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  1. L

    From Darkness to Light, How I Recovered from Tinnitus & Hyperacusis

    Billie, do you still have the cotton balls ear fullness? How do you not feel terrified at the shocking physical loss? I'm still struggling with the abnormal hearing. I couldn't hear a thief come up behind me, which scares me.
  2. L

    Hyperbaric Oxygen Therapy

    Within a couple of months. Acoustic trauma.
  3. L

    Hyperbaric Oxygen Therapy

    HBOT had no effect on me after a handful of sessions.
  4. L

    Do Any of You Live by Yourself with Hyperacusis?

    I'm so sorry for your new pain, as if this condition wasn't bad enough already. Was there an identifiable trigger to your recent ear and face pain? Have you considered Psilocybin as it's been mentioned on this forum and by mushroom expert Paul Stamets as neuroregenerative, treating tinnitus...
  5. L

    Suicidal

    Did severing the muscle solve spasms or anything else?
  6. L

    Dysacusis — Will It Subside?

    I've seen a plethora of clueless ENTs, even clueless otoneurologists. Highly consider changing. Have you been to Michigan Eye and Ear? Dr Borjab Sr is supposedly good.
  7. L

    Dysacusis — Will It Subside?

    Why does the water pill terrify you? I would try anything to kill the sound distortions.
  8. L

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Full at every location, even UCSF?
  9. L

    Anyone Else Have More Than Just One Reactive Tinnitus Sound?

    I've never been offered medication for my low frequency hearing distortions. One is an explosion and the other sounds like I'm listening through a conch shell or metal pipe. Audiogram "normal." Would any meds apply to my distortions with the etiology of acoustic injury (intense acute noise)...
  10. L

    Distorted Hearing

    Yes I'm experiencing the "listening through a seashell" distortion to low frequency sounds like deep voices, snoring, knocking hollow wood. Anyone experiencing this long-term and coping?
  11. L

    Post Your Current Medication / Supplement Stack

    Reading your response is super helpful because my daily horror of symptoms and the robbery of quality of life sounds similar, and yet, I see how well you're functioning in auditory (and visual) Hell with its unavoidable loads of depression and anxiety. You're definitely coping better and...
  12. L

    Post Your Current Medication / Supplement Stack

    @FGG, also, wondering if your distortions or hearing loss contributed to your panic attacks? My many distortions and hearing loss are horrifying to my nervous system.
  13. L

    Post Your Current Medication / Supplement Stack

    Thank you so much for the prompt response. I'm plagued more by the "cochlear" rather than the vestibular part. Would your feedback change about how to intervene if the tinnitus and distortions are the most panic inducing for me, as the vestibular issues have tampered down a lot?
  14. L

    Post Your Current Medication / Supplement Stack

    @FGG @Greg Sacramento @GBB Do these theories help us know how to disable the panic response? How to interpret on a practical level of what to do? I think at this point my panic has a life of its own and is hardwired into my brain after extremely long uncoping stress. Help! Looking for...
  15. L

    Tinnitus Masking: In-Ear Maskers

    How do you protect your ears from loud noises with your maskers in?
  16. L

    Tinnitus Masking: In-Ear Maskers

    @Karno & @Michael Leigh, How do you protect your ears against loud noise when wearing in-ear maskers? Since you can't use earplugs, and you can't use fingers to plug your ears when coming across abrupt noises like sirens, barking, horns, screams?
  17. L

    Tinnitus Masking: In-Ear Maskers

    What are the in ear maskers that you use? Do you use slight amplification as well as the sound generator feature? How do you handle protecting your ears, because you can't wear earplugs or cover your ears with hands when there's an offensive siren, barking, car horn, etc. I've been in Hell...
  18. L

    Frequency Therapeutics — Hearing Loss Regeneration

    Since my auditory injury early this year, I've been in an unending, suicidal, claustrophobic, majorly depressed panic attack. Uncoping stress to the maximum. When you say "delay and make recovery unlikely" in light of maladaptive neuroplasticity... Are you referring to not being able to recover...
  19. L

    Can Hearing Aids Manage Hyperacusis Distortions?

    I suffer from painful distortions that are triggered by sharp/impulse sounds as well as intrusive ringing. My question is: As a symptom management tool, will a low gain in-canal hearing aid would do the dual purpose trick of: Acting as a partial plug to reduce sharp sounds that triggers...
  20. L

    Tinnitus Masking: In-Ear Maskers

    What does your tinnitus sound like? Mine is loud, multi tone, and oscillating, so I wonder if your hearing aid method would mask mine or if it works better for pure tone tinnitus?
  21. L

    I Don’t Know What to Do Anymore: I'm Now in a Psychiatric Hospital and Tinnitus Is Crushing Me

    @Vicki3116 Agree, this is Hell unlike any other MH crisis I've suffered. There are ways to talk yourself through the dark thoughts and help your brain not care! Yes, some facet of it has improved.
  22. L

    Dysacusis — Will It Subside?

    @GBB Checking in to see if your symptoms have changed at all with the distortions and pain?
  23. L

    I Don’t Know What to Do Anymore: I'm Now in a Psychiatric Hospital and Tinnitus Is Crushing Me

    @Vicki3116 Severe oscillating tinnitus plus distortion obliterated my career (similar to your field in research and health) and life as well. It is a cruel disorder, a 24/7 sound torture chamber. I tried every treatment possible in a state of sheer panic and claustrophobia in my own body, only...
  24. L

    Dysacusis — Will It Subside?

    Anyone still experiencing dysacusis or have thoughts about coping? It's been a horrific year...
  25. L

    It's my back up plan for the T and horrific distortion. Lemme know if you find a taker.

    It's my back up plan for the T and horrific distortion. Lemme know if you find a taker.
  26. L

    Hospitals/Clinics/ENTs Specialized in Treating Hyperacusis? Anywhere in the World!

    @tiredofit Silverstein Institute: Ear, Nose & Throat Treatment Sarasota Invented hyperacusis surgery.
  27. L

    Anyone Else with a “Chaotic Symphony” Tinnitus?

    Which brand did you use that at least helped with your anxiety? Care by Design 1:1 ratio to THC was mentioned in the thread.
  28. L

    Anyone Else with a “Chaotic Symphony” Tinnitus?

    I took tons of supplements too, until a chiro told me to detox from most of them because some were hindering my body. Have you considered CBD? I'm curious and tempted... https://www.tinnitustalk.com/threads/major-relief-%E2%80%94-finally.33986/
  29. L

    Anyone Else with a “Chaotic Symphony” Tinnitus?

    Post acoustic-trauma, I hear oscillating tones of idling engines, ringing bells, static, plus an explosion distortion (potential ossicular lesion) triggered by sharp and sudden sounds. I can relate to the inhumane auditory torture chamber! For 3 months after taking magnesium citrate, the tones...
  30. L

    Hi @Silvine, how would you apply BTS method or a coping strategy for an aggressive hearing...

    Hi @Silvine, how would you apply BTS method or a coping strategy for an aggressive hearing distortion- an "explosion-" that is sound-evoked by sharp/abrupt auditory stimuli? It is not ignorable like ringing as it accompanies incoming sounds like an exclamation mark! (Yes I am under medical care...
  31. L

    Suicidal

    @FGG @Greg Sacramento What would be a remedy for this chronic excess Glutamate condition? Magnesium citrate/glycinate 400mg or something more invasive?
  32. L

    Back to Silence

    Thank you Henry Orlando FL! Your compilation is invaluable. To @Phil-O, @I who love music, to those who have success with BTS... I know there's others with hearing distortions, I think Terry mentioned he has it. Granted, what I hear is more volatile as an "crunching snow" explosion that...
  33. L

    Back to Silence

    How do I use the Back to Silence method with a sound-evoked distortion that sounds like a horrific explosion... that is triggered by many everyday sounds? It's not ignorable, you will always physically hear it because it follows real incoming sounds like an exclamation mark (as opposed to...
  34. L

    How do I use your method with a sound-evoked distortion that sounds like a horrific...

    How do I use your method with a sound-evoked distortion that sounds like a horrific explosion..that is triggered by many everyday sounds? It's not ignorable bc it comes with incoming sounds and it's intense. Please help. Thank you.
  35. L

    After Years of Coping with Tinnitus, It's Now Transferred from High-Pitch to Static Noise

    @dan This sounds like a comforting positive association. How is fuzzy static tinnitus the golden sound? Please enlighten us. Thank you!
  36. L

    Dr. Manohar Bance (ENT) — Experiences/Opinions/Reviews?

    I had e-consultation with Dr. Bance. He is very kind, patient, good listener. Even if your myoclonus or TTTS thumping is not evident by diagnostic measures (otoscope, objectively listening, or tympanogram)-- If the symptoms match -- he would be comfortable operating. He's had 12 surgeries and...
  37. L

    Does a Cochlear Implant Sound Like This?

    I know some of us have fantasized about the idea of cochlear implants curing our distortions/tinnitus, including myself. However, the sample audio here sounds scary, like an angry robot alien. Is this an accurate representation for those of you that have CI's? I am wondering how to find audio...
  38. L

    Tensor Tympani Regrowth: Hearing a Click While I Speak

    @TheOriginalJoeM Do you hear the distortion with external sounds (what types?) as well as your voice? Can you get the surgery if the eardrum does not dimple as viewed by an otoscope? Have you had any adverse effects from the surgery ? I have been told that I may have TTTS middle ear...
  39. L

    Slight Echo or Distortion in Bad (Tinnitus) Ear

    Could you describe the sound-evoked "low crash" distortion more? Explosion, clang, or overlaying ringing? It could possibly be reactive tinnitus or tonic tensor tympani syndrome.
  40. L

    What Do Doctors Need to Understand About Tinnitus?

    1) Do not miss the window of opportunity for steroids post acoustic trauma! It is your responsibility to offer your patient the chance to not live with deathly ringing/distortions/pain for life. 2) Educate yourself about clinical trials and regenerative medicine. Otherwise you'll be...
  41. L

    Botox 70% Success Rate as a Tinnitus Treatment!?

    Complete version of the 2018 study with extensive causative explanation of tinnitus and why Botox works: https://www.jscimedcentral.com/EarNose/earnose-3-1035.pdf "Furthermore, it is known that, due to a joint innervation by the trigeminal nerve, neuromuscular dysfunction in the masticatory...
  42. L

    Botox 70% Success Rate as a Tinnitus Treatment!?

    Tinnitus Sedation with Botox, 82% success I've been suffering from tinnitus from acoustic trauma. In addition, I experience jaw pain from clenching teeth due to the stress of tinnitus. The very morning after I received masseter botox injections, I woke up with relief, wondering why it was so...
  43. L

    Botox Might Help Your Tinnitus — It Helped Me

    I received Botox at a cosmetic clinic in the masseter (jaw muscles), 30-35 units each side for TMJ pain due to clenching at night from tinnitus stress. I woke up with shockingly reduced tinnitus the next day! I was astounded with some silent moments in the day. Before this, my tinnitus was...