What If Having Tinnitus Is Actually Cool and Fun?

Discussion in 'Support' started by JohnAdams, Aug 1, 2018.

    1. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I'm joking of course. Another user posted this earlier.

      https://patents.google.com/patent/US9968615B2/en

      This is all about the Frequency Therapeutics' FX-322. I think this is it. The end is in sight. A big component of our suffering is not knowing if we will ever have our lives back. I think we can have great confidence that this will totally restore our hearing and destroy all tinnitus. I think it will. This information has destroyed my fear of tinnitus and I still have it, but my confidence has taken the boot of fear off my neck. Yes, I am a dumbass that gave myself tinnitus being a wannabe rockstar in my basement music studio shredding loud ass guitar. But suddenly I have great great hope that the drug is already there and they know more than they're telling us even here.

      This may even cure vertigo and all kinds of other stuff. Just have hope. There is a light at the end of the tunnel. Let's just hope that it's not an oncoming train.

      They are going to start phase 2 trials sooner than later. I think our nightmare is about to end.
       
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    2. Shriniwas

      Shriniwas Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Ear Syringing
      @JohnAdams, there certainly might be a parallel universe wherein having T is considered cool and people flaunt it.
       
    3. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      Lol it's fun and cool until someone screams at you and you're running away with palms clamped against your ears shaking and weeping. :nailbiting:
       
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    4. Allan1967

      Allan1967 Member Benefactor Hall of Fame

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      Maybe in a mental asylum.
       
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    5. Allan1967

      Allan1967 Member Benefactor Hall of Fame

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      In layman's terms... What's this FX-322 about?
       
    6. John Doe

      John Doe Member

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      elektronik musik
      I like your optimism!!
       
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    7. Mattv
      Busy

      Mattv Member

      Location:
      lincoln, MA
      Tinnitus Since:
      September 2017
      Cause of Tinnitus:
      unknown
      There are some positives, at least for me. There is something about having a conversation with another person that causes my tinnitus to be fade to the background, sometimes to the point that I do not remember I have it. It’s a funny phenomenon, but it’s happened many times. I find myself actively seeking out direct contact with people and having conversations rather than sitting in (what used to be) silence. It’s not just listening, but also the act of talking. I’ll take happiness where I can find it
       
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    8. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      Not even, T is still a loser's disease in a mental ward :arghh::arghh:
      All the cool kid's have sociopathic disorders :cry::cry:
       
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    9. Don Tinny

      Don Tinny Member

      Location:
      Argentina
      Tinnitus Since:
      2017 (worsening)
      Cause of Tinnitus:
      Loud concert with ear plugs
      The feeling of guilt is painful. I did not spend a single day without regretting that concert, believing that I was protected by using some plugs. I also have a feeling of resentment towards musicians, the entertainment industry and, perhaps, society in general.
       
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    10. AUTHOR
      AUTHOR
      JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Lecture: Toward a True Cure for Hearing...


      a new realm of technology that is focused on regenerating our damaged cochleas and possibly curing tinnitus. there are 16 humanoids in this world right now with this stuff in their gnoggins testing to see if it works.

      I tried very unsuccessfully to whip up support on this site to get an advocacy movement started to try and get the FDA to fast track this drug and I was basically just told to sit down and shut up.
       
    11. Allan1967

      Allan1967 Member Benefactor Hall of Fame

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      Misery loves company.

      Good video. I hope something comes of it soon. When do we find out the results of the 16 test subjects?
       
    12. AUTHOR
      AUTHOR
      JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      we won't for this trial, they will. all they will tell us is if it is safe or not, which they already told us last year in the first trial. doip*.

      I think this trial is actually like an internal efficacy trial. this way they can bill it as a safety study, which probably costs less, and then determine for themselves if it does work to then move into the next trial.

      does that make sense?

      people just don't get how bad this disease really is. if they did there would be a large scale government funded program to find a cure.
       
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    13. Allan1967

      Allan1967 Member Benefactor Hall of Fame

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      Sorry of, thanks.
       
    14. Bam

      Bam Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      Neck/stress
      I heard another classic from a friend yesterday... ‘at least you don’t have to walk ten miles every day to get water.’

      No point telling him that I would walk until my feet bled and then I would crawl on hand and knees all day every day from morning to night for the next fifty years to have silence.

      People massively do not get this. It’s f***ing tragic.
       
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