kingsfan

When going through hell, keep walking

@Juliane =(

I feel the same about needing anxi-anxiety meds. I actually have one (lorazepam) but I only take it occasionally since it's a benzo, so that doesn't really manage things. Had side effects from ADs. Maybe need to try alternative like Buspirone.

@kingsfan I'm really sorry of your current struggles. Do you have any ability to access a social worker, who maybe able to help lessen the burden to do with job placement? or maybe has other ideas in your vicinity?

I also take benzo's, and sometimes kratom. About ending it.. :( sadly.. i sometimes think about it too, or feel like.. hope it will end (not by my own cause). The only rule i feel about self conclusion, is to never be impulsive about it, and never while under influence. Take time, go day by day.. trying to go easy.. please may time make things better

You could not have known. You were just trying to live

@Juliane I should have known. I had been there before. I knew the layout. But last time was in the morning, I think before they started working on cars.

I should have ran out at the first drill blast, but my social anxiety just kept me frozen, too afraid to embarrass my self

I understand. But you cannot change your reactions always. I don't think you have done anything wrong

@Juliane I'm just not sure how I'll habituate to this. My T was already variable where I'd have days that were wasted on just trying to survive and then productive days.

For the past 3 weeks, besides the temp relief from prednisone, even my best T days are now only equal to my previous worst T days.

I've had anxiety most of the time since my tinnitus increased about 2 years ago. Some days worse than others and only occasional benzo use after AD's never helped. Life definitely isn't the same.

@kingsfan I am so sorry to hear that. Worsenings are devastating and I don't have anything clever to say. I just hope you improve

Ears full after having a simple conversation without earplugs.

:( This disorder is relentless.

or it’s more effective for you.. because there’s more tinnitus to get rid of.

Same here :-(

@cjbhab As my tinnitus gets louder, 6db reduction means less and less. Could be constrained from gaining potentially quiet tinnitus to only less severe, but still severe tinnitus.

@4Grace That is what I fear some people think of me. So priviliged most people are to not have any idea what T is like....

@cyberspace I accidentally deleted the post you commented on, can't think clearly, but if you look down through my profile you'll see the progression of events starting from being exposed to an impact drill at the auto mechanic shop.

@4Grace I knew all about tinnitus even before mine spiraled out of control, and still had no idea what it could become. There is no possible way anyone who hasn't experienced it first-hand will ever understand, so I really don't blame them.

Good to see you atleast got one of the ‘better’ outcomes from steroids. Get some respite I suppose.

Hope your spike will still settle soon though.

@ZFire Yea it didn't silence my tinnitus, just changed it to fairly loud static which I considered a vacation from what I'm normally subjected to.

:-(

@Tryn2BHopeful doctors will usually say that taking for less than month doesn’t need a taper, but the standard regimen for SSHL is 60mg for 7 days then a week of taper which seems to contradict the whole “not needing a taper”

Yeah its funny, when I went in for my follow-up for the other issue the doc saw what was prescribed and the first words out of her mouth were... and they didn't prescribe you a taper?!? Then she kinda just said well it should be ok... My T had started already at this point, albeit not as intrusive as it is now. I have just lost faith in doctors, but I need them to help me through this hellscape.

@Tryn2BHopeful it can be a real hit or miss with doctors. Unfortunately we suffer when it’s a miss.

Every night. I sound mask for both sides. Still hear the sirens. No idea how I sleep. It’s a miracle.

@4Grace I had gotten to the point where I didn’t need to mask. But now masking isn’t even working so it doesn’t matter if I do it or not. Also having sensations on and off that feels like my brain is being drilled and scraped

@kingsfan so sorry. My masking causes me pain but I need it. Go figure. Go insane without. I just wish I could do normal things.

Was gabapentin lowering your T

@cyberspace it would usually lower any spikes and get me back to my baseline.

❤️

Sorry buddy. I know what you mean. I have had that level for a while. Constant escape all day. Every second is torcher.

My TTTS always feels like fluttering or thumps. I never feel it as a pressure.

I get this all the time. Takes all my power not to be stressed. After a year sometimes the stress wins.

I talked to a Dr. today about that TTTS. I have the pressure a lot, the fluttering in my ears and the thumps today, but I don’t get the dizziness and the pain. He told me I have reactive tinnitus and hyperacusis.

I cant even find an ent or aud that isn't just trying to take my money. T has made me lose faith in the system entirely.

@SarahMLFlemmer Thank you. I just had my T under control again after some loud noise exposure back in June. It just always sucks to be dealing with it over an over again. Also little by little it gets harder to hear because of all the static and ringing, so that depresses me as well.

@Tryn2BHopeful I thought maybe I could just some prednisone (I don't advocate taking it for every little thing though), but the doctor was just rude only wanted to irrigate my ears so I didn't feel confident even bringing it up.

Incredible.

@kingsfan Don’t mention it, man. I get it.

If I was in your shoes, I’d be taking the same exact steps as you have done especially with those supplements. Also Probably spend more time in a quiet setting in the meantime as well just for precaution. To be honest, I’d be weary to take a course oral steroids again unless I went deaf.

But don’t let my reservations about steroids discourage you from considering them if you believe they might be helpful. I just don’t think they’ll provide any permanent tinnitus relief. But definitely check with doctors, see what say about the intense pressure issues you’re experiencing.

Most descriptions of nox I’ve seen include ‘lava or acid burning pain’. There’s also stabbing pains, usually described as having a screwdriver or a sharp knife impaled deep inside your ear.

@ZFire I'm having pain that feels like an ear ache. And my keyboard and even opening mail is triggering TTTS and just feels uncomfortable.

Why not? Hope you are coping OK

I do not understand this madness. I am so sorry.

I've got this, too. Typing on a keyboard triggers it on every key press…

@SilverFox Yea I'm getting it extremely bad just opening a ziplock bag.

@ZFire All valid points. I think this is the loudest thing I've been exposed to so far. My watch didn't record the db level since it was in multiple short bursts. Felt like my ears and head were going to explode. Online search says up to 110decibels.

@ZFire I only had my 1of1 custom 26db earplugs in. My ear spiked almost immediately after I left and ears have felt clogged and painful. Just talking is making my ears have a lot of pressure.

@ZFire My right ear was facing the direction of the sound but the whole garage reverberated from it. Then I was exposed to air out of an air compressor for several seconds