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I'll take a 0.5 mg today. I'll keep ya updated.
I'm looking forward to it, yes, but honestly I would prefer DBS if I'd had the choice, not because of its risks, but because of its efficacy, and...
Pretty bad haha, well I'd consider brain surgery for it tbh, I'll go book an appointment at BRAI3N before I loose my mind and Im looking forward...
How about CBD oil for the jaw?
Late reply sry, I have no strategy mainly, ngl I'm just a angry person who vents often
I fear life. Yeah and for the majority of people it is, not for me apparently, so I'll have to go then... I still have not given up all hope,...
Many years... Long enough to know that nothing is going to be changing if there won't be a treatment/cure in a few years.
To be honest, we have to look at tinnitus as a neurological condition. People who have other neurological conditions, for example Parkinson's or...
Has anyone who has visual snow syndrome induced tinnitus tried Gabapentin here? I would consider Gabapentin together with a higher dose of...
A Potential Treatment for Visual Snow? Noninvasive Vagal Nerve Stimulation for Visual Snow Researchers at the Mayo Clinic utilized the theory of...
Trial one was completed: Pilot Study of Deep Brain Stimulation (DBS) in Area LC for Chronic Tinnitus I heard Phase 2 is starting soon. The...
I do still give them 3-5 years for a cure/treatment in terms of invasive things (I really would undergo surgery e.g., Deep Brain Stimulation). If...
They also investigated other settings and stimulation patterns, e.g., one trial targets the medial geniculate body whilst the other targets the...
That would be awesome. I just hope he can give some information about when it will be available for severe tinnitus, and what are his...
If you have a chance to meet him again, please ask him about this treatment. I would honestly consider this but got no timeline whatsoever. I...
Interview with Prof. Cheung about tinnitus and Deep Brain Stimulation (DBS) would be an amazing opportunity since he is the main investigator of...
So far they have completed Phase 1 and will start Phase 2 soon from what I got told. They have published a report about further work at UCSF. They...
Can anyone give me some expectations? Will Dr. Shore's device be helpful for visual snow syndrome induced tinnitus? It's somatic so it would meet...
When is it supposed to be out?
The best would probably be a high dose of e.g., Methylprednisolone, trying to relax a few days in silence without putting your ears/brain under...
I'll try 0.5 mg over the next days. Maybe it will do something but who knows. If not, I'll try the Gabapentin.
Well, I'm more confident on the trial in Maastricht and in the US by Dr. Cheung (Phase 2). If we're lucky, we'll have some decent results by...
I honestly do not know, maybe inflammatory, since I had this issue from age 3 or even earlier on. VSS included. I'm quite skeptical since VSS...
The point is actually that tinnitus is created in the brain, not in the ear. There are dozens of causes for tinnitus that doesn't include hair...
I took 0.25 mg but it does nothing for my tinnitus/Visual Snow Syndrome. Any ideas why?
Nothing happened lol, I dunno.
Hey, I tried Clonazepam today, 0.25 mg, it did nothing lol.
You got no proof, so.
Yep, it has been debunked, there were "no dead monkeys" lol. That is misinformation.
I think so too. We have on the list | Invasively: - Deep Brain Stimulation (DBS) - Neuralink - Neurosoft Soft Implantable Electrodes - Synchron
Yea, I'm quite hyped for DBS honestly. Just gimme back my silence (no joke, I would do the surgery).
I mean silence is a big word, it scientifically doesn't exist, but to hear nothing or just noises far away, is what I would wish to be able to do,...
What exactly did he say? Please ask him next time how tinnitus happens in detail, I'm sure he has no answer as well lol. A cure isn't impossible...
How many % has your tinnitus reduced from the Clonazepam?
Thanks brother, this kind of gives me hope, it just sometimes feels so far away :(
That's not entirely true. DBS is very successful in eliminating symptoms of Parkinson's, depression, neurogenic pain and so on that are all a form...
No, but I know how it sounded like, nothing, just hearing far away sounds and peace.
My tinnitus is not related to gaming lol, I've been one of the biggest COD addicted folks around here lol. So it may was too loud or you have...
It's the quietness, for example, mine fluctuates and sometimes, rarely, I'm able to have a bit of quiet time (or at least I had those memories)...
Visual snow: Alarming and not uncommon Visual Snow Syndrome is affecting 2.2% - 3% of the general population and therefore is not an uncommon...
Hi, I'm having a very difficult time at the moment, especially with my thoughts that constantly run through my mind. I've had tinnitus since I was...
Do you also have visual snow syndrome and what did your QEEG indicate? [MEDIA]
@erik, well, I was just visiting a chiropractor recently who said to me mehh, your nerves in the neck/jaw cannot be responsible for your...
Well, the question remains: Could this work for neurological tinnitus e.g., visual snow syndrome induced? It doesn't have to do anything with the...
That's so ridiculous. Why is there medication that makes tinnitus worse instead of better? Like there are tons of medications but so few seem to...
Does it have any bad side effects? I don't know honestly, how should it stop the tinnitus? Is it some kind of anti-inflammatory? I can't find...
I have to agree. Let's say this treatment costs around $3,000 to $5,000, we will still have a huge advantage over conventional Deep Brain...
That's me :) hope you like it <3 [ATTACH]
Oha yea, fuck off with the Promethazine. It seemed to make mine like 5x worse while on it. Has yours gone back to baseline?
Hm, I never noticed a change lmao, even after doing it like 5 times a day to distract myself from tinnitus XD
Hm, has it helped you? 2 mg is quite a lot. I take 0.5 mg occasionally as needed and it does prevent anxiety and depression when taken. I was...
2027-2029 is my guess for DBS.
I just think it's a bit complicated since in visual snow syndrome the visual pathway is also affected. From my understanding the visual (LGB) and...
Hm, my dentist confirmed TMJD and neck issues so yea I see the correlation. Mine is as well somatic and fluctuates throughout the day — sometimes...
I'm 100% confident about Musk, honestly. My man :) DBS works kind of well for tinnitus if used at correct spots in the auditory pathway, so I...
I have heard bad stuff about Amitriptyline, especially for Visual Snow Syndrome. How are you @DoesItStop?
Yeah I honestly just need a little bit of rest from tinnitus. I don't care about the visual stuff, although it isn't mild but it ain't a shit...
I understand tinnitus being chronic if you have had it for more than 3-6+ months. But I honestly can't answer what "stable" means because mine...
Anyone have a clue if Dr. Shore's will work for Visual Snow Syndrome induced tinnitus? It's purely neurological since it's a neurological disorder...
No hearing loss