Tavia R
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Jul 13, 2020
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Gender:
Female
Location:
Utah

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Tavia R

Member, Female, from Utah

4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't get away from the noise or pain! Jul 6, 2020

Tavia R was last seen:
Jul 13, 2020
    1. LilSass
      LilSass
      How are you doing these days Tavia? :)
      1. Jayne Salinas
        Jayne Salinas
        Hello how do I get to message
        Jul 22, 2020
        LilSass likes this.
    2. Tavia R
      Tavia R
      4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't get away from the noise or pain!
      1. LilSass, Kriszti, aot and 2 others like this.
      2. Lucifer
        Lucifer
        I use to love fireworks too. I wonder when all the hearing regeneration medicine comes out if it makes our H and T go away if it will be possible to attend fireworks outside again but with earplugs of course. It would suck for the rest of our lives no fireworks.
        Jul 6, 2020
        Tavia R, Steph1710, aot and 1 other person like this.
      3. Kriszti
        Kriszti
        I'm just so sorry. I have never had much connection to fireworks, but now I'm so scared of them. New Year's Eve was a horror. Raging tinnitus, anxiety, double protection. I'm just trying to mentally prepare myself for our national holiday when there will be even bigger fireworks.
        Jul 6, 2020
        Tavia R and aot like this.
    3. Tavia R
      Tavia R
      Stupid. Freaking. Migraines. I'm glad that I had that two day break from the constant battery, but I think I'd give my leg to have it again
      1. Kriszti, Steph1710, LilSass and 3 others like this.
    4. Tavia R
      Tavia R
      I thought once I got used to it my Alice in Wonderland Syndrome would be cool, but it just scares me every time. Minor episode every day now
      1. Christiaan, LilSass and Steph1710 like this.
    5. Tavia R
      Tavia R
      I’m completely okay with the pain coming back right now. For the past 2 days I’ve felt like a real person again, I’m living. Hallelujah
      1. LilSass, Emgee, Steph1710 and 3 others like this.
      2. Lucifer
        Lucifer
        That is so great to hear @Tavia R. Keep us up to date.
        Jun 27, 2020
        Tavia R, aot and Christiaan like this.
    6. Tavia R
      Tavia R
      My migraines technically haven’t stopped the whole time I’ve been pain free, but the H is coming back as the M intensifies.
      1. ASilverLight likes this.
    7. LindaS
      LindaS
      @Tavia R

      I read some of your posts and I am so happy for you!!! It is wonderful that you have experienced improvement. We all must appreciate the good when it happens even if things are not perfect.
      I too am wondering what medication you are taking?
      1. LilSass, Tavia R and aot like this.
      2. Tavia R
        Tavia R
        Thanks LindaS! If you guys already know, I don't have hearing loss H, I have migraine H. None of the many drugs I've tried have touched it and suddenly out of the blue these new ones started working! Feels good to finally have a break, even though right now a new migraine is starting up again.
        Jun 26, 2020
      3. Tavia R
        Tavia R
        Look down at my other comment to see the meds.
        Jun 26, 2020
    8. Tavia R
      Tavia R
      MY MEDICATION IS WORKING! MY PAIN IS REDUCED TO THE LEVEL IT WAS 6 MOTHS AGO! I'M LISTENING TO MUSIC!!!!! PRAISE GOD HALLELUJAH!
      1. View previous comments...
      2. Tavia R
        Tavia R
        So the med I'm taking is gabapentin (a nerve pain medication and migraine blocker). I've been told this is ototoxic as of yesterday so keep that in mind. But at the same time I was put on propranolol, another migraine blocker, so I don't know which one is stopping the ear pain. I am still having migraines at the same time the ear pain is gone so IDK what's going on I just know I didn't hurt
        Jun 26, 2020
        LilSass likes this.
      3. Bill Bauer
        Bill Bauer
        Is the music loud? Are you sure you want to risk it all?
        Jun 26, 2020
      4. Tavia R
        Tavia R
        Doc said noise exposure won’t make H worse in the long run, but too much can trigger a migraine. So yeah I’m totally risking triggering another migraine and going back to the pain, but it’s more than worth it.
        Jun 27, 2020
        Tara Lyons likes this.
    9. Tavia R
      Tavia R
      Y'all I think I'm seeing improvement! But is it too pessimistic to say it's not enough to really make a difference? I'll take it any day tho
      1. LilSass, Emgee, Kriszti and 4 others like this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        Ears take forever to heal, so improvement is a great sign and in a year or two you will probably have a lot more improvement.
        Jun 22, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Nope it's not pessimistic. I was experiencing the slightest improvements each couple of weeks, and now all those slight improvements have added up to a significant improvement.
        Jun 22, 2020
        Tara Lyons, Tavia R and aot like this.
      5. Emgee
        Emgee
        Awesome! Hope it continues!
        Jun 22, 2020
        Steph1710 likes this.
    10. Tavia R
      Tavia R
      "The Lord did strengthen them that they could bear up their burdens with ease, and they did submit cheerfully to all the will of the Lord"
    11. Tavia R
      Tavia R
      I should be much more depressed than I am. What a miracle that I am so happy even though I'm struggling so much. Praise God
      1. LilSass
        LilSass
        Tavia, you are truly an inspiration! I too am going through a lot of physical pain with migraines and muscle tension in neck/shoulder/back, along with t. It is challenging, but we are stronger through our faith. God bless you! :)
        Jun 18, 2020
        Brenda Klein and Tavia R like this.
      2. Tavia R
        Tavia R
        God be with you hon! It's comforting to know He already went through all this, knew us personally, and still saw fit to give us our trials. He definitely knows something we don't.
        I'm sorry you're not doing well though, message me anytime, I mean it
        Jun 19, 2020
        LilSass likes this.
      3. LilSass
        LilSass
        Thx Tavia! I'll message you soon. I can't spend too much tine on my phone when it hurts, which it does right now. Keep praying for each other!
        Jun 20, 2020
        Brenda Klein and Tavia R like this.
    12. Tavia R
      Tavia R
      Hi @Kain, I got the nitrous oxide for my H pain when I went to the dentist. DON'T! Tubes of rushing air sit on your ears, I had muffs too
      1. Kain likes this.
    13. Tavia R
      Tavia R
      I've made peace with H. Of course I'm still fighting tooth and nail to heal from the migraines causing it, but I'm starting to learn to live
    14. Tavia R
      Tavia R
      Y'all I cannot be home alone! I'm seeing/hearing stuff every two seconds because of T and VS and can't just turn on music because of H. Ahh!
      1. LilSass likes this.
    15. Tavia R
      Tavia R
      Home alone and heard a door open! You know how hard it is to listen for an intruder when your tinnitus is so loud!? Didn't find anyone tho
      1. Bill Bauer likes this.
      2. aot
        aot
        Spooky!
        Jun 3, 2020
      3. LilSass
        LilSass
        Lol! :)
        Jun 4, 2020
    16. LilSass
      LilSass
      Hi @Tavia R ! How are you today? I too get migraines & developed t six months ago. Life can sure be a bitch huh? How are things in Utah? :)
      1. View previous comments...
      2. LilSass
        LilSass
        Jun 8, 2020
      3. Tavia R
        Tavia R
        Wow, I've been reading the research articles about it, seems pretty legit. Thanks LilSass! Hope you're well
        Jun 10, 2020
        LilSass likes this.
      4. LilSass
        LilSass
        Glad you found it useful! I've got to look a little bit more into it, but it's actually a reasonable price, so I def think it's worth a shot. Did you find any negative effects? Take care lovely! ;)
        Jun 10, 2020
    17. Tavia R
      Tavia R
      I find it amusing that when the entire earth is too loud what always comes to mind is Billy Corgan's "the world is a vampire sent to drain"
      1. Emgee, aot and Steph1710 like this.
      2. Steph1710
        Steph1710
        Such a classic! Always reminds me of my mum lol
        Jun 2, 2020
    18. Tavia R
      Tavia R
      There comes a point you realize you're going to have to get through it because there's no other choice. How have I gotten this far?
      1. LilSass, Steph1710, Emgee and 3 others like this.
    19. Tavia R
      Tavia R
      I don't know how I'm going to make it through today. It's going to be a lesson on grace, because I cannot live like this. God help me
      1. LilSass, acute, Kriszti and 3 others like this.
      2. Emgee
        Emgee
        I hope things start to improve for you. Feel free to message anytime.
        May 19, 2020
        Bill Bauer, Christiaan and aot like this.
    20. Tavia R
      Tavia R
      I'm really sick of crying, of being depressed, of being in pain. I wish so desperately life was more beauty and less misery.
      1. Christiaan
        Christiaan
        I'm really sorry to hear that Tavia. Are there any things that keep your mind off your hyperacusis and T?
        May 19, 2020
    21. Tavia R
      Tavia R
      Oh & the nasal spray came today. Think I'm allergic to it because it burned like hell &when it dripped down my throat it caused major bumps
    22. Tavia R
      Tavia R
      Dinner in my room alone, 31 dB earmuffs (family in other rooms), completely mute. No migraine. This is not good. The H is separate.
      1. Bill Bauer
        Bill Bauer
        Are you doing this because in the past you got a spike when they were in the nearby rooms and you weren't wearing your muffs? This lasted at most an hour, right? You are spending most of your time at home Not wearing muffs, right?
        May 16, 2020
      2. Tavia R
        Tavia R
        Most of the time I’m not this disabled, but I got bad noise exposure
        I wear the muffs most of the time when I’m out of my room. Usually I’m good without then in there, except when it’s this bad
        May 18, 2020
      3. Tavia R
        Tavia R
        Right now I’m just so overly sensitive that I can’t handle really any noise
        May 18, 2020
    23. Tavia R
      Tavia R
      I just hope after I get the migraines under control the H stops. Suck if they're not related, but I was born with ear problems (4/4)
      1. aot likes this.
    24. Tavia R
      Tavia R
      it's like the shot you get in the ER. But sounds like botoxs is coming. Doc sounds confident that I can handle it though. (3/4)
      1. aot likes this.
    25. Tavia R
      Tavia R
      get those under control first. We're adjusting meds, did a nerve block. Giving it a few weeks, then some new meds. Have a nasal spray (2/4)
      1. aot likes this.
    26. Tavia R
      Tavia R
      So here's how the neuro went: we're still not 100% sure the migraines are causing the H, but I'm having at least 15 M a month so we (1/4)
      1. aot likes this.
    27. Tavia R
      Tavia R
      I've been getting worse we so came to the conclusion to screw the diet. Got my appetite back...ish ok I ate most of it. So good! (2/2)
      1. Steph1710 and aot like this.
    28. Tavia R
      Tavia R
      You know, that frosty and fries hits different when you've been following a strict migraine diet since febuary. No migraine either... (1/2)
      1. LilSass, Steph1710 and aot like this.
    29. Tavia R
      Tavia R
      Sometimes I have to realize how bad I’m getting and admit to God how much I need Him. H is like a monster inside me that’s eating me alive
      1. LilSass and aot like this.
      2. Bill Bauer
        Bill Bauer
        H goes away a lot more often (and faster!) than T. Chances are that in a year or two you will be over H.
        May 11, 2020
        aot likes this.
      3. Tavia R
        Tavia R
        Wait what!?
        This is literally the first time I've heard this
        Ok, well apparently I need to crawl out of my hole of depression that prevents me from doing any research at all (I fell into it quite a while ago - I couldn't handle the emotional toll of not being able to find solutions to fix my ears) and look into recovery times.
        Thanks :x
        May 13, 2020
    30. Tavia R
      Tavia R
      Well...I guess I do have a lot of cute sundresses. That, at least, is going pretty well for me ;)
      1. Bill Bauer, Orions Pain and Steph1710 like this.
      2. Orions Pain
        Orions Pain
        Girl, same. Looking forward to wearing them indoors while I sit in silence lol
        May 9, 2020
        Bill Bauer and aot like this.
      3. Steph1710
        Steph1710
        Me too! Got some nice jumpsuits actually.
        May 9, 2020
        Orions Pain likes this.
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  • About

    Gender:
    Female
    Location:
    Utah
    Tinnitus Since:
    Born with condition
    Cause of Tinnitus:
    Born with condition-recently diagnosed/treated for migraines
    “Life, although it may only be an accumulation of misery, is precious, and I will defend it.” - Mary Shelley, voiced by Frankenstein’s monster