mandyc

mandyc

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  • mandyc
    Restless legs has decided to join in now. Took a zopiclone 2 nights ago as tinnitus was raging. It didn't help much and gave me 1 hour sleep. Last night I got 2 hours broken sleep and restless legs not helping. but tinnitus was mild during the day as long as Im not around any noise other than natural sounds. Panicking again that this is how it will be forever. Trying to remember that I've had it disappear for a few hours on two occassions last week. So if it can disappear then then perhaps it can again. I don't think pills will help as I just get too anxious about side effects.
    mandyc
    spikes spikes spikes. They just don't seem to stop coming. At what point does a spike just become the new normal I wonder? And why did tinnitus magically switch off 3 nights ago. It was so blissful that I didn't sleep much. I just lay there enjoying proper peace and quiet, too scared to move in case the tinnitus started up again. Then I did sleep for the usual 3 hours and when I woke up it was still away and I just enjoyed lying there too for an hour or so but then it eventually started up again. The following night it disappeared too but it did it whilst I was asleep. I wonder if tinnitus always disappears when we sleep and that's how sleep helps as it gives out brains a rest from the ringing for a bit.
    S
    Sleep is intrinsically tied to tinnitus, but I do know that when mine first started it was so loud I was hearing it in my dreams as car alarms etc. so I wouldn't like to say it totally turns off.
    In a way I envy your tinnitus turning off, in an other, it sounds like a torturer unlocking the door and pretending to let you go before starting up again.
    I would take it as a positive sign though, that does mean after all this time your brain is still capable of filtering it out.
    mandyc
    yes that's what it feels like. It makes the tinnitus returning seem worse because I've experienced quiet moments before it. It does mean my brain can filter it out I guess so why doesn't it do it all the time then.
    mandyc
    thanks for asking. No I haven't. I'm having a really bad day today. I washed my hair for the first time in 2 weeks and I've caused a major spike. I was on antibiotics last week and I took a sleeping tablet every day with the 7 day course. Last night was my first night off antibiotics and sleeping pills and I only slept for about an hour. Think I'm hooked on the sleeping tablets even though I only get about 4 hours sleep with them, its still better than the usual none or one hour.

    I'm demented with this. I fight suicidal thoughts every day. I'm seeing a private audiologist who specialises in hyperacusis but that too is really extreme. I just don't have the energy to kill myself but this is so difficult to live with. Are you better? How do you cope with this?
    henkess
    I´m sorry to hear that, seems very hard to deal with. I recognize the feeling, for the first year i was struggling alot. I hade pulsating tinnitus and hyperacusis, hard to sleep. Tried strong sleeping pills, but i got hallucinations so i had to quit. Now i have propavan. My pulsating tinnitus dissapered after i got my blood pressure better. Still have tinnitus. My sleep and hyperacusis was better after one year. Was doing alot of things outside and started training and took pre workout,b5,b12. Now i have tensor tympani after my gerd operation, its impossible to get uses to. But with pottasium, magnesium, muscle relaxant, its dissapers after around 5 hours.

    I think you can get better to, hope you get better soon:)
    delta784
    how old are you
    mandyc
    Im 53. My scalp actually feels like it is on fire. Im really scared that this wont stop. I had a migraine a few days ago too. Not sure if taking an antihistamine known to help with sleep has made things worse
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