jeannie
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jeannie

Member, Female

My head sounds like a big giant seashell Apr 12, 2016

    1. jeannie
      jeannie
      My head sounds like a big giant seashell
      1. Sailboardman
        Sailboardman
        My head sounds like a big, giant machine shop! }:-(
        Apr 12, 2016
      2. hurtingdream
        hurtingdream
        Mine too! Ugh!
        Apr 12, 2016
        Sailboardman likes this.
    2. jeannie
      jeannie
      Anyone have tinnitus that sounds like it's right in n middle of head one day and in ears the next day? And very loud?
      1. John G
        John G
        I get that feeling too. Although it is hard to track where it actually is. Just like closing your eyes when there is a fly buzzing around the room
        Feb 25, 2016
      2. Joan A.
        Joan A.
        if you mean fluctuating tinnitus, yes! from an ear to another to whole head jumping on various frequency
        Feb 26, 2016
    3. jeannie
      jeannie
      Brain.headringing loud for last few days Having dark thoughts..
      1. View previous comments...
      2. jeannie
        jeannie
        F%&K TINNITUS!!!
        Feb 23, 2016
        Sailboardman and just1morething like this.
      3. Sailboardman
        Sailboardman
        You hang in there Jeannie, I'm coming to your place, with a few gallons of wine, to help cheer you up!
        Feb 23, 2016
        jeannie likes this.
      4. John G
        John G
        Take care jeannie
        Feb 23, 2016
        jeannie likes this.
    4. just1morething
      just1morething
      Hello Jeannie, have you ever checked out Laser spine for your neck? I still think the neck may be involved. Aren't you from the Cleveland area? https://www.laserspineinstitute.com/?... I don't know if they're good or bad though?
      1. View previous comments...
      2. just1morething
        just1morething
        Right now it's a loud hiss in both ears. I sent a MRI of my low back & neck to them. I think I will email my cervical x-ray too.
        Feb 17, 2016
      3. jeannie
        jeannie
        Please keep me updated.mine is going from middle of whole head to ears and neck hurts everyday....
        Feb 17, 2016
      4. just1morething
        just1morething
        Will do. I know any type of surgery is dangerous but I don't like taking high doses of gabapentin either and/or benzos. Would like to get my quality of life back. They supposed to contact me within 3 days I believe.
        Feb 17, 2016
        jeannie likes this.
    5. Kranthi
      Kranthi
      Hi jeannie, i have sent messages to others and i am looking forward to a reply from you please help me i hear my heart pounding wen i try to sleep, sometimes in the day as well if i sm concentrating on my heart beat. I have gastritis which caused b12 n other vitamin defficiency so pls help me i wanna talk to u pls. 3147373643
      1. jeannie
        jeannie
        Hi Kranthi, that is pulsitle tinnitus, which could be caused from a vessel disorder. see if gp will order an MRA of the brain it will check the vessels.also b-12 deficiency can cause tinnitus. make sure you are seeing a doctor to get these treated..keep me posted please.
        Feb 4, 2016
    6. just1morething
      just1morething
      Hello Jeannie and Happy New Year!! Was wondering if your TMJ crepitus was on the same side as your bad tinnitus ear? I was going to send you my 3 page report but didn't yet. I have to find it and scan.
      1. jeannie likes this.
      2. View previous comments...
      3. jeannie
        jeannie
        Ya mine has completely gone to a zero before.and changes from head to ears.I'm thinking opptical neuralgia.?that's compressed nerves at base of skull.
        Jan 5, 2016
      4. just1morething
        just1morething
        My crepitus is on my left bad ear side also so there's a chance the noise could be from that interfering with some small ear muscles possibly. I notice my left ear doesn't crack when I swallow either today so could be ETD. Confusing!
        Jan 6, 2016
      5. jeannie
        jeannie
        Mine sometimes sounds like Morse code on top of buzzing.neck is always sore ,tight ,achy too...I could have gotten a cervical branch block but I'm to afraid too....
        Jan 6, 2016
    7. jeannie
      jeannie
      Prayers go out to Paris!!!!God Blessā¤
    8. jeannie
      jeannie
      I appreciate it thank you...
    9. jeannie
      jeannie
      OK.I have one but think it made my tmj worse
    10. just1morething
      just1morething
      I do have a elastic mandibular advancer to pull my lower jaw ahead for left side TMJ disorder and for sleep apnea.It was suppose to keep my airway open and make the noise go away. I am still not sure if my noise is from inner ear damage or TMD or something else.. I could PM you my 3 page Dr. report if you want... if I can find it.
    11. jeannie
      jeannie
      Do you wear a splint just1morething?
    12. jeannie
      jeannie
      My tinnitus has been horrible for a few days now
      1. just1morething
        just1morething
        bad tinnitus is hard to bear, it seems so random the good and bad days
        Nov 13, 2015
    13. jeannie
      jeannie
      I'm supposed to get a shot at c5 soon but I'm to scared!
    14. jeannie
      jeannie
      My doctor put me on duexis and it has helped my neck but not my ears!!!
    15. jeannie
      jeannie
      Hi just1morething.I'm sorry the shot didn't help you
    16. just1morething
      just1morething
      I hope you've been having some success with this demon! I had a basically normal day a couple days ago and then it restarted upon awakening again. Cervical injection awhile back did not help but was done by my C7 area.
    17. jeannie
      jeannie
      Yes sailboardman,I agree and thanks.
    18. jeannie
      jeannie
      It's back again
      1. Sailboardman
        Sailboardman
        T is like people you'd rather not associate with, but always seem to show up everywhere you go. Sorry it came back.
        Sep 4, 2015
    19. jeannie
      jeannie
      Ya Richard I thought so too,maybe a coincidence??? 2 days in a row ...
      1. Richard zurowski
        Richard zurowski
        Well they seem to work for you. But a word of caution.i don't know the long term effects of this drug. If constantly used ?
        Sep 3, 2015
    20. jeannie
      jeannie
      It's going strong today but its in middle of head instead of ears and nothing reduces it in my head.just when its in ears...weird????
    21. jeannie
      jeannie
      hi ! i had something weird happen... i took ibuprofin 600 mg and my tinnitus went down to a 1-2..
      1. Richard zurowski
        Richard zurowski
        And ibuprofen are supposed to make tinnitus worse . I wonder sometimes if all this hype about drugs and tinnitus is true. I think not.
        Sep 2, 2015
      2. Sailboardman
        Sailboardman
        Hmmmmm?
        Sep 2, 2015
      3. just1morething
        just1morething
        Nice to hear that you had a good day Jeannie.
        Sep 3, 2015
    22. jeannie
      jeannie
      Ya my doctor thinks I'm a hypochondriac.lol wish he had to have my issues just for a week
    23. just1morething
      just1morething
      I seem to be doing some better today. I have to use my TMJ appliance every night in case that's part of my problem. Also using Flonase. I think the spine docs think I'm nuts and that it's all inner ear damage.
    24. jeannie
      jeannie
      Doctors don't do them at c1 c2? Ya.I'm thinking my neck has something to do with mine too..good luck!!!!!!!!hope it helps you!!
    25. just1morething
      just1morething
      Not yet, Sept. 4th. C1-C2 injection could help if a Dr. would do it that high. I'm still looking,hoping that the neck is at least partially the cause. Injections are at least conservative compared to surgery.
    26. jeannie
      jeannie
      Did you get your injection ?if so did it help?
    27. just1morething
      just1morething
      Hello Jeannie, Maybe it's just noise exposure damage? I'm still looking at the neck angle anyway, nothing to lose.
    28. just1morething
      just1morething
      I will have a interlaminar epideral steroid injection as soon as possible C7-T1 as wrote up by Midwest Spine.https://www.midwestspine.net/ I hope your having a better day.
    29. just1morething
      just1morething
      Hello Jeannie. I still think DDD is still the cause of this nasty noise. Sleepless Soul had a lot of screeching and I doubt she had much noise exposure. I guess the only way to find out is probably a neck fusion or ADR surgery. I did see a PA at Midwest Spine last Thur. and he said my neck would need something done eventually and to have MIS on my lower back.
    30. just1morething
      just1morething
      Hi, I am quite certain my lower back L5S1 is causing my toes to sting but not sure if my neck nerves are causing the noise today. It could just be noise exposure damage. Waiting for Autifony could be a long time. I will resort to other meds for now.
      1. jeannie
        jeannie
        Hi! Yes I would imagine lower back would cause that.sucks we gotta wait so long for autofony
        Jul 23, 2015
      2. just1morething
        just1morething
        I wonder how long some of us can hold on? My noise went up yesterday from riding my bike and neck adjustments at chiro. Just took Klonopin 1 mg to calm the hissing down. Neck caused T is supposed to be the loudest kind. Sucks yeah that we don't have something to lower are noise within a hour or so when it spikes.
        Jul 23, 2015
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  • About

    Gender:
    Female
    Tinnitus Since:
    2013
    Cause of Tinnitus:
    Noise-induced, Ear Infection, Medication... Who knows?
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