When Everyday Sound Becomes Torture

Discussion in 'Support' started by dan, Apr 25, 2013.

    1. dan
      Chatty

      dan Member

      Tinnitus Since:
      06/2011
    2. Spider
      Goofy

      Spider Member

      I read this a few weeks ago (buzzfeed article) and haven't been the same since. I was so afraid that I started to overuse ear protectors and went a little crazy!
       
    3. James
      No Mood

      James Member Benefactor

      Location:
      California
      Tinnitus Since:
      Pulsing 03/2013
      Thanks for sharing that story dan. That’s quite a story. I skimmed thru it, and I think I’ll read it again, more than three times. Dreadful, it's an awful thing for a person to endure.
       
    4. Lord of the Ring
      Cheeky

      Lord of the Ring Member

      Location:
      Belgium
      Tinnitus Since:
      03/2013
      There is a short-movie about Dietrich Hectors, the Belgian guy mentioned in the first article. The movie is called 'Ruis', which means Static, white noise. It's not a good idea to watch if you already anxious about your tinnitus or hyperacusis. You can find it on YouTube, but it isn't of much 'entertainment' if you don't understand Dutch…
       
    5. AUTHOR
      AUTHOR
      dan
      Chatty

      dan Member

      Tinnitus Since:
      06/2011
      do you have a link to the full movie?
       
    6. Lord of the Ring
      Cheeky

      Lord of the Ring Member

      Location:
      Belgium
      Tinnitus Since:
      03/2013
      No, unfortunately the full movie is not on YouTube yet.
       
    7. amandine

      amandine Member

      Tinnitus Since:
      july 2014
    8. Tempest
      Tired

      Tempest Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Loud concert
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    9. Coffeebean

      Coffeebean Member

      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Noise
      I've seen and read some of these stories as well but in my view they should come with a disclaimer that states that these cases involve a very small subset of patients with very severe symptoms who have not been able to improve, possibly because they have not yet found the correct treatment.

      I do not want to downplay the severity of hyperacusis in any way, as I know from experience that it can be horrible and that no-one will truly understand what it's like if you don't experience it yourself, but what these stories do is that they play into the fear and anxiety of people who just go the condition, which leads to avoidance behavior which is counterproductive in treating it.

      It's not uncommon to hear that people even commit suicide after very recently acquiring T and/or H, as they are convinced that they will never improve or habituate, while the reality could have been very different for them with time and treatment. I have no doubt that all the horror stories only contribute to their fears, and might even push them over the edge.

      Recently I came across a similar article in my native language which basically stated that your life is over if you get T&H, so I e-mailed them politely asking them if they could at least include a small footnote that there are also people with T and/or H who either improve or habituate, and who go on to live a full life, but they refused as their articles need to be as 'exiting' as possible....
       
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    10. florian_89
      Alone

      florian_89 Member

      Location:
      Oetz, Tirol
      Tinnitus Since:
      04/2015
      Cause of Tinnitus:
      Music Speaker
      I totally agree with you, I am a sufferer myself. I have good and bad days, today is a better one with H.

      I guess the writer just wants a story people (normal people) are afraid of. The sufferers are seen as zombies.
      Same with some ENTs, they even think I am joking.
       

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