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I've tried genuinely everything. just about everything you listed. it hasn't worked for me, so I'm killing myself.
Well... I'll be heading out soon. Please remember me as someone who tried her hardest.
Well I'm actually killing myself this month. Sucks I've been pushed to this point but, it is what it is.
Will more than likely be dead this week. I have had enough. Goodbye.
Just curious what dose DXM were you taking? I have resorted to recreational use of it (robotripping), ~800mg is pretty much a dissociative bliss...
Tapering off currently, tinnitus is back, pitch perception normal, sound tolerance back to 0, distortions the same as they were pre Prednisone.
Prednisone isn't helping anymore and neither are the various vasodilators.
Each time I take Prednisone the pitch shift madness starts again. Maybe you're right.
Dysacusis is still there. I literally don't care about the tinnitus at all. The hyperacusis, if it were moderate, I could survive. The loss of...
Tinnitus, hyperacusis, distortions etc were traded off for every single real sound being a tone lower. However, this has again corrected itself...
So I'm currently on a long course/taper of Prednisone at 60 mg and it has made me worse again. Bilateral diplacusis with every single sound being...
My right ear was tinnitus free today but I'm still ravaged by dysacusis/distortions. God. I would rather have excruciating tinnitus than any...
Alright... The pitch issue corrected itself.
I'm still on Prednisone, not yet even in the taper phase, and EVERYTHING HAS BEEN PITCHED DOWN A HALF STEP BILATERALLY. This can't be permanent,...
Yeah, it's a 3 week course with a long taper. Hopefully nothing to worry about.
Yeah I'm on steroids right now. I currently have an increase in tinnitus but a reduction of sound distortions somewhat which is a trade that's...
I'm just going to hop on the Prednisone when I get it. I just simply don't care at this point. I will take antivirals too if I can convince my...
This is the month im killing myself if i dont see improvement. I have my suicide kit ready for use and I have no regrets whatsoever.
If I can't get on antiviral, I'll just take the Prednisone. Besides, I can't be made any more or less hopeless than I already am and I have had...
Yeah... I'll probably compulsively jump at the steroids anyway now that I think about it.
Well I'm going to push my GP to give me a viral / antibody test. If that comes back clear (it shouldn't, but let's say it does), then I'll just...
That's the gist of what I got. Also no, I don't have the report.
It was an inner ear MRI via a Tesla 3 scanner that was ordered by my neurotologist.
In early April I finally underwent an MRI of the inner ear to see what the cause of my debilitating ear problems are, because it obviously was not...
Now alcohol makes me temporarily much worse off than better for a few hours, then back to baseline. Then whenever I take a hot bath, I am like...
I think of @Jason C who had debilitating sound distortions for a year but he drank red wine a lot and I'm certainly sure it has something to do...
Damn. I tried a Pinot noir and it made me temporarily worse. But a blackberry wine? Literally an immediate cure. Why.
Yeah I've been thinking this is a Stria Vascularis issue. Or viral. Still sucks that despite receiving the Cisplatin in 2003, other than the...
Just did it again. A few glasses of red wine, also took Krill oil, Curcumin, Astaxanthin (a lot), Alpha-Lipoic Acid and L-Cartinine. Basically...
I have noticed over extensive self experimentation that any type of red wine or blackberry wine will basically cure me 100% of my distortions,...
Drinking copious amounts of alcohol completely cures my dysacusis and noxacusis at least. But it's not sustainable.
@Zugzug, what was the biopsy procedure for Sjogren's like?
[MEDIA]
All I do is get by the day with copious amounts of substances I do not want to mention on this board. I had a 3 Tesla MRI as well as a temporal...
Eagerly awaiting my 3 tesla mri results...
it didnt help me at all
Getting MRI with contrast of inner and temporal bone CT scan with specific instructions by my neurotologist... heres hoping i dont spike
Well I was given 6 rounds of high dose Cisplatin (and other chemo agents like Doxorubicin) in 2003 resulting in significant hearing loss, not to...
I would kill a family in exchange for trobalt
Yeah I realized noise exposure just doesn't do a thing to my condition. It's always drugs, pressure, or diet. Now I do have noise induced pains...
Benzos really help me but then a hot bath will reverse all my progress and my ears are back to full on sound distortions. Why do you think that is?
When you're on benzos, do you ever find that it reduces sound distortions for like 2 - 3 days well outside the half life of them until things...
I can only keep my sanity by listening to blues. Or anything with 1 instrument. [MEDIA]
Would that even work considering it was throughout 2003 I was given Cisplatin?
Well his main theory is that it's literally just progressive Cisplatin damage. It NEVER leaves the cochlea and literally physically destroys the...
My neurotologist refuses to prescribe them until I get imaging done and the wait time is infinite.
Not really. Do you think you or I will ever be 100% cured of this distortion phenomena?
Bruuuuhhh how did we think of an almost identical drug cocktail.
No, I hear them at all times, even over a freeway extremely clearly, and it's just chaotic and atonal but again I don't care about that, of course...
Well guys. I feel like I've read everything there is to read on tinnitus and hyperacusis. It becomes quite repetitive after a while. And...
20+ tones, most of them reactive and low frequency and off the walls loud but I don't even care about any of that. It's the hearing loss why I'm...
Cisplatin destroys many parts of the cochlea other than hair cell damage. It's also retained in the cochlea indefinitely, so progressive hearing...
The neurotologist did order an MRI with contrast of the inner ear and a CT scan to check the bones to rule out possibilities of hydrops or viral...
My hearing problems has been determined to be the longterm effects of Cisplatin chemo I received in 2003. Progressive hearing loss as I age and...
Unfortunately I have health problems much worse than my ear problems that are why I'm planning on catching the bus... but I hope future...
I have heard of Dr. Hain. I'll consider it.
No, I didn't have a death with dignity appointment lmao. I'm literally killing myself with a cocktail of substances I bought in like January. I...
Chicago.
Dr. Robert Yawn in Memphis Tennessee.
Everything for my death with dignity is planned and will be done sometime this April. I have a neurotologist visit scheduled for Monday but I feel...