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@ZFire Same, I haven't noticed my hearing being worse. I hope it's H improvements, that would be wonderful! I'm surprised though if that's the...
I'm having more trouble hearing thru my earplugs. I used to be able to hear a whisper easily. Is H getting better or T getting worse? Sigh.
You sure no TTTS? It is probably from the trigeminal nerve, which runs through middle ear muscles. I get this sometimes and I thought it was from...
I've come across this trial for tDCS, and the results look promising. I'll admit I don't have a ton of knowledge about tDCS, but this trial found...
But I enjoyed playing with my son for awhile, even though having my earplugs in makes me sad. I don't want these moments to pass me by!
I wish I got a second chance or that mild type to start. Frustrating that I never got warning before I was stuck with all these ear issues.
My son's bedtime story last night was about seeing fireworks. You know I added in that they put in earplugs first! Gotta start 'em young
Have you looked into Clomipramine? It's an old TCA mainly used for OCD, but there have been some anecdotal reports popping up recently that it has...
Yes, everything I've seen says symptoms return upon stopping the medicine.
If it's not sound induced, it could be trigeminal neuralgia pain
How do you get past the fear of worsening without living as a hermit in complete isolation? It seems everyone gets worse over time.
Itchy could be from inflammation, even from inside the ear (which some believe is highly related to T/H)
@MadeleineHope could be sticking around due to slow nerve healing/central sensitization. Burning is definitely nerve. I would take TN meds...
@MadeleineHope With pregnancy I can't take anything other than the NAC & ALA but yes when I stop taking them it gets worse. I only take 600mg NAC...
@MadeleineHope thank you! I do still get the burning pain but frequency has reduced a lot. Currently going through a 2 week flare. Mine is...
I just want to chime in as a parent to a young toddler and soon-to-be mother of 2, that your children will still know you as the fun and loving...
That it can affect anyone, at any time, for relatively benign or even unknown reasons. You can list them: a concert, a cold, an ear infection,...
Copy success stories onto an offline doc on your phone. That's what I did and I forced myself to only check those when I was struggling. You have...
Trying to stay off but my update is I'm 5 mo pregnant &very excited. I don't want to put my life on pause in case I worsen& regret in future
Hope you are doing better as well @Juliane
Thank you. I've been trying to take a break from this forum and it definitely helped my mental state. I still check from time to time but try to...
I wear my custom plugs around my son most of the time. This is mostly preventive in case of a sudden shrill scream or cry, as well as eases my...
Hi all, I've hesitated posting as I have been trying to avoid catastrophizing but I'm a bit at a loss. For background, I had an acoustic shock in...
@ZFire Urgent care doc said my eardrums were bulging but no infection on 9/1. Still having more difficulty equalizing pressure when driving. It...
@ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by noise exactly - only by TTTS movement (which is...
Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a physical problem with my ears (TTTS) now
I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope it heals quickly. Stupid ENT. Need to get TTTS...
Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN & gave me meds. Might help TTTS. No change in T
I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from jaw/neck movement and TTTS thump then sound
@RunningMan sleep was better, but no sleep again last night. I stopped the melatonin but seem to still have one sleepless night a week.
@gameover I had the test in the past twice with no issues. I wasn't having any issues before the test. My worse ear felt full after but the...
@RunningMan it's persistent, burning pain. I think it may be related to by TTTS. I can't tell if it's from sound or my jaw or what. It lasts...
It's my birthday and I'm pretty sure I got noaxacusis. No trigger for it except maybe a tympanometry test a few days prior. I can't do this
Another audiology appointment, another time of being told my hearing and ears are perfect. Why can't my brain get that message!
Same. But we got to keep holding onto hope for better days ahead. You never know!
@kingsfan I wish we could pick and choose. I find myself saying if those 1 or 2 tones would go away, I would consider myself back to normal. Maybe...
I'm the opposite. My lower pure tones drive me nuts but my hissing and electrical high pitch sounds (one is unmaskable sometimes) hardly bother...
We are here for you!
Thank you. Had a decent weekend in spite of horrible T but my strength to pretend to be ok comes in much shorter bursts now. Really bad today....
My son likes to have little dance parties where he he wiggles his butt in very slow, uncoordinated ways and squats up and down. His fav jam...
I was there the past week, trying with everything I have to pull myself out now. You can do this!
As they say, hindsight is 20/20. But there is no use dwelling on the past as you can't change it. There's no use obsessing over the future as you...
It really boils down to personal preference. It's a risk-benefit analysis. Yes, there is potential risk involved if it gets "into the wrong...
I'm in a bottomless pit of despair. No one to talk to. Therapist thinks I need antidepressant but too afraid to risk tinnitus worsening.
Baby steps. Gotta give yourself some time. Sending a virtual hug your way.
Thanks for the kind words. Helps me feel a little less alone.
Thank you @scared8. Let's hope for better days for us all soon
@ECP we tried but counselor said we weren't good candidates due to needing to work through our own personal issues first :( hubby just started...
Thanks everyone. Unfortunately I'm realizing I'm very much alone in my suffering.
We were supposed to be trying for 2nd child now. All I ever wanted. Waiting due to T & marriage issues. Feel like my life was stolen from me
All I was doing was holding & caring for my child like a good mom should when the accident happened where I got T. I don't understand.
Depressed when I see so many stories of people recovering after one-off events. What made me so unlucky? Why didn't I get another chance?
I've been trying so very hard to be hopeful. I just want some relief. Anything. Been trying everything no help. I can't live my life w this
Day 2 of no sleep. Seems to be the norm for me now. Ringing has been gradually getting worse the last few months for no reason.
My fullness certainly isn't as bad as it was in the beginning, but it never went away, no. I suspect some type of chronic inflammation is at play,...
And no one will want someone who has a young kid and ear problems. Just lots of tears. Sorry for the vent but helps to write it out
Yes maybe the probs were already there but were manageable before. I feel very unloved. I honestly don't know if we will make it.
T has changed my whole life. I wish I got it when I was old and at least got through the child rearing years.
Anxious, easily overwhelmed, pessimistic, etc. Used to be a big go getter and didn't require much support. Now I'm "asking for too much"
Could use a hug tonight. My T was the catalyst for destroying my marriage. Husband says he doesn't like the person I've become
