Recent Content by ShellyW

  1. ShellyW
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    Question about Surgery / Microvascular Decompression of Cochleovestibular Nerve

    Does anyone know please who /where performs MVD (microvascular decompression) of 8th cranial nerve in England or the US?
    Post by: ShellyW, Dec 15, 2018 in forum: Support
  2. ShellyW
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    Botox Injections Into Stapedius or Tensor Tympani Muscle? Where to Find an ENT Who Performs It?

    Thankyou
    Post by: ShellyW, Aug 26, 2018 in forum: Support
  3. ShellyW
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    Botox Injections Into Stapedius or Tensor Tympani Muscle? Where to Find an ENT Who Performs It?

    @Greg Sacramento Thank you for your concern Greg. No, not yet found anyone in Sydney who performs this for middle ear. Continuing the search.....
    Post by: ShellyW, Aug 14, 2018 in forum: Support
  4. ShellyW
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    Botox Injections Into Stapedius or Tensor Tympani Muscle? Where to Find an ENT Who Performs It?

    @Mishal how did you go asking your doctor / neurologist about Carbamazepine / Tegretol? It takes a while to gradually increase the dosage.
    Post by: ShellyW, Aug 10, 2018 in forum: Support
  5. ShellyW
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    Botox Injections Into Stapedius or Tensor Tympani Muscle? Where to Find an ENT Who Performs It?

    Hello. Does anyone have any updates please where boxtox or steroid injections are offered for middle ear myclonus in Europe? (Germany, Uk -...
    Post by: ShellyW, Aug 10, 2018 in forum: Support
  6. ShellyW
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    Middle Ear Myoclonus (Tensor Tympani)

    Hello Mishal. I hope you are going ok. I have been thinking of you. You might also look into nerve blocks. These are administered by pain...
    Post by: ShellyW, Aug 4, 2018 in forum: Introduce Yourself
  7. ShellyW
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    Middle Ear Muscle Tenotomy? Sydney or Britain. Please Share Experiences.

    Hello. I have middle ear myoclonus and live between London and Sydney. Has anyone had a tenotomy of the tensor tympani and/or stapedius...
    Thread by: ShellyW, Aug 4, 2018, 1 replies, in forum: Support
  8. ShellyW
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    Seeking Middle Ear Muscle Tenotomy Overseas?

    Hello I am in Sydney, Australia and am researching other countries that might be more open to performing tenotomy on someone with unilaterial...
    Thread by: ShellyW, Aug 4, 2018, 0 replies, in forum: Support
  9. ShellyW
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    Middle Ear Myoclonus (Tensor Tympani)

    Mishal you might also try googling Tonic Tensor Tympani Syndrome, and see if your symptoms fit.
    Post by: ShellyW, Jul 28, 2018 in forum: Introduce Yourself
  10. ShellyW
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    Sydney, Australia: Tinnitus from Neck Injury — Active Vibration Left Ear: Help Please

    Thank you
    Post by: ShellyW, Jul 26, 2018 in forum: Introduce Yourself
  11. ShellyW
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    Sound and Pain — Does Anyone Else Have Pain?

    Hello no, I have not been prescribed these.
    Post by: ShellyW, Jul 26, 2018 in forum: Support
  12. ShellyW
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    Middle Ear Myoclonus (Tensor Tympani)

    Yes, this is the most difficult time in my life. The neurologist should prescribe the medication (not saying that an ENT won't). Also see a Pain...
    Post by: ShellyW, Jul 26, 2018 in forum: Introduce Yourself
  13. ShellyW
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    Sound and Pain — Does Anyone Else Have Pain?

    Hello. I have intermittent tinnitus in my left ear of 9 month's standing, following an accident. I hear fine - then static/vibration and pain. I...
    Post by: ShellyW, Jul 24, 2018 in forum: Support