What Is Your Biggest Problem With Tinnitus?

That's because there's no drug treatments for tinnitus that they can prescribe to you...There's only off label treatments which they don't want to give you, as it's a risk for them. They don't care about you, they care about themselves.

 

Yep, i'd agree with that. I've not even had a scan, had T for 18 months in one ear. NHS is terrible when it comes to T.

 

I just feel sorry, for us, that we have to go to places like Spain to buy trobalt, to get some relief for this affliction. The NHS, should be giving us trobalt off label if it works and it surely does.

 

I'm sorry to hear that. In France too the GPs have huge power. Otherwise there are always private doctors, no? Sure you won't be paid back for the service but in this case I guess it's worth it.

 

I would love to go private, i really would. Cost is just so much though and i'm a bog standard bloke with no cash.

 

There'a always a Spain mate.

 

No cash pal. Got the ENT next month and will shortly be starting CBT so see how it goes. Expecting no real answers though.

 

How bad is your tinnitus on a scale of 1-10?

 

To be honest, all this talk of Trobalt over and over again is getting really out of hands. Trobalt gets you wasted with no lasting relief but maybe with lasting side effects.
If you are going to get wasted and get relief there is tons of better ways, dope, alcohol, benzos. Easier to get and safer to use.

 

It's not a Trobalt topic
@Mark Griffin, then maybe change your GP ? This much you can do in England I hope ? I mean if it really torment you for months that you haven't had a real check -up and the diagnosis, you have to go.

 

It's about a 3-4. It's not massively loud but loud enough and it's many different tones.

Tried many GP'S. They all follow the same hyme sheet unfortunately. I've been unlucky I guess.

 

Just by curiosity, how much is it to go to a private ENT where you live?

 

I just got tinnitus. 6weeks ago seems longer. I kept saying it will go away but it doesn't and ENT says u just have to live with it. I'm trying but all I really want to do is scream or cry or both.
The one good thing I have found is this forum. Thank you all

 

Not pursuing a career as a musician. Sometimes, I feel a little envious of former peers going to music school. They've exposed themselves to the same noise volumes and are fine. Then I look at people who have tinnitus worse than mine, they keep teaching music, performing it, and making it. Reading their stories makes me complain less about my T but then I'm also a little jealous of their courage to go on.

 

My biggest problem with T? The hearing lost with it.

I would give so much to have a better audiogram... even if it could be worse ( still in the "normal" range of hearing) so i accept it now.

 

I put down "other" because I don't know where my complaint fits. The biggest thing that bothers me is barometric pressure. It turns relatively tolerable T into a high-pitched squeal that drives me nuts.

 

The first time I got tinnitus things came right after about 6-12 months. Volume wise it wasn't too bad and I guess I just got used to it. I had a masker for sleeping at night and I was able to do normal things without any change in my tinnitus.

I'm about 7 months into my relapse. While things have improved I am still not over the hill. The sensitivity of my right ear is such that exposure to environmental noise while driving, or being outside causes my tinnitus to pitch up to either a hiss or if too much exposure a high pitch squeal. There is pain attached with this whole process as well and a sense of fullness.

I have been to numerous specialists, more recently to the Tinnitus Clinic in Auckland but have not received any encouraging news. No one seems to know what is going on. I can only speculate that I have hyperaccusis specific to certain frequencies, probably somewhere in the 12k to 14k band where I have hearing loss. I am at a loss for how to treat this, other than to give it time and hope that I can habituate and get used to it.

The good news is that my tinnitus isn't extremely loud. I can hear most other sounds. What gets me the most is the frequency more than anything else. It carry's an intensity that causes me to wince. I gather I will get used to that with time as well. It's only been 7 months and habituation usually takes 12 to 18 months.

 

The worst part of my T isn't the noise. Most loud enough that it drowns out speech but mine is sporadic and not constant like others. I get minutes of quiet between bursts and I live in those minutes. But what is the most difficult is that the noise in my ear makes my eyes jump around and bounce all over the place! I fall down or vomit and often can't get out of bed and must be carried to the loo. That's the worst part for me. I would live with the noise - rather not have it but it's less to cope with that being unable to walk or function or string a sentence together that doesn't sound like gobble dee gook!

 

The possibility that it won't let me go, ever...

 

Very early days yet. It might go away

 

Yeah, I played the Commodore too and one day I was playing my favorite game and I wanted to save it so it told me to insert the save disk and I thought I did and hit the button and because I didn't have the write protect feature set on my disk it rewrote over it!! It was a neat system but I guess after that I kind of grew out of it, the cartridges were fast but the disk games could be so slow to load and then it might say flip to side b.

Getting back to the topic though, it is very interesting to see that anxiety and depression are the 2 big things that bother people about T with anxiety being the top one. It seems like if we can knock these two out it could help a lot of people.