Why Not Give Retigabine (Trobalt, Potiga) a Try?

[Quentino]

Funny how govt. Can decide to ban a drug completely from patients while collecting tax money instead of letting doctors decide what's best for their patient.. or even better letting a patient decide what's best for

And when government let a dangerous drug on the market, everybody say it's a scandal...

Letting the patient decides... Incredible what we can read on the internet. We are not talking about candies you know?

 

[Ricky81]

And when government let a dangerous drug on the market, everybody say it's a scandal...

Letting the patient decides... Incredible what we can read on the internet. We are not talking about candies you know?

Which govt. Is the right govt then?

Govt A that legalized drug Z, or Govt B that banned drug Z?

Politicians could care less about you. Lol. They get paid by the millions by powerful lobbies and competing companies that most likely determines what is legal where. Look at the oil industry.

 

[Christian78]

From what I found out:

"Salicylates also occur naturally in foods such as almonds, apples, apricots, blackberries, boysenberries, cherries, cucumbers and pickles, currants, dewberries, gooseberries, grapes or raisins, nectarines, oranges, peaches, plums or prunes, raspberries, strawberries, and tomatoes."

The hell are we supposed to eat then???

depends how sensitive you are, but strawberries have it too much silicates i was whistling 2 weeks or 3

there is entire tinnitus diet, i suppose you can find it...

not too much salt, no fake sugar aspartame, not acid thing like citrus acid, no vinegar, worst is MSG E621 taste enhancer.... there is a list

 

[Martin69]

depends how sensitive you are, but strawberries have it too much silicates i was whistling 2 weeks or 3

there is entire tinnitus diet, i suppose you can find it...

not too much salt, no fake sugar aspartame, not acid thing like citrus acid, no vinegar, worst is MSG E621 taste enhancer.... there is a list

Christian, I guess you have all tried. I am right?
So no or little salt, no or only little white sugar, no aspartame, no citrus acid, no MSG.
But did it change your T?

 

[amandine]

Christian, I guess you have all tried. I am right?
So no or little salt, no or only little white sugar, no aspartame, no citrus acid, no MSG.
But did it change your T?

and this is the point and well asked Telis - i dont believe it makes any difference to it whatsoever..............has anyone done a study yet and found out that if they stop eating this or that then their T goes down? Or do we carry on rubbing the almonds on our heads? Some of the suggestions that I have seen on this forum make me weep with incredulity as normally educated people come up with the most insane ideas to rid themselves of this T noise........so desperate are we that some folks here are now rubbing almonds into their scalps......madness!!

 

[Martin69]

and this is the point and well asked Telis - i dont believe it makes any difference to it whatsoever..............has anyone done a study yet and found out that if they stop eating this or that then their T goes down? Or do we carry on rubbing the almonds on our heads? Some of the suggestions that I have seen on this forum make me weep with incredulity as normally educated people come up with the most insane ideas to rid themselves of this T noise........so desperate are we that some folks here are now rubbing almonds into their scalps......madness!!

Some report that changes on their diet, taking supplements, avoiding this or that has an influence on their T. Others report that it has no influence for them. I have read somewhere that there are around 400 known causes for T. This makes it so difficult finding a solution. I doubt there will ever be a "one fits all" solution. So you can spend thousands and thousands of dollars for everything and get nothing.
In my case I am 100% sure it is a brain issue. Never had an ear issue in my life and my T was caused by stress.
A benzo calms down my T. So I am sure it is those hyperactivity of neurons in my brain. But what do we know?

 

[Danny Boy]

Well, I'd rather try Perampanel over trobalt. It's a safer drug and is made for 12 years old and up. And plus, nobody has tried it for tinnitus, so makes it extra exciting to see if it works.

 

[Christian78]

i have it it try and now i have too many boxes home and dont know what to do with it, i was scared there will none on market so doctor game a stash.

 

[glynis]

Hi All,
I live in England and as far as I'm aware Trobalt is not offered.
It just seems like antibiotics and anti depressants and anxiety meds .maskers or hearing aids,CBT and TRT.... not sure if we are behind the times from other countries ..... great to hear what you think ........lots of love glynis

 

[Christian78]

Since I joined this forum and got to know the existence of Retigabine, I very very much wanted to give it a try. Unfortunately it's not available in my country and doctors don't even know about its name.

There are so many people here and just a few of them tried it. So wanna know why?

Where u from when it is so hard to get?

 

[Kyxwz]

I want try it in next future. If i find something that low my T i can use it just for 1 month in a year and for the rest i try to copy with it but with a gun to stop the sound when i want.

 

[Christian78]

well i use it, in morning 200-300mg to kill my tinitus
or in evening 200mg to end it and make my sleep better, like full 10h

I stocked myself, and I will be willing to sell it for same price as it is in sweden, to some friends... who are in relly big problems

 

[Kelvin]

Hi All,
I live in England and as far as I'm aware Trobalt is not offered.
It just seems like antibiotics and anti depressants and anxiety meds .maskers or hearing aids,CBT and TRT.... not sure if we are behind the times from other countries ..... great to hear what you think ........lots of love glynis

Retigabine ( Trobalt ) won't be offered in UK it is being withdrawn due to side effects.

https://www.gov.uk/drug-safety-upda...last-line-use-and-new-monitoring-requirements

https://assets.publishing.service.gov.uk/media/57fe4b6640f0b6713800000c/Trobalt_letter.pdf

 

[Taviap14]

Is it even given in the us

 

[Paul10]

I live in a country with universal healthcare and it would be very difficult to get a doctor to proscribe this for T. Would I try it if I was in America? Sure.

 

[Alue]

well i use it, in morning 200-300mg to kill my tinitus
or in evening 200mg to end it and make my sleep better, like full 10h

I stocked myself, and I will be willing to sell it for same price as it is in sweden, to some friends... who are in relly big problems

I have been giving it a trial. I got a full eye workup with a ophthalmologist that knew I was going to take it. So far no bad side effects.

I was on 200 tid and it works pretty well providing I get good sleep. I since have backed off the dosage to 100mg after breakfast, 100mg after luch, and 200mg after dinner. It doesn't completely eliminate my T, but it makes it more tolerable.

I had an eye checkup since starting and I have another one soon.

Retigabine ( Trobalt ) won't be offered in UK it is being withdrawn due to side effects.

https://www.gov.uk/drug-safety-upda...last-line-use-and-new-monitoring-requirements

https://assets.publishing.service.gov.uk/media/57fe4b6640f0b6713800000c/Trobalt_letter.pdf

Taken directly from your link: "GSK intends to discontinue the product permanently due to the very limited usage of the medicine and the continued decline in new patient initiation." They didn't say it was being withdrawn due to side effects. I'm not saying Trobalt is safe, it can have scary side effects.

 

[Kelvin]

I have been giving it a trial. I got a full eye workup with a ophthalmologist that knew I was going to take it. So far no bad side effects.

I was on 200 tid and it works pretty well providing I get good sleep. I since have backed off the dosage to 100mg after breakfast, 100mg after luch, and 200mg after dinner. It doesn't completely eliminate my T, but it makes it more tolerable.

I had an eye checkup since starting and I have another one soon.




Taken directly from your link: "GSK intends to discontinue the product permanently due to the very limited usage of the medicine and the continued decline in new patient initiation." They didn't say it was being withdrawn due to side effects. I'm not saying Trobalt is safe, it can have scary side effects.

True...but thats the Company link ! The other link is the UK Gov Drug Safety website link. This suggests use as a last resort due to eye and skin pigment changes in an unacceptably high number of patients. As usual its probably an overreaction and if it helps people with T then maybe you just balance the risk. Life is a risk. Just wanted to put it out there in case UK suffers wondered why there GP won't prescribe. Wishing you all you lovely folk a peaceful day X