Separate names with a comma.
And then there’s things like this. I feel like I can’t win either way.
I spoke with an audiologist today and found out I can get a pair of Widex Zen maskers covered completely through my insurance. I have no idea what...
Worried the timeframe here is going to push me into the arms of Lenire.
Yes, top center of head
I just re-read the Q&A with Dr. Shore. I took a second detailed read to realize how little information we got on the distribution progress and...
I just can’t get out of fight or flight. Can’t believe this is happening again.
Yeah, I don’t understand the cloak and dagger behavior around the FDA stuff and the Auricle internal process for product launch. I know little...
Is there a legitimate concern this device never leaves the lab shelf? It’s come this far. I can’t imagine my disappointment if this dies before...
Not sure if you’re still around, but did you ever take the Buspar? I’m considering it myself.
Thank you for breaking this down. I assume the Auricle team would at least carry some of these processes forward while the FDA does their thing? I...
Taking a break from the site. Focusing too much on the negative. Can’t go much lower. Two hours crying in the shower did me in.
I’ll add this too. I took actuate for three months back in the mid 90’s. It didn’t give me tinnitus, but I absolutely wasn’t warned it could have....
@SarahMLFlemmer Don’t underestimate habituation. I wasn’t cured, but it was darn close. Was living a totally normal life outside avoiding loud...
@SarahMLFlemmer I did. Took 18 months to see progress. At 3 years it was really good. Lasted for two years and lost it. Now back where I started...
We have different causes, but my first habituation improvement wasn’t remotely notable until 18 months. Took 3 years to perfect. It’s gone for...
@Daniel Lion Thank you sir. I hope you’re hanging in there and doing well. You’ve offered me helpful words before and I continue to think of you...
I have a ritualistic pre-bed routine that helps calm things down.
@Juliane Yes, most nights I’m able to sleep good enough. A few times a week I’ll wake up at 3ish am and struggle to go back to sleep, but overall...
@Mo8409 This is my concern. Worsening more due to buspar and it not going away when I stop. Driving me nuts. Scared, but getting desperate.
Insanely loud, unmaskable, I’m in trouble here. Scared of what I’m capable of. Simply not compatible with life. I’m not going to make it.
I get this thought frequently in my therapy group. I’m the only one with tinnitus. I’d trade psych problems with most of them.
This is exactly my story. I got COVID-19 for the first time in early August. Then 11 days after positive test I had my excellent habituation...
There’s tons of conditions/diseases that never get cured. Money and attention would help. Just not a sexy enough condition even though a...
They’ll figure something out once it’s too late for me. I figure I’ve got about 40 natural years left(if I make it that long). Would like a decade...
I donated to Hough too. Since then, the letters they send me asking for more have cost them more in postage than I donated in the first place.
@Tryn2BHopeful Yeah, I’ve had this reactivity before and had it completely disappear. Took forever(years). Couldn’t even watch tv. Was completely...
Any attempt to mask met with louder tinnitus. WTF, why does this happen? Why would it get louder than the masking source? I’m fading fast
@Kabitz Very little has changed for me in the last 5 weeks. Spike still blaring and mood still declining. Close to breaking down and starting meds...
@BrOKeN_1 previous habituation for me was only noticing it a few times a day and not caring. Accompanied by perceived >50% volume reduction. Don’t...
@BrOKeN_1 I’ve had an anti anxiety med(buspar) on hand for over a month. Terrified to take it. It might be time to give it a try. I can’t continue...
@BrOKeN_1 was your second habituation as good as the first? My first was very high level. Afraid I won’t get back to something comparable.
21 hours of therapy a week,all I think about is dying. I habituated very well before. Not sure why it feels impossible to do it again.
@kingsfan I’m assuming the AD caused spikes subsided once you stopped the meds? That’s my biggest fear. A med spike that doesn’t subside.
4 week spike. It's shaken me to core. Didn't need them before, but probably resorting to drugs. Almost ashamed to admit. Probably Buspar
I was offered Lamotrigine under the explanation it was for my anxiety. There was no mention or talk of any effect on tinnitus. Has anybody...
Would like update on this if possible.
I just want to get back to where I was. Not cured, but darn close. Thoughts of spending years to get back there are breaking me. If it’s even...
Wife and kids only thing keeping me from suicide.Wondering how long that’s going to last. I’m done. I had this all figured out once, gone.
From level 4 natural habituation(lost overnight) to nearly 4 week spike post COVID, meds being tossed at me by everyone, drowning in sorrow
Yeah, I got COVID-19 for the first time in early August 2023. I'm a nurse so it's amazing it took that long. Eleven days after the positive test...
I just want to get back to where I was. Not perfect, but it was good enough.
It’s only been about 10 days. Have been experiencing lots of anxiety and stress around other aspects of life. May be contributing as well. Tons of...
I haven’t had a setback like this since I first got tinnitus. I don’t know what to do.
I need help. This post COVID spike has driven me to the edge. From habituation to this overnight. I’m so lost and just want to end things.
Somebody in biomedical engineering/business, help me out here. What’s the advantage of having a policy regarding not reporting when something is...
Lost 5 years of progress to habituation due to COVID. I don’t know if I can go through this again. Life was back on track. Gone
Finally got COVID for the first time. Tinnitus is currently worse. Not sure if it’s the COVID or me worrying about it. Scared.
Sometime in late 2019 or early 2020 I donated a modest amount to Hough Ear Institute and several other research organizations (Thanos...
https://news.ohsu.edu/2017/08/22/study-suggests-serotonin-may-worsen-tinnitus
After years and years of healthy living and the lowest body weight I ever had as an adult (152 lbs), I went on Atorvastatin. It was prescribed by...
I continued to work for maybe 6 weeks. Had a breakdown at work and took 4 months off. Returned, but wanted to find quieter workplace. Left dream...
I’m glad the Accutane conversation came up here. I took a single round back in fall of 1995. Only side effect I remember is an extremely dry face...
I’m well over four years now. I hit rock bottom four months in. It took nearly three to get to better place. It’s not perfect and I have parts of...
Yes, it will. It took me years to get there, but absolutely makes a positive difference. There are times I don’t think my volume is actually...
I’m at four years and three months. I’m barely tolerating it and still plead everyday too.
First time I’ve needed antibiotics since tinnitus started. Probably over worried, but fingers crossed.
Not really. I know Dr. Burchiel well, but have not worked in the OR for three years now. I changed nursing jobs within OHSU to work in a quieter...
OHSU second in the country to perform regenerative brain cell therapy procedure I work at the hospital this procedure will be performed at. I...
Thanks for the update. I was wondering if you have managed to stay tinnitus free since stating it was gone after the trial. Now we know. Not sure...
Interesting, I only live a few hours from Seattle. I’m not convinced this treatment works though.
