_Shoto_

Neurologist refused to see me because he knows nothing about hyperacusis, noxacusis, nerve pain, etc. Will request another one...God help me

I got neurologist referral today. I hope they don't drug test because my state is extremely anti-weed. They gonna block all my meds and etc

150 mg Ibuprofen helped but now tinnitus is 11/10. Hopefully just a temporary spike. And I hope I will be able to fall asleep tonight. Omg

I am not going to use benzo today. Once a week is my maximum. Tomorrow is 7th day so probably tomorrow. But I hope it won't be needed! :c

The worst day. Watching a movie and then probably praying to fall asleep. I want this day to be a fever dream. It's 10/10 loud and painful

I hope tomorrow is a better day. I hope I'm experiencing a temporary spike or something like that, I won't tolerate *this* for too long...

Why am I such a severe case? I never attended concerts or parties. I can't believe i have to suffer for the next 40-50 years. Oh my god

I'm not sure I can keep going. I'm trying to distract myself with everything. It just getting worse and worse. Pink noise don't help anymore

I feel absolutely the worst since the trauma onset 7 or 8 months ago. Absolutely catastrophic. My head hurts so much. Especially inner ears

I feel like my ears are inflamed inside. This is not a life. This is an existence

Last 2 days my ears hurt more than usual, ringing is louder. Something is broken and I'll never know that. A nerve? Hair cells? A muscle?

Dysacusis is completely gone but T is 9/10 and it's been like this for a week. So probably a new norm for me. Gonna habituate again

Can I print out articles from Wikipedia and give them to my neurologist? Is that rude? I just know he knows nothing but I need meds from him

My dysacusis and diplacusis are gone after one week. Fuck smoke alarms. I genuinely thought this was my new reality. I'm so happy! So happy!

20 years of Susan's life is my last hope for a better life, or a life at all. I swear, she is like a God to me. I'm in so much pain rn

Can some one tell me here why I decided to open that semi-plastic salad box without ear protection? I had earmuffs 5 feet away from me...why

Well. It's been less than 2 hours since I opened that damn salad and now I can hear my tinnitus spike. Both ears. Very unpleasant waves...

I will never go to kitchen without double protection ever again lmao. So far no worsening, but "81" is still too loud, even if it's just sec

Opened the salad that was packaged in a semi-plastic container. The sound was 81db according to smartwatch. Felt like 200. I almost fainted

My local Walmart has speakers on every entrance and they are set to 112-125 decibels according to my smartwatch AND my db meter from Amazon

Just found out about Diplacusis. It has four types. I think I have Diplacusis binauralis or Diplacusis dysharmonica. I'm not sure lol

Proud to be pretty severe case of all things on this forum. At least I'm good at something: collecting extremely rare disabilities

Dysacusis is very irritating. I hope I'll get used to it just like I got used to hyperacusis and tinnitus. Barely got used to but accepted

Trying to enjoy small things because enjoying big things is no longer possible for me lol. Bought ice cream for $4 instead of usual $2.99

Nurse practitioner in my family doc office asked to remove earplugs and then screamed in my ear. I have no words but I'm not surprised lol

I'm gladly want to announce that now I'm officially diagnosed with dysacusis in my left ear. Credits to smoke alarm with 120(!) decibels yay

I feel absolutely the worst. Probably cuz of 16 mg methylprednisolone. Ears hurt. Everything is disturbing my ears. Hopefully it's temporary

Less than a year ago I was a fully abled person with *okayish* future. I had everything. I lost everything. And will continue to loose all.

My T will be getting worse in the future no matter what I do and how much I protect. These thoughts are really heavy. The truth hurts.

Going to PCP tomorrow to get referred to neurologist. I hope PCP will prescribe extra methylprednisolone for as needed basis. They won't tho