Tinnitus Loudness

I'm a little confused. My audiologist said that there is no such thing as tinnitus volume. She said that all tinnitus is the same, its just that we react different on it, and that decide if we look at it as loud or not loud.

I don't know if I can believe that. My T seems to go up and down, in both volume and pitch. No matter how I'm feeling. Sometimes its loud and I don't care, other times its almost gone and I get bothered by it. Yesterday it was loud, I went upstairs to relax. Then in suddenly went away. I continued to relax, but it gradually came back.

I don't get it...

 

I totally disagree. T definitely varies in volume, type of sound and in so many other things! She's wrong in saying that everyone has it in the same volume, but different people hear it differently. Proof: my own experience. More proof exists, you just gotta go through this forum.

 

I was told about a study done in Germany, where T patients had the T loudness matched (as I recall it was done by masking level) on different days. Some days they reported their T to be loud, somedays the opposite. The study apparently showed that the masking volume was the same everyday.

It's hard to believe, though.

 

On TRT planet all tinnitus is the same, because it is all about reaction. One day you won't react your T at all and it ceases to exist. This is the highest level of habituation and everyone reaches it eventually. All of our neurons will become unresponsive.

 

That's bullshit. I've read stories about T so loud they can't hear people talk. Obviously that's not because they've not "accepted" it yet lol.

How can you even be an audiologist and come with such ridiculous statements?

 

They obviously don't personally suffer with it.

 

don't feel alone. My T sure seems to change volumn. I have had the same experiences
rodstar43

 

Well, I don't understand that either. Some days I don't react to it at all now, but its still loud. Other days I'm bothered, but I have to put my fingers in my ears to hear it. It goes up and down all by it self. It's like it have its own mind.

 

I`d like to see some scientific backup for such a bold statement when all our personal experiences tell diffrent.

One way to check tinnitus loudness is to match the frequency with a frequency simulator and than turn up the volume until you just reach the border where you can`t differ the sound outside from the sound inside ... I once showed this to my girlfriend to let her have a listen, she started crying because she than understood what we have to go through.

 

It's way passed rude to make bold statements about peoples T volume when she doesn't have it herself. Mind blowing stuff. These medical "experts" never stops to amaze me, all for the wrong reasons I'm afraid. Of course theres a real difference in volume that doesn't run on mental perception.

When I read that some describe their volume as so low that they need to stick fingers in their ears to hear it I must admit I feel very envious. I don't dare to mask my T cause it would mean cranking the masking sound volume up to a mad level. Shame on her for being such an ignorant provider of nonsense.

 

Just to make it clear, my earlier post was my clumsy attempt to make parody of TRT principles. AFAIK Meeruf is undergoing TRT therapy and I think the audiologist is trying to draw your attention from your T characteristics to your reaction to T. After all that is the part that can be changed with therapy.

Yesterday I reacted so terribly I could not mask at all, today my reaction seems to have gone down few decibels or my water tap is louder.

 

"these results suggest tinnitus loudness is coded by gamma band activity in the contralateral auditory cortex" Tinnitus loudness is even observed by EEG since 2009 !

More in this old paper: http://www.plosone.org/article/info:doi/10.1371/journal.pone.0007396

 

The guy's just plain wrong. Sometimes mine will go up in volume and pitch for several seconds and back down. I'm not imagining things. Unfortunately, lately it seems to be a steady louder. Don't know why.

 

That's Crazy, I have seen a lot of post that simply proves that wrong. Its different for everyone, some have it high, some have it low. Even us, we can prove that. Were not IMAGINING it. Clearly that audiologist doesn't get it. My T increases sometimes and gets so low that i almost think its gone and i KNOW its real because i do hear it.

 

No question - my tinnitus volume fluctuates from day-to-day, week-to-week. It unequivocally is not my reaction to the T that is changing. It is indeed the volume. When it is really loud I have trouble hearing conversations. When it is really low, it is very easy to not notice it at all.

 

Your audio person is full of CRAP..

 

I also feel I can't believe tinnitus has always the same loudness. I had moderate tinnitus before and now I feel the volume has definitely increased. Can it all be in my perception or habituation that has worsened?

I also feel a lot of people that say "Yes, I have tinnitus, but it has never bothered me" might have a very quiet sound.

 

@Riikka,

Yes, we all have unique T features and the volume varies a great deal. I find it especially weird when someone that doesn't even have T themselves are saying it's all in the perception. It's really insulting to be honest.

 

My own internal volume level varies from almost imperceptable (rare) to excruciating (occasional). I've found it best to try not to directly, cognatively recognize it on an hour-by-hour, day-by-day basis, although when it's excruciating it's pretty tough to ignore or accept it. Likewise, when I review what was a particulary good day, more often than not I realize my T was way off in the background on that day. My T seems to have become more tolerable, if not dissipated, if I draw focus away from it, not toward it. Hence the reason I don't visit this site much anymore (but I must say it's the best resource out there!).

 

Word of the day Volume.. I know mine changes, my negative reaction is when it is loud.