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Thanks for the update. I don't think the initial success should be attributed to a placebo. It was most likely the pain medication that reduced...

I cannot point you to what you are asking for as it does not exist. There have been no such studies, unfortunately. It is important to note that...

I haven't found anyone else who had the surgery. However, the literature clearly shows that more people have, and Professor Bance has confirmed...

It's weird that it is so difficult to find a doctor who will administer Botox to the middle ear in Europe. Even Professor Bance doesn't seem...

My understanding is that revision surgery seems quite normal for this procedure either due to regrowth or just not cutting enough of the nerve...

Quite a handful! I remember I took it for the first time during the day and literally felt like I was on some heavy drugs. I was completely spaced...

What were the main side effects that you experienced? I was getting really bad heartburn, although the doctor said my vitals were normal.

I don't know if you have seen this paper on the tympanic neurectomy, but it is very interesting. It seems that many of the participants most...

I didn't do so great and gave up after around 5 days due to some side effects. I'm really considering it again though.

You have noxacusis, right? Would you consider the tympanic neurectomy? I'm seriously considering it at this point as it doesn't seem like there is...

I'm really glad Clomipramine worked for you. I'm considering trying it again myself. Did you have loudness hyperacusis, noxacusis, or both? BTW,...

Are you saying your hyperacusis went away after the first surgery? Did you have loudness hyperacusis, pain hyperacusis or both? What is the...

Ah, okay. The fact that you had hyperacusis for only 6 months makes it difficult to determine if the Clomipramine actually was the reason for your...

Brilliant! Did you experience many side effects on Clomipramine? How long did you have hyperacusis before starting Clomipramine?

When you say it helped with your neuropathic pain, does that mean your pain hyperacusis improved from taking Clomipramine? Has there been a...

Any reason you stayed on such a low dose? My understanding is that most people do not have any substantial improvement until they hit around 100 mg.

This is really great news. I am absolutely ecstatic for both you and the community as a whole. Professor Bance recommended a similar procedure to...

@Olly132, did you get the surgery? I am also considering it. How much did the surgery cost, out of curiosity?

@Aaron91, regarding the first paragraph, if hyperacusis is caused by accumulative noise exposure which causes damage to the inner or middle ear,...

@Aaron91, I notice that you immediately jump to physical causes in your search for understanding. However, there doesn't always need to be a...

Day 7 update on Clomipramine I went to the doctor as I have been experiencing regular pain/burning in my heart area since starting Clomipramine....

@Jerad, I have moderate pain hyperacusis where a range of sounds bothers me. No, Clomipramine did not affect my tinnitus. From what I understand,...

I'm always confused by the 'hearing things louder'. I have hyperacusis but I don't perceive noises as being louder. Is it perhaps recruitment...

Day 5 update on Clomipramine Experiencing quite bad heartburn. This is quite normal on these types of medications but if it doesn't subside, I'll...

@chinup, an element of your hyperacusis is definitely 'psychosomatic' then, although I prefer the term 'mind-body syndrome' which comes from...

@chinup, have you tried incorporating Curable into your recovery program? I feel like it has helped me a lot. At a minimum, if it doesn't...

I've now started on 20 mg of Clomipramine. At 20 mg, I'm not expecting much to happen but I will slowly work my way up. Perhaps increase the dose...

@Trafalgar D, how are you getting on with Clomipramine? Are you still improving? What about the side effects? Would be nice to hear an update.

Interesting. It does appear that this procedure has a high success rate for otalgia. It also seems that the side effects are not too bad. I...

@Brian Newman, I think at this point in time it is unlikely I will go through with it unless I get much worse and have tried everything. My...

@Josh59, I have been taking Amitriptyline for a couple of months now and have certainly not had it worsen my symptoms. Like you, my hyperacusis...

@chinup, since you have seen so much improvement, I wouldn't let it get you too down. I was reading a book on recovery and it described setbacks...

@chinup, thanks for posting! This is very helpful. Like you, I also work from home and luckily am in a small town so can go for walks without...

@Aaron91, this is a very interesting finding. In what way was ginger causing your TTTS to flare up? Increased pain or clicking/thumping...

@chinup, could you please post a more detailed account of what you did to improve so much? Your story really is interesting and it could help...

Thank you so much for this information. Regarding histamines, would taking anti-histamines potentially help?

If you don't mind me asking, what is the link between liquid Magnesium and potential issues with the middle ear? Also, what is the recommended...

Yes, an achy jaw is one of my primary symptoms. Also tingling in my ears and the side of my head. Every now and again a stabbing feeling coming...

I do agree with Ace. There can likely be multiple issues at play. Since you are a mild case, I would assume if you continue to avoid headphones,...

Hyperacusis and misophonia are very different. My understanding is that misophonia is an emotional response to certain sounds e.g., people...

I have tried many supplements but none really seem to help. I'm taking B12, Ginger, Turmeric, Lion's Mane, Ginkgo biloba and have tried others in...

Regarding my tinnitus, it's not so noticeable. It does seem to be reactive though which is worrying. If the noise that is causing my tinnitus to...

Did you have any difficulty in tolerating the white noise treatment? Where you using one of those ear devices or a regular speaker? Would you...

Can I ask what medication you went on that helped?

Your story is definitely interesting and helpful. The one thing I am consistently seeing on these forums is the importance of rest. This is the...

Thanks for the reply. I suspected that pushing through the burning is not the way to go. I feel much better when I have avoided problematic...