Recent content by vttbx

Hi all, When my tinnitus worsened in 2019, it not only increased, but my right ear also began to “pulse.” It fluctuates from loud to louder, about every second. I never hear my heartbeat, though. Could this be a variation of pulsatile tinnitus? Does anyone else have this? My tinnitus is the...

NervGen Pharma’s NVG-291-R Demonstrates Significant Functional Recovery in DoD-Sponsored Preclinical Models of Traumatic Hearing Loss About NVG-291 NervGen holds exclusive worldwide rights to NVG-291, a first- and potential best-in-class neuroreparative therapeutic peptide targeting nervous...

You may want to inform Dr. Seidman that whoever is monitoring the email (tinnitustrial@wayne.edu) doesn't respond to requests for information, based on my experience.

I’ve contacted them multiple times. It’s a big commitment. You have to go every day, Monday through Friday, for six weeks. Insurance will only cover it if it’s being used to treat depression.

I received more information about the study, in case anyone is considering participating. It is best if you live in Michigan or Florida.

AdventHealth Research Institute Offers Phase II Clinical Trial of Etanercept for Treatment of Blast-Induced Tinnitus

Hi Everyone, I visited Dr. Djalilian at UCI this week and was somewhat disappointed. He didn't ask many questions; his first question was, "Do you have any questions for me?" Essentially, you must adhere to his lifestyle protocol before receiving any migraine medications. While I understand the...

I'm seeing Dr. Djalilian in March. It will be interesting to see which one of the treatments he recommends.

Yes, I tried it. I have never heard about pterostilbene being ototoxic and haven't seen any data on it. It's more expensive than TruNiagen. I think it's more or less a gimmick. It's the same as resveratrol, so you can buy it separately and stack it.

So, if all goes well, we are looking at a minimum of 5-10 years before it becomes available?

I looked at their website and the thread here on Rinri Therapeutics. Have they published any results showing the amount of hearing improvement with their treatment?

For me, the pain sets in over time. It's usually a few hours, but always less than 12 hours.

It doesn't help with noise tolerance or hyperacusis. Only with the pain. It's an aching/burning pain that's reactive to noise. It gets my pain level to zero. No other meds. I titrate up and down. 100 mg for a few days, then 200 mg, to 300 mg, then back down.

I use Gabapentin whenever my hyperacusis pain spikes. It always helps even in small dosages (max 3x 100 mg daily). It lowers my tinnitus only slightly.

Correct. I was joking. :)