Search Results

@Hazel, @Markku huge thank you for all you do for this community with these hopeful interviews. Suggestion: on the heels of the wonderful FX-322...

Tegretol didn’t do much for me. I stopped using it a long time ago. Sorry I haven’t been on here in about 6 months. I tried Misoprostol too - no...

Hi all - just wanted to come back and post an update. I know it was always hard when people disappeared, especially whose stories I was following...

Hi all - I am going to take a break from this board for a while. It's given me a wealth of ideas and information, and I appreciate the support...

Glad my advice helped you think through this. Re: your Philly trip. Resist your urge to tell yourself stories about this! We all do it. Your...

Hi Michael - it’s only been a week it could certainly be a temporary tone. Sounds like your tinnitus changes somewhat frequently - no reason to...

Hmm my math make not so good maybe. Probably some error of mine. 4g aka 4000 mg (right?) and I think this stuff is $8+ per mg, putting the...

Thanks @JohnAdams. Funny that. Yeah my calc was pretty close, adjusted for fatness of my human in the math model. That puts each dose around...

Spinks- You’re probably going to be fine. Protect your ears, take some anti-inflammatory supplements like Curcumin, NAC, and Glutathione, stay...

The rat-to-human dosing would be based on a pretty standard formula used in medical conversions. @JohnAdams I believe you worked this dosing out...

Working on it.

Hi there - sorry you’re having a rough go of it. Your tinnitus sounds a lot like mine, minus the airplane issues. My idea: How about instead...

Straight people, of course.

Thanks for sharing - I appreciate the detail on the sound component as we are all a bit sensitive to sounds and volumes. Re: your success - you...

Question for you on this topic - the Lenire folks are saying that their devices sound like bleeps and tones and sad science music. Did the UM...

I noticed a bit of dry mouth at 40/50mg but not so much at 30mg. I do get a touch of lightheadedness if I get up too fast if I’m above 30mg (which...

I’m on a low (30mg dose) of daily Nortriptyline and I’ve never slept better in my life. Solid 9 hours of glorious, uninterrupted sleep.

I can tell you that if I could get my hands on FX-322 I’d get it shot into my ear today. I have no material concerns that it would harm me given...

Small update here; I spoke with my Neurologist who suggested Tegretol (Carbamazepine). I’m on a 100mg dose which is pretty low. I have to admit,...

For anyone who donated to Hough (or any other Tinnitus and Hearing research and support orgs, or really any worthwhile cause for that matter) and...

In an effort to be proactive, I sent some emails to Frequency Therapeutics' leadership to see if they would share any light on the efficacy of...

Hey @MrCrybaby - you don't seem like a crybaby at all. Your GP gave you great advice and sounds like an overall wonderful person. You're on...

I agree. I had my audiology done up to 16 kHz and the taper was apparent after 12 kHz. Sure at 38 years old there should be some taper, but I...

@Yas You and me both. I’ve lost so much time over tinnitus. I’m trying to pour myself into work, friends and staying the course on the recovery...

I hear you on the dinner. I live alone far away from my immediate and extended family. In the second week after onset, my mother heard the panic...

Perhaps it is discussed somewhere in the thread, but I wonder if this drug will work for people that have tinnitus and healthy audiograms that do...

“It will get better” makes me crazy. Physically or emotionally? Do you mean I’ll habituate and stop caring about it so much? Or do you mean that...

Thanks great suggestion. His came and went quickly - very positive story. Hope you’re doing well, and thanks again.

Thanks for the positive reply!

Hey Bar - I’m experiencing the exact same Morse code tinnitus. Hoping to hear that yours faded out - any update?

hey there Suzerman- wanted to see how the Morse Code situation has evolved one year later. I’m experiencing Morse code tinnitus and it’s driving...

Hi - please do not lose hope, @Yas Please go get another opinion. And if that next doctor tells you something you don’t want to hear, find...

Hi @Telis - so sorry about all this for you. You said one thing I do not agree with; you definitely do not deserve this. You’re beating yourself...

@ChrisBoyMonkey you were straight up gangster brave for the good of everyone to be part of this trial and I am totally gutted that you're...

Absolutely. I will certainly let you know and would be happy to capture information and share. I may have to travel to Ireland that week, but...

21 nights: Tinnitus Mix did not knock out my tinnitus, although over the course of this protocol I would say my hyperacusis was eliminated....

It definitely doesn’t. At least that’s what my friend told me. It does the opposite. Said my friend.

Thanks for sharing the details about this event. I live in Palo Alto, so this is just a few miles away. Maybe I’ll attend, and report back to the...

Hopefully they'll learn something new that will help advance our understanding, leading to a safe therapy.

Talk to your doctor, get a blood test for this and other key vitamin links to Tinnitus, develop a plan with them. Great to know your blood...

Everything you’re saying in this post summarizes my feelings and experience thus far. In the short time I’ve had this miserable tinnitus, I’ve...

I too had no idea how I could sleep while listening to this insane sound playing on headphones. Now I don't know how I'm going to sleep without...

@R. David Case Not to give legal or commercial advice, but I really think it is in your best interest, if you have not already, to investigate...

I would say pain, sensitivity especially to higher pitches, and it was always accompanied by ear fullness on a flareup. On a scale of 1-10, I'd...

@AfroSnowman @Lurius would you be so kind as to reminding us when you submitted your interest to Neuromod? I believe it was summer, 2019, but...

I’m super happy for you, John. I haven’t been on here long, but I’ve read enough of your odyssey to know that you’ve been through a lot to get to...

One callout on that; every one of these guinea pigs got tinnitus the same way. Us humans have a large variety of root causes for tinnitus, which...

10 nights down. My hyperacusis doesn’t exist anymore. I have been readjusting everything back up to civilian-levels of sound. So grateful for...

@linearb When you were in the Michigan study, were you testing two devices - conceivably a “real” device and a “placebo” device? Having a hard...

Re: Trobalt & Prof T's potential potassium opener / Trobalt reboot drug - I believe ATEOS used Trobalt before it went off the market in 2017 and...

@Mathew Gould I see your issue - the headphones do make it a challenge to side sleep. I would just add that I am able to position the earpiece...

You certainly could do that, however Mr. Case is quite adamant that the Koss KTX-PRO1 headphones are an elemental and requisite success factor in...

Two things: 1) I feel like you were kind of Mukbang-ing Curcumin for a while per your posts, which could actually be a really useful Mukbang +...

Sounds like the opening theme to "Roseanne"

Finished Night 6 - yesterday was a normal, medium-ringing (3/10) AM which built over the course of the day and ended at about a 6 or a 7 /10 by...

Does anyone know if people on the current Lenire waitlist will be offered spots in the soon-to-be-open German Clinic (more relevant for travel...

Update: Day 2: Only could sleep about 4.5 hours on the second night because I had to wake up at 3:30a and fly to the midwest for a meeting, then...