Cause of Tinnitus and Hyperacusis: Postviral Lesion

Discussion in 'Support' started by __nico__, May 1, 2021.

    1. __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      In early April I finally underwent an MRI of the inner ear to see what the cause of my debilitating ear problems are, because it obviously was not an acoustic trauma.

      And as luck would have it, the MRI showed that I have a very clearly inflamed postviral lesion.

      I am being put on Prednisone again but for obvious reasons I'm holding that off due to my previous bad experience.

      What do you folks recommend?
       
    2. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Your MRI showed lesions in the inner ear itself? Do you have a copy of the report by any chance?
       
    3. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Do everything you can man.

      There might be alternatives you could chat to the doc about other than steroids for immune overreaction as well as anti virals, because who's to say what virus and if it's gone or just dormant?

      And for everyone else with similar symptoms of hell, what kind of MRI was it of? My GP isn't able to give me brain ones. Was this through an ENT or neurotologist?

      Asking for Dexamethasone instead might be an option to keep the mineral effects on the inner ear to a minimum. As well as antivirals, though Dexamethasone might be IV or injection only.
       
    4. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      It was an inner ear MRI via a Tesla 3 scanner that was ordered by my neurotologist.
       
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    5. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      That's the gist of what I got. Also no, I don't have the report.
       
    6. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      Well I'm going to push my GP to give me a viral / antibody test. If that comes back clear (it shouldn't, but let's say it does), then I'll just take Prednisone.
       
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    7. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Even if you do have a virus, steroids can help with some of the secondary inflammation from it.
       
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    8. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      Yeah... I'll probably compulsively jump at the steroids anyway now that I think about it.
       
    9. Jelli

      Jelli Member

      Tinnitus Since:
      01/1980
      Caution with Prednisone with horrible side effects. Its usage should be VERY SHORT. (See white paper documentation). Not FDA approved or cleared for tinnitus. While it can temporarily eliminate some tinnitus, the risks and side effects are bad including exasperating your tinnitus when you stop.
       
    10. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Man, I'd strongly advise antivirals if that's what they're saying caused it in any capacity. The steroids lower your immunity and is perhaps why the virus got jacked up.

      At the very least, Lysine will help if it's a Herpes family virus.

      That and taper damn slowly if you do it again. I'd hate to see you get worse from a rapid taper off.

      Could also give some things like Theobromine/Turmeric a try to get that TNF-alpha down.

      They'd never give steroids during an active infection, only post-inflammatory stage, unlike with autoimmunity like in MS where they pump you full of 'em.

      Knowing if it's a secondary reaction due to a virus or a primary immune response in your ear is kinda critical here.
       
    11. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Then he should be on antivirals to counter any reactivation once his immune reaction goes down, otherwise it'll just be an ever worsening merry-go-round. Knowing for sure if it's a virus is important or even just doing broad antivirals if they aren't ototoxic while doing the steroids.
       
    12. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      I can’t recommend anything but I am very happy that at least you have a diagnosis and a way forward. I would think the Prednisone would help like @FGG said and some antivirals might help as well. If you wanted to start with a natural antiviral look up Monolaurin. It’s derived from coconuts but it’s very powerful as an antiviral and with pretty much no side effects. If I was in your position I would jump on the Prednisone in a second. Is it possible to get Dexamethasone or Prednisone injected IT? I would think that hitting it at the source could help more but someone with more knowledge could possible chime in.

      I didn’t even know an MRI of the inner ear was possible.
      Correct. Prednisone is not indicated for tinnitus but it can be used for inflammation and that’s what Nico’s doctor is recommending. I also agree it should be taking in short duration; however, it is used long term for other ailments, albeit it at lower doses. @__nico__ has a diagnosis, it’s not like he’s shooting in the dark hoping Prednisone will fix acoustic trauma. I would follow the doc’s advice.
       
    13. FGG
      No Mood

      FGG Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      I don't disagree. But I don't think steroids should be skipped if a viral cause is found because a big part of the damage is secondary inflammation. I would use them in conjunction with antivirals if excess inflammation is present.
       
    14. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      If I can't get on antiviral, I'll just take the Prednisone.

      Besides, I can't be made any more or less hopeless than I already am and I have had my suicide planned out since the very beginning, which I'll do upon worsening.
       
    15. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      I’d take both. Like you said, you can’t get worse right? TryMmonolaurin and L-Lysine.
       
    16. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      I'm just going to hop on the Prednisone when I get it. I just simply don't care at this point. I will take antivirals too if I can convince my doctor to let me have them. But I've had enough of this suffering and I have all my affairs in order to die if I get worse.
       
    17. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      Good luck. I hope this works for you. Try the Monolaurin and L-Lysine. They are OTC antivirals with pretty much no side effects. You got this. Have faith.
       
    18. ee215909
      Hurting

      ee215909 Member

      Tinnitus Since:
      2/2021
      Cause of Tinnitus:
      Unknown- Maybe Ear/Sinus Infection
      @__nico__, how are you doing after your MRI? Any spikes or worsened symptoms?

      I have been having some neuro issues lately and my ENT wants to do an MRI of the inner ear/head. With my hyperacusis and tinnitus, I am freaking out, but don’t think I have a lot of options.

      I am really concerned about a significant set back. Hope you are well man and good luck with the inflammation. I hope you’re able to get some resolution and improvement.
       
    19. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      You jump on the steroid bandwagon again yet? Hoping the doctors helped you hedge a bit. Hoping you get some quiet days soon man.
       
    20. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      Yeah I'm on steroids right now. I currently have an increase in tinnitus but a reduction of sound distortions somewhat which is a trade that's totally worth it because I'm more devastated by my auditory distortions than any level of tinnitus by a long shot.
       
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    21. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      Keep us posted. I’m glad you’re seeing some improvement. Hopefully it lasts long term and you can move ahead with your life.
       
    22. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Same happened to me on my last steroid run.

      FTLoG, taper super slowly man.
       
    23. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      Did the distortion results last?
       
    24. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      Yeah, it's a 3 week course with a long taper. Hopefully nothing to worry about.
       
    25. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      I'm still on Prednisone, not yet even in the taper phase, and EVERYTHING HAS BEEN PITCHED DOWN A HALF STEP BILATERALLY.

      This can't be permanent, right?
       
    26. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      Alright... The pitch issue corrected itself.
       
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    27. Lukee

      Lukee Member

      Tinnitus Since:
      01/2021
      Cause of Tinnitus:
      Breathing Exercise
      What the f? That’s some weird stuff going on. How are the other symptoms?
       
    28. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      Yes.

      It keeps changing week by week too. Lose sounds, gain sounds. It's truly madness.
       
    29. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      My right ear was tinnitus free today but I'm still ravaged by dysacusis/distortions.

      God. I would rather have excruciating tinnitus than any level of auditory distortions.
       
    30. AUTHOR
      AUTHOR
      __nico__
      No Mood

      __nico__ Member Benefactor

      Tinnitus Since:
      2003
      Cause of Tinnitus:
      chemo/barotrauma/noise/autoimmune disorder
      So I'm currently on a long course/taper of Prednisone at 60 mg and it has made me worse again. Bilateral diplacusis with every single sound being a full tone flatter than it should be. It has eliminated a substantial amount of tinnitus but this is just BAD. I am tapering off now and going low sodium, sometimes the pitch perception fluctuates to say the least.

      But honestly as my profile picture says, I am killing myself if this is permanent. This is a losing battle I'm tired of.
       
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