Tinnitus Talk Support Forum

ok, I thought maybe an organisatuon could advise you a good specialist or some other help.

I really hope we won't lose our mind. But up and downs are also a reality with serioude ear issues, it takes so much time and energy, nobody can imagine….

@tomytl, My feelings never deceive me, never. Trust me dude, you're gonna be fine. Remember that.

Hey bro, thanks for this, it means a lot for me.
But I also want you to encourage, let's get well soon together, we don't deserve this.

@tomytl, I didn't say this just for the sake of it. My instincts truly never fail me. I had told another friend with tinnitus that he was gonna be almost as good as before. The last time we spoke, about a month ago, he said he was doing really well, but my instincts tell me that I'll be suffering with this for much longer :D

It always takes time with the ears when you're truly hit by it. And that time is what drains so much energy, as you suddenly perceive everything differently, as if you were a different being. I really hope we both find our way out of this and regain joy in life. I believe it's possible, but sometimes we just lack the energy. However, from the past, I know it really is possible.

@tomytl, mine is so severe man. I swear it is.

I believe you and I take you very seriously.
What helped me in the past with T was masking with pink noise. Is that possible with you? However, the noise should be just a little quieter than the T.

I know you have a very loud T, and I don't know if it works for you. I've already experienced that while listening to the noise on the computer, I perceived neither the noise nor the T.

But when I took off the headphones, the T naturally came back immediately, disturbing me again.
So that's how it is now, eventually, it all faded into the background.
This T is really strange.

I find the following current tinnitus model quite interesting.
https://pubmed.ncbi.nlm.nih.gov/37715002/

I didn't knew about the importance of noise in our hesring.

@tomytl, Not pink noise, but ACRN provides partial relief, although only partially. However, since I don't have the opportunity to listen to this sound throughout the day, and even if I did, being constantly exposed to it is extremely uncomfortable, I spend most of my day suffering with this severe T. I don't use headphones. I stopped using them completely becuz it started after using high-volume headphones.

I find ACRN also not comfortable to hear over longer time.
Pink noise does provide all frequencies. Today I also had some visual flashes of all this psychic stress, it's like you can't see some parts of your view, very crazy too.

Sorry if my advices might be not really helpful but I want to try support you in this dark time, I really can feel with you.
Maybe you can get some help by a hearing aid acoustician, maybe they can excactly measure your T in loudness and give you a professional noiser to calm down the perception of T. Then you might also know how loud in dB your T is.

@tomytl, Thank you for wanting to help. If nothing helpful comes from the appointments I'm going to, which I doubt will happen anyway, maybe over time I can try different things. But with this illness, 2+2=4; unfortunately, no one has a miraculous cure or anything like that. Other than masking the sound, we don't have many options.

my Tinnitus increased in it's volume tonight and the whole ear feels like stuffed and stiff, maybe because I took a hot bath? So sttange, or maybe because hearing will retune things…

I hope you get help from the appointment, hopefully something to try. Assistance can have a positiv impact instead of always loop around thougts about T.
I also have to check out my next steps.

@tomytl, what are you planning on doing?

at the moment, darkest black depression keeps me caught, just sitting in front of the PC with tears in my eyes and no future visions left, I feel completly inconplete with this destroyed sense.