S

spedgas

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  • S
    Insanely loud, unmaskable, I'm in trouble here. Scared of what I'm capable of. Simply not compatible with life. I'm not going to make it.
    Tryn2BHopeful
    Can't mask either, I find nature sounds help. I use the Resound app on my phone. I like the underwater sounds
    S
    Any attempt to mask met with louder tinnitus. WTF, why does this happen? Why would it get louder than the masking source? I'm fading fast
    View previous comments…
    Tryn2BHopeful
    @spedgas I know I have far less experience than most. I can say that while the reactivity hasn't gone away it has improved very slowly, that or I can deal with it better.
    S
    @Tryn2BHopeful Yeah, I've had this reactivity before and had it completely disappear. Took forever(years). Couldn't even watch tv. Was completely habituated and now back to this again. Worried it won't improve again. I appreciate the support and reminder it can improve.
    SharonBell
    AnthonyMcDonald I don't think I could make it if I didn't mask so I'm not sure that I will habituate. My whole head buzzes electricity and sometimes sizzles so I'm not sure how I could put it in the back or however it is when you habituate.
    S
    21 hours of therapy a week,all I think about is dying. I habituated very well before. Not sure why it feels impossible to do it again.
    View previous comments…
    S
    I have a ritualistic pre-bed routine that helps calm things down.
    Juliane
    @spedgas I am relieved to hear you are getting some sleep. That is so important
    SharonBell
    I use to not sleep good before and then I got in a routine with a certain bedtime, but when my daughter was out of school I was staying up late watching movies which I couldn't ever do before and now I've got to get back use to going to bed at a decent time so I can get up and take my daughter to school.
    S
    4 week spike. It's shaken me to core. Didn't need them before, but probably resorting to drugs. Almost ashamed to admit. Probably Buspar
    View previous comments…
    kingsfan
    @spedgas Yes always subsides. I'm very careful to very slowly taper up and taper down.

    @BrOKeN_1 I haven't tried that one yet. My psychiatrist recommended it, so it should be easy for me to get access.
    Mo8409
    Busphar caused my T in the first place!
    S
    @Mo8409 This is my concern. Worsening more due to buspar and it not going away when I stop. Driving me nuts. Scared, but getting desperate.
    D
    So sorry friend, hang tight and see if the spike disapates. Maybe take a sedative for temporaryv relief,. Prsyng for you
    S
    @Daniel Lion Thank you sir. I hope you're hanging in there and doing well. You've offered me helpful words before and I continue to think of you from time to time.
    S
    Wife and kids only thing keeping me from suicide.Wondering how long that's going to last. I'm done. I had this all figured out once, gone.
    BrOKeN_1
    Sry to hear your at a low point agian. I hope you get back on top soon. It certainly can be hard to manage. Family Def keeps me going as well.
    S
    I just want to get back to where I was. Not cured, but darn close. Thoughts of spending years to get back there are breaking me. If it's even possible.
    SarahMLFlemmer
    Hang in there. I'm so sorry.
    S
    From level 4 natural habituation(lost overnight) to nearly 4 week spike post COVID, meds being tossed at me by everyone, drowning in sorrow
    Utdmad89
    How did you get T to start with?
    SarahMLFlemmer
    Dang.
    SharonBell
    Sledges Im so sorry. I had Covid in 2021 and 2022 and had tinnitus both times just ringing in ears at night and it went away. I think that's how I got mine and I had a very bad virus in January 2023 also. So I think all that affected my hearing and got Tinnitus again just debilitating this time, I havnt been able to work since August and I'm so scared of getting Covid because of it making my tinnitus worse.
    S
    I haven't had a setback like this since I first got tinnitus. I don't know what to do.
    View previous comments…
    gameover
    I've not researched it heavily, but seems Covid induced T tends to go away, so hopefully some applies to spikes. Seems you made a tremendous progress previously, there is hope...
    S
    It's only been about 10 days. Have been experiencing lots of anxiety and stress around other aspects of life. May be contributing as well. Tons of anxiety just from getting Covid as well. Spike didn't start until 10 days after positive test.
    S
    I just want to get back to where I was. Not perfect, but it was good enough.
    S
    I need help. This post COVID spike has driven me to the edge. From habituation to this overnight. I'm so lost and just want to end things.
    SarahMLFlemmer
    Hang in there. One day, one moment, one second at a time.
    S
    Lost 5 years of progress to habituation due to COVID. I don't know if I can go through this again. Life was back on track. Gone
    SharonBell
    What caused your tinnitus to start with was it Covid?
    S
    Finally got COVID for the first time. Tinnitus is currently worse. Not sure if it's the COVID or me worrying about it. Scared.
    S
    Sitting in dentist parking lot. Going in for some overdue work. Terrified since T started 6 days after last time I had work done.
    S
    Didn't hear my tinnitus even once today. I'm sure it's still there, but I'm not going to look for it.
    PortugalTheMan
    it's great that it stays that way. very well
    B
    • B

      buttercake

    Small victories are victories!
    Mister Muso
    That would be a huge victory for me. Gives us all hope!
    Drachen
    Hey there. Thanks for the follow! I haven't seen many recent posts from you, but your last two profile updates are fairly positive. Hope things have become only better since then!
    S
    Tinnitus went from center of head to just right ear. Trying to stay calm about this. Seems to be staying this way.
    S
    Two years this week. I've got undeniable signs of improvement/habituation. Bad days mixed in there, but increasing optimism for the future.
    Paul Hrvat
    Spedgas-
    I'm normally an off-line person, so having trouble navigating this site. Yes Dr. Marsha Johnson was the 1st audiologist I saw. Very good doctor, but not paid by my employer. Now seeing Dr. Maralyn Dennise Martindale Address 9735 Sw Shady Ln Ste 302, ,Tigard Oregon, 97223-5481
    Phone Number 503-227-3668
    Fax Number 503-227-223
    S
    Best tinnitus day in 18 months. Hours when I couldn't hear it, even when looking. Hoping this trend continues.
    aot
    Congrats!
    Bill Bauer
    Can you hear it in a quiet room (or when you wear earplugs in a quiet room)?
    A
    That's what I call a result! Good luck on continued progress.
    S
    Becoming convinced the medical/scientific community will never have an answer for this.
    TheDanishGirl
    Never is such a strong word, but sadly I feel deep within that we are a long way from an answer. The brain is super complex and still a mystery in many areas.
    D
    A decent week, be great full, your trend is moving in the right direction.
    You can fight this, and you will succeed. You can do this...hugs
    S
    Woke up today to horrible increase after a somewhat decent week. Absolutely no reason for it. I can't fight this much longer.
    InfiniteLoop
    Live for the good days to come.... Bad days are one of the ugly sides of this condition
    Bill Bauer
    What matters is the monthly trend and the global lows. Setbacks are irrelevant as far as your long term outlook is concerned.
    S
    One year today. Things have improved slightly. I question everyday how long I can do this. Faking happiness as much as I can for my family.
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