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  • Users: Luisa
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  1. Luisa

    Major Rumbling... Most Invasive... I Need Your Help.

    Hi all, Ive written before, but still need to share whats going on, as I HAVE to find out if there are others experiencing some of this...Ive spent weeks with a Neuro-surgeon and had Cerebral Angiogram....as they felt I had an Arterio-venous Fistula in my head making this noise that could...
  2. Luisa

    I Need Someone's Kind Help

    Hi everyone, I am having a difficult time understanding how this site works and connecting with someone. Because I had regular T for many years, this past whole year, where major new sounds and hummings were set off led me to Neuro radiologists who did a big cerebral angioram saying I had a...
  3. Luisa

    7 Straight Months of High-Level "Squealing"

    Having had T for so long, and knowing its ups and downs, I was never prepared for what began last October. Suddenly it became a level so loud there's no getting away from it. There seems to be no accustoming myself to it and it doesn't ever change. I visited a very famous doctor at NYU Langone...
  4. Luisa

    I Am Reaching Out to My Fellow Friends Here

    My Tinnitus journey is only growing in most disturbing way, and thought to ask you all out there if anyone (since major neurologists dont know) if you've experienced anything to this level. My right ear has the very loud tinnitus and pulsatile has developed as well. I have forced myself after...
  5. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    It seems so many here have ups and downs and go thru good times with their T. Mine has for a solid many months kept me holed up inside my house. Its so loud, squealing and intrusive, it brings on nausea and now that the MRI has shown no brain tumors, the ENT doctors are cutting me loose...