Tinnitus Talk Support Forum

2049v
@tomytl, There may be very few things in the world worse than this vicious cycle. It's truly a terrible thing. When did this last incident happen?
tomytl
about 10 weeks ago, 6.Juli where I made this fatal desicion. Hearing sounds bit better, Tinnitus is louder and Hyperacusis is sometimes back. Increased T could also be from tapering off some Benzos
tomytl
Did something turn to the better with your condition?
How about your hearing loss?
2049v
@tomytl, So far, I have not noticed anything helpful. Apart from ACRN, nothing provides relief either. My hearing loss is of the type similar to cochlear synaptopathy. The clarity of sounds is reduced, and I can't perceive sounds as I used to. I still feel the same, I don't notice any change.
tomytl
Do you also feel pressure in the ear? This clarity of sound an pressure goes along with my hearing.
Or maybe your hyperacusis is also make sound less clear, I remember, I had left a lot of distortion effect after my first incidence. Now it's also a little back. I really hope you can make some advances very soon...
2049v
@tomytl, If this terrible tinnitus were at least at a bearable level, maybe I could tolerate all the other ear problems. But the tinnitus, hyperacusis, sound distortion, imbalance, mental fog, and symptoms like depersonalization/derealization have made my life worse than death.
2049v
@tomytl, I feel pressure and pain every single morning.
tomytl
I do believe that if the level of tinnitus decreases, overall hearing will regain more weight and substance.
tomytl
I experienced this condition in 2014, where the tinnitus and pressure made hearing seem so unclear, even at night I could barely hear my breathing or bodily sounds. It lasted from February until September before it started to improve.
tomytl
Today I even had to vomit; this is all dragging me down so much... at this point, I can't relax at all.
2049v
@tomytl, What caused you to vomit? Was it due to ear problems? Have you tried ACRN for tinnitus? Benzos taken to get through the day can provide temporary relief. I also sometimes, or actually most of the time, can't understand certain sounds and people because of the tinnitus.
2049v
But the reduction in tinnitus is a complete mystery, and for me, there's no reduction at all — it's always loud. Similarly, I now hear my breathing much more faintly compared to before. Isn't Xanax helping?
tomytl
I guess depression caused me to vomit. Today I was completly down due to sleep deprivation.
tomytl
I find Xanax not as good than Temesta, unfortunately Temesta isn't available at the moment in my country.
Xanax feels more like on/off, Temesta has a more dampening relaxing effect.
I try to sleep without at the moment, but its not really possible .
2049v
@tomytl, man i feel really bad for you. Are you able to handle your work with these issues. It should be really really hard. Is loudness of the sound that doesn't let you sleep?
tomytl
Hope you can find some sleep. I can't…
2049v
@tomytl, it's not like I literally can't sleep at all. In the begining it was but even though I am "able" to sleep, it's still way to hard to fall asleep, it feels like a hard duty that I need to overcome every single day of my life.
tomytl
Simply put, but I know it's not easy. It's become a habit by now, but I know it's still a struggle. For me, it was the opposite. I used to sleep much better at first, but now I'm developing a fear of going to bed. When I finally lay down, the tinnitus takes over because it's all I hear, no normal background sounds like a heartbeat or my own breathing, which makes everything really uncomfortable.
tomytl
Today I had new experiences again. I had a very exhausting client meeting and was close to canceling, but I went anyway. Then I had lunch at a restaurant... I'm very aware of how everything sounds, and it takes a lot of energy. But afterward, I was glad I did it. The ear needs to adjust to these situations again. I believe the ear, brain, or nerves need time to recalibrate the hearing filters
tomytl
I believe each of these exhausting experiences helps build a more tolerable sense of hearing. I went through the same in 2014, and in 2024, before the terrible event, I thought I'd never heard this well since 2003... In short, hearing and perception are mysterious processes. Maybe it's called central noise suppression in relation to hyperacusis. Anyway, the pressure is still there, which is incredibly annoying