Recent content by LostOutWest

@Hazel, @Markku huge thank you for all you do for this community with these hopeful interviews. Suggestion: on the heels of the wonderful FX-322 episode, it would be interesting to get Pipeline Therapeutics' CEO Carmine Stengone on the Tinnitus Talk Podcast. Their drug is not specifically...

Tegretol didn’t do much for me. I stopped using it a long time ago. Sorry I haven’t been on here in about 6 months. I tried Misoprostol too - no measurable improvement.

Hi all - just wanted to come back and post an update. I know it was always hard when people disappeared, especially whose stories I was following in those early days. I still have tinnitus. It feels like it has improved a bit (maybe 25-30%). Is it habituation? I don’t know. I manage it all much...

Hi all - I am going to take a break from this board for a while. It's given me a wealth of ideas and information, and I appreciate the support and advice especially in my early days. That said, at ~3.5 months into tinnitus, I feel like I'm starting to get a grip on my emotions, certainly a lot...

Glad my advice helped you think through this. Re: your Philly trip. Resist your urge to tell yourself stories about this! We all do it. Your boss probably knows very little about tinnitus and didn't know that asking you would cause a lot of stress. We all want to stay on the good side of...

Hi Michael - it’s only been a week it could certainly be a temporary tone. Sounds like your tinnitus changes somewhat frequently - no reason to believe it won’t go away or change into something more manageable . For how long have you had tinnitus and do you have measurable hearing loss?

Hi all - for about a month, I've had this little pulsing annoying tone show up in my right ear. I started on Tegretol (no difference yet - although it's a small dosage at 100mg / day). I would also say that over the month, my general tinnitus continuous drone has had quieter moments, and has...

Hmm my math make not so good maybe. Probably some error of mine. 4g aka 4000 mg (right?) and I think this stuff is $8+ per mg, putting the course at $34k. I used a bigger human to get my $40k.

Thanks @JohnAdams. Funny that. Yeah my calc was pretty close, adjusted for fatness of my human in the math model. That puts each dose around $10k. So $40k for the treatment course. Woof.

Spinks- You’re probably going to be fine. Protect your ears, take some anti-inflammatory supplements like Curcumin, NAC, and Glutathione, stay away from excessive noise, take care of yourself (rest diet etc). Mask the sound a bit to give yourself a break, and try to keep your fingers out of your...

The rat-to-human dosing would be based on a pretty standard formula used in medical conversions. @JohnAdams I believe you worked this dosing out based on said calculation from the rat trial. I’d love to take a look at that math problem again and compare my math to yours, you know, JUST FOR...

Working on it.

Hi there - sorry you’re having a rough go of it. Your tinnitus sounds a lot like mine, minus the airplane issues. My idea: How about instead of the radio or podcasts in the car, stream some more effective masking sounds like white noise or train sounds or whatever works best for you. Mask...

Straight people, of course.

Thanks for sharing - I appreciate the detail on the sound component as we are all a bit sensitive to sounds and volumes. Re: your success - you ran only a 4 week protocol as well as I understand it, so perhaps with more time on the device your results could have improved even further, and some...