cjbhab

That's Kray Kray!

@cjbhab yeah, I feel really special being tortured everyday. The guy is clueless.

Maybe there are some t sufferers who are like that... also ppl with other ailments who are like that... but speaking for myself.. if there were 2 buttons, one "heal t" and the other "have t" i would without hesitating one sec press the heal t button.. I think for 99% of t sufferers this would be so baumannnn

Please don’t. You’re Canadian right? So am I. I am 2 hrs away from Michigan and holding out for the Susan Shore device.

@MiaVIL for now i will have to keep battling. I am from Sask, but i will travel anywhere i need to go to try it. I hope it will be offered in California as that is where my family is. Praying it works.

@Utdmad89 it's because i'm bitter and angry, but that's mostly because mine is not noise-trauma but events caused by two fuckers (i will not go into). Like @cjbhab in their post, more people = more research = hopefully speedy cure. But reality is just incredibly bleak and depressing.

Sadly, research seems to never result in "speedy" cures. Years and years of it. Looks how long ago some of those research threads started, including the Shore device, which still isn't available.

It's 1 in 7. Just because you don't believe it doesn't make it untrue.

It's the long wait that sucks and not even knowing yet if it will help any one specifically. Maybe it will first be available somewhere within a year or two, but wide scale availability could drag out a lot longer.

Who? I thought only 16 people have this!?!

@Utdmad89 you of course. but it seems like you are content to have T.

I am your wish come true. Feel like I am going crazy today.

:(

I agree with this :( it is close to impossible. Some singers never get it. Concert after concert.

Dang. =(

Me and you together today. :( such BS. Watching people with no T. Looks beautiful. This condition is like no other. I feel like I could have handled anything else.

@DeanD I can't imagine having T for 44 years, it is an inspiration that you have battled for so long. You have had T longer than i've been alive.

@gameover is your friend's T from antibiotics somatic or no?

@cjbhab - loudness and pitch are everything. I used to call my old tinnitus loud. Although tbf one morning with my old tinnitus I went looking in the attic for a noise to find out my old t had worsened. Still never really bothered me.
This version is 100 times louder!.... and is reactive, which is a massive difference. Stops me doing a lot, cant watch TV or listen to music, cant mask (even on a plane).

It would be nice for it to go as mysteriously as it started.

2nd chance at life. Yup, we all want that.

Would also be nice to read more success stories like these from old timers rather than the usual 'my friend, of a friend, who's dogs aunt's nephew's cousin's T just disappeared one day!'

Oh no!

@gameover i don’t think he is phony, i just think he has mild T and can’t truly understand what some of us are actually going through. not his fault. no other doctors get it either

@gameover pretty much all he said was bullshit, he says mirtazapine is safe to take and tinnitus from it is a withdrawal symptom and goes away in 15 days. what a crock of shit. EVERYTHING HE SAID WAS A LIE.

@BB23 can you blame him? none of his colleagues know anything either. They literally don’t know any better. T is not a thing. it is not something doctors are going to know about.

@RunningMan the auditory input does not interfere with anything. it is so quiet that you only really notice it in a silent room. it helps turn my T right down though.

@RunningMan during sleep i do not wear them. i sleep with tv playing and rain noise.

Thank you for that information.

I have to have sound therapy all day and all night, don’t think I could survive without it. I have open ear earbuds I used for a while. It hust always sounded like my T was louder afterwards so I have just been using my phone and my sound machines for sound therapy. I had ordered maskers from treble health to start with and tried them out and they really did help.

It was a 45 day trial so I sent them back.

@SarahMLFlemmer like an intervention? sounds awful. :( if only it were as simple as just saying okay i’ll get back to normal now.

@4Grace this is bang on. if i’m not super cognizant of what i am doing, T will be a disaster fast. But if im also always worried about T that’s terrible and unenjoyable too.

@cjbhab yeah, I guess you could call it an intervention. I think it was good for me though. I need a push in the right direction, even if it's hard. My kids need me.

@Juliane you gotta play the game sometimes.. if you want to continue to be seen as favorable by management/colleagues. it is unfortunate but true - events like this matter.

@Cjhab oh, got cha. I would still go to those things, but maybe I'm a little less afraid cause my T was medication induced?? Not sure.

@cjbhab Of course they do. I guess it all depends on how handicapped one is by T. For me, such events are not even an option

@Utdmad89 I have battled with hyperacusis and reactive T. I actually believe following the protocols of TRT helped somewhat relieve my hyperacusis. Every one's experience is different though, T is such an unpredictable animal.

@cjbhab How much are you using the sound therapy per day? Are you able to talk to people and watch TV with those providing their auditory input? Or always turning them off?

Did it effect your tinnitus I tried trt for 15 today and my tinnitus is so loud now . Did that happen to you too?

@crescentsky if everyone had T, there would be a cure by Friday.

No it wouldn't. I wouldn't wish this on anyone!

@Utdmad89 the way I view it is if everyone else got T, we'd either have a cure fast or i'd be on even footing with everyone else now. Tough luck for them I guess, to have to live like me. I'm told it's no big deal anyway.

It sure is. I might be a special case but I don't consider any of these things a loss anymore. I would never enjoy things like that ever again. And if people can't accept that, I guess they are not my friends.

@4Grace Half of my family are practically deaf. They just yell back and forth at each other.

@kingsfan we all have so much in common. I hear people protecting. Even if I try it’s not possible.

Because it is

only for us because we are terrified of making T worse. the general public can’t even hear something that is 69 decibels. lol

I think we need to be okay in 69 decibel settings. Everything in life has risk. This has to be a small risk. I still want to know how anyone puts on ear plugs. With my T level it’s impossible. How loud is my T compared to others I wonder.

@BB23 okay so what is the solution to clear this up. i don’t believe there is no solution. im tired of hearing that lol

@cjbhab apparently time and magnesium. If I can figure out a solution myself, I'll let you know, F this condition.

@BB23 where did you stumble upon this information about lactic acid build up? just curious.

At least something is happening. I’m very skeptical it is going to work but have hopes.

Is this covered by any news media?

@Juliane not that I know of. I don’t think anybody cares about tinnitus. It’s just a tiny nuisance anyone can get used to overnight.

Everyday non T struggles also become made 100x harder if you have T though

Same. Even with cancer there is a chance of getting better.

Suffering is relative