Tinnitus Talk Support Forum

@tomytl, Tinnitus sufferers I've been following and trusting for a long time also warn others against these frauds. A similar market has developed in my country as well. They prey on people on the brink of suicide, viewing them only as a source of money.

These scammers victimize people with ridiculous so-called treatments that have no evidence to back them up. It's important to stay cautious.

Yes, that's true—there are many ineffective therapy options for tinnitus. However, I didn't mean to suggest that craniosacral therapy or massages can cure tinnitus or any other inner ear conditions. I was simply saying that such wellness treatments can improve overall well-being and, as a result, help alleviate some of the suffering.

I can only speak to what has helped me so far, or what I have tried. It's hard to know for sure, since nothing is proven, whether something like magnesium actually made a difference or if it was simply the passage of time that led to improvement.

I often listened to very soft music and tried to follow certain instruments. Or I used pink noise just below the volume of my tinnitus, at a level that was comfortable and not too loud. I take magnesium and curcumin every day, and I've recently started taking zinc and Betaserc as well. I used to do this in the past, and I hope it works again this time.

In the past, I also tried HBO therapy and even ordered one of those ridiculous low-level lasers. Basically, I just wasted money. Nowadays, I focus mainly on endurance sports, as if to show the devil in my head who's boss.

@tomytl, Since this incident, I've been experiencing balance issues, and whenever I'm exposed to noise (on the street, in a store, etc.), I feel drunk. Despite this, I haven't been prescribed any medication, supplements, or treatment. I'm still waiting for a neurotology appointment, and my turn hasn't come yet. Honestly, I'm skeptical about how much help it will provide.

@tomytl, I was referred here by the ENT specialist at the NHS because, "as it appears," there's no significant problem with my ears. Meanwhile, the time is running out for the surgery I previously mentioned. I can't help but feel that I shouldn't have to deal with all these issues at my age.

@tomytl, Yes, I know there are always people worse off than me, but I was someone who never harmed anyone, quietly got by, donated to those in need, and was loved and respected by people. I was happy with my life, content. I knew how to find joy and peace in small things.

@tomytl,
Then one morning, I woke up, and my life turned into hell. The fact that this is happening at my age only makes it harder to bear.

What you mustn't forget is that you're still respected and loved. The limitations can make you feel isolated or inferior, which is understandable when comfort feels impossible. Today, I sat at a café where many were happy to see me. It took effort to hide my struggle because there's no point in confronting them with it—they can't fully grasp what it means.

It's good you have an appointment, especially to check the dizziness—it's important to know why that's happening. Last night, I finally managed to sleep through without meds, and I felt a bit better this morning, but by evening, the symptoms worsen again... it's really frustrating. But I'll still do my endurance training today, I'll keep at it until I start feeling somewhat better.

Have you seen any improvement recently? This is a severe strain on your psyche, and if that could be reduced, there might be room for other things. I'm calmer now, but still depressed, knowing how exhausting and time-consuming this is. The hearing loss drives me mad as a perfectionist—it's a nightmare, especially with my knowledge of frequencies and inner ear research.

@tomytl, I wouldn't call it improvement, but rather giving up. Since I've lost all my enthusiasm, peace, and happiness in life, I now see myself as someone serving a sentence, like a guilty person. I know that the hearing problems, inner ear issues, tinnitus, and hyperacusis I'm experiencing are permanent, and there's nothing I can do about it.

Unfortunately, there are no medications that would causally help us; that's the bitter truth. But there is habituation and also plasticity in the brain. Don't get me wrong, I'm in the same boat, I'm just frustrated and fed up with everything.

I'm not giving up yet. How I regret ever attending that event, it's unbelievable...

Right now, there's a live band playing in the city, and even though I'm about 2 kilometers away, I still find it loud. The thought of all the people there without ear protection, enduring this noise, is making my tinnitus worse.

@tomytl, Unfortunately, life goes on :D Even if I endure this pain, even if I'm writhing on the ground, not a second stops. Somehow, I want to live without being dependent on anyone, yet at the same time, I just want to disappear.

Yes, as you mentioned, I've seen countless festivals in London, and none of the people attending them wore earplugs. Similarly, I have friends who go to clubs and concerts every week. They don't even know what earplugs are, and they have no problems.

I don't want anyone else to experience this, but I still don't understand why we have to go through it. It doesn't make any sense. Why would ears ring for hearing loss man wtf honestly. I understand the loss but why would it ring?