kendra Member

      Tinnitus Since:
      08/2017
      Cause of Tinnitus:
      SSNHL/ Acoustic Trauma
      I would ask to keep doing it even if they say it’s not worth it. Also maybe ask to go in oral prednisone at the same time?
       
    9. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      Sorry I didn’t see your post until now.
      I’m in Australia, so can’t help with doctors.
      A good start is to find an otoneurologist as opposed to an ENT.
      Also, there may be a support group on FaceBook for Meniere’s - an Australian one I joined referred me on to my current doctor.
       
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