tiniturtle
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Dec 2, 2021 at 3:27 PM
Joined:
Apr 23, 2017
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364
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301

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Gender:
Male
Location:
Rochester, NY

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tiniturtle

Member, Male, from Rochester, NY

tiniturtle was last seen:
Dec 2, 2021 at 3:27 PM
    1. JS20
      JS20
      Hi tiniturtle- I really appreciate the info you’ve posted on PT and how to get help with diagnosis. I’ve connected with a neuro-interventional surgeon in NYC. Would you mind me asking if you’ve heard of him? We had a video consult to go over my MRA and I was pretty impressed. It appears I have a jugular bulb diverticulum but will have an MRV next. Thanks again.
    2. Mvginger
      Mvginger
      Hi tiniturtle, I have had a CT which showed nothing definitive. I am now looking for a specialist in the Boston area to further investigate my PT. Do you happen to know of anyone?
    3. mhess
      mhess
      My general doctor recommended a carotid scan which I did and nothing came up there. She also recommends that I see an audiologist and and ENT which I have scheduled for next week. You say that you need to go to a specialist in a city or university hospital. Can you tell me what this means? I am in the Chicago area. We have Northwestern and Rush here. Is there a specialist you have heard of in my area?
      1. tiniturtle
        tiniturtle
        @mhess Not in particular. But you can start by looking up neuro-interventional radiologists.
        Sep 12, 2020
    4. LilSass
      LilSass
      Hi @tiniturtle! I see that your t is drug induced. I believe mine is as well. How long did it take for you to experience improvements? It's been 9 mos for me and I can't say a lot has changed. I do get some quieter days. Hope you're well! :)
      Sarah
      1. tiniturtle
        tiniturtle
        @LilSass weird that I can't start a conversation with you here. I'm right across the water from you in Rochester. Are you able to see this?
        Aug 29, 2020
        Damocles likes this.
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  • About

    Gender:
    Male
    Location:
    Rochester, NY
    Tinnitus Since:
    3/19/2017
    Cause of Tinnitus:
    Paromomycin