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4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't get away from the noise or pain!
Stupid. Freaking. Migraines. I'm glad that I had that two day break from the constant battery, but I think I'd give my leg to have it again
It's amazing isn't it? It's like your whole soul dissolves into the melody. At least I felt that way when I played my first song in 6 months. Mine...
I thought once I got used to it my Alice in Wonderland Syndrome would be cool, but it just scares me every time. Minor episode every day now
I’m completely okay with the pain coming back right now. For the past 2 days I’ve felt like a real person again, I’m living. Hallelujah
My migraines technically haven’t stopped the whole time I’ve been pain free, but the H is coming back as the M intensifies.
Doc said noise exposure won’t make H worse in the long run, but too much can trigger a migraine. So yeah I’m totally risking triggering another...
Look down at my other comment to see the meds.
So the med I'm taking is gabapentin (a nerve pain medication and migraine blocker). I've been told this is ototoxic as of yesterday so keep that...
Yes I know, it's amazing! Turning on my favorite song and just hearing it again put me in tears. I feel like the weight of the world came off of...
Thanks LindaS! If you guys already know, I don't have hearing loss H, I have migraine H. None of the many drugs I've tried have touched it and...
MY MEDICATION IS WORKING! MY PAIN IS REDUCED TO THE LEVEL IT WAS 6 MOTHS AGO! I'M LISTENING TO MUSIC!!!!! PRAISE GOD HALLELUJAH!
Oh then you will love them, they should be discrete (if you don't get florescent pink like I did) so walking the streets with them will be great....
Thanks aot, means a lot from you!
Y'all I think I'm seeing improvement! But is it too pessimistic to say it's not enough to really make a difference? I'll take it any day tho
I feel you there, sometimes it feels like if you could only get a break for one day you'd recover enough to handle it again. I hope you get a...
Haha I'm flattered, but thank you I'm good. Though you'll totally have me blushing for a good while :LOL::oops:
"The Lord did strengthen them that they could bear up their burdens with ease, and they did submit cheerfully to all the will of the Lord"
Hell yes! Live your life, don't let anyone tell you it's a bad idea! I mean it totally is and all, but it's wonderful :p Good luck!
Yes! Those things are the absolute best! I got the 25 dB filter even though they tried to talk me out of it, said I wouldn't be able to hear...
Just a thought for you @jordan chis, Do you feel maybe that one of the reasons you are struggling so hard with coping these past two weeks is...
So sorry Linda, I never saw that post of yours, it got lost in my other notifications! Well I'm sure you've already figured it out for yourself,...
God be with you hon! It's comforting to know He already went through all this, knew us personally, and still saw fit to give us our trials. He...
Brenda I am seriously curious if your T has anything to do with migraines. You've made so many comments that make me think that. I can elaborate...
Oh I wish I could send you more help than words, I'd trade places with you emotionally if I could, give you my happiness. Have you read any of my...
I should be much more depressed than I am. What a miracle that I am so happy even though I'm struggling so much. Praise God
Hi @Kain, I got the nitrous oxide for my H pain when I went to the dentist. DON'T! Tubes of rushing air sit on your ears, I had muffs too
K I tried the apps, on iPhone I had Rogervoice and myCall-to-Text available. Both freaking sucked and we’re obviously made by the same people,...
Hi Emgee, there is no shame at all that you have only had tinnitus for 3 months. My H only became debilitating 6 months ago and it feels like...
Tara I know how you're feeling right now. I wish saying that could make it feel better, take some of the hurt away. I really think, if you are...
I've made peace with H. Of course I'm still fighting tooth and nail to heal from the migraines causing it, but I'm starting to learn to live
Wow, I've been reading the research articles about it, seems pretty legit. Thanks LilSass! Hope you're well
FrontRoomFanaic how you been? Haven't seen you in posts in a while, hope you're doing okay
Daaaaaaaang girl! Absolutely gorgeous! But I understand, I miss eyeliner, I just cry from pain too many times a day to be bother to deal with it...
My hell, fire them they sound awful. I had an ENT that was in the same category of "useless doctor" and he ended up making me a lot worse so I...
Hi hon, sounds like we're in the same boat so I'll tell you just how I've learned not to rock it too hard. Yes you need to be exposing yourself...
I'll tell you how I live and hopefully some part will speak to you. First, I have to believe that life is beautiful, that it's worth it. I...
Not at all hon, this isn't a pissing post competition as to who has it the worst. Right now I feel guilty acting like my life is falling apart...
I understand, traveling is really hard for me too because of how much pain the noise of driving puts me in. However, my favorite place in the...
I recently heard these apps, I haven't tried one yet, that were developed for hard of hearing people. They transcribe phone calls in real time and...
Y'all listen to the ridiculous thing I tried a few months ago when I was trying to figure out how to shower. I can't shower anymore because it's...
K so excuse the underaged Christian over here who has never touched alcohol in her life, but I'm to the point of trying to get a medical...
[ATTACH] Oh I miss wearing those earrings! Can't wear anything bigger than a stud with ear muffs, maybe developing hyperacusis was the universe...
I can't find a comment button for "too hot to handle" but I seriously need one right now!!!
Hope you're all good up in canada ;x
They already filled out my botox papers because I started crying in the middle of my appointment (I had to drive 30 minutes and driving hurts my...
Oh tell me about it ;D I went in for an emergency appointment today and they told me no matter what pretty much in one week I can call and tell...
My cousin has this nocturnal adrenaline shot, but hers is caused by an autoimmune and thyroid disorders I believe. I would more suspect that you...
K so I've heard about this disorder and I though it had sounded cool as hell, but it's so rare it's just one of those things you hear about and...
But I don't know if I'll keep taking meds while doing botox, I'll bring that one up to Doc. Thanks honey
The propranolol is gonna lower my blood pressure like crazy but I already have really low blood pressure and get dizzy spells so they said as soon...
we've tried amitriptilyne (never again), topiromate right now which I want to get off of because I literally never feel hungry ever and have to...
Yes I am and I am all the better for it! Satan himself made that crap, I wouldn't recommend it for anyone. I remember you said you were taking it...
Honestly the thought has crossed my mind and assuming they were willing (I have absolutely no concrete research to back this up this is just my...
Y'all I cannot be home alone! I'm seeing/hearing stuff every two seconds because of T and VS and can't just turn on music because of H. Ahh!
Home alone and heard a door open! You know how hard it is to listen for an intruder when your tinnitus is so loud!? Didn't find anyone tho
Hahaha gotta be better than in canada, I HATE the cold! I can't even stand it here durring winter so props to you hon. And yeah, life is nothing...
I find it amusing that when the entire earth is too loud what always comes to mind is Billy Corgan's "the world is a vampire sent to drain"
Do you feel that the reason medications have such a heavy hand in your hyperacusis is because the origins of your disorder is from chemo and not...
Thanks for the info! Yes the 90% seems so odd to me as well or else you think everyone on here would be talking about migraines? I tried to ask...
