Ngo13
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Ngo13

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I'm having more trouble hearing thru my earplugs. I used to be able to hear a whisper easily. Is H getting better or T getting worse? Sigh. Apr 23, 2024

    1. Jon R.
      Jon R.
      Hope you are doing okay. I found you because a baby screamed in my ear last Friday and my symptoms are the same as yours. I am so worried. Can I ask how close was your baby to your ear when he screamed ? For me it was a mother stood behind me in a queue at a store, her toddler just suddenly screamed. My right ear is now very messed up.
      1. Ngo13
        Ngo13
        Hi there, my baby was only inches from my ear. Toddlers are louder than babies though with more lung capacity. If symptoms are the same, I would definitely see a doctor. Acoustic shock is thought to mainly be an inflammatory cycle since there is no hearing loss usually.
        May 31, 2024
        Jon R. likes this.
      2. Ngo13
        Ngo13
        Prednisone might be a good choice. But it also might just take some time for your ear to recover, it probably startled you and activated your middle ear muscles which leads to the inflammation. For most people, acoustic shock symptoms tend to settle or go away with time.
        May 31, 2024
        Jon R. likes this.
    2. Ngo13
      Ngo13
      I'm having more trouble hearing thru my earplugs. I used to be able to hear a whisper easily. Is H getting better or T getting worse? Sigh.
      1. Juliane, ZFire and Kiyomi like this.
      2. ZFire
        ZFire
        Wow, you’re not the only one who shares that same sentiment… @Ngo13 I totally feel the same too. Hearing through plugs has become more and more difficult overtime. Coincides with my tremendous H improvements. I honestly, can’t tell if my tinnitus has worsen these past 3 years though. It’s possible. I was thinking maybe my hearing has slowly deteriorated. But i haven’t noticed any significant loss.
        Apr 23, 2024
        Ngo13 and tpj like this.
      3. Ngo13
        Ngo13
        @ZFire Same, I haven't noticed my hearing being worse. I hope it's H improvements, that would be wonderful! I'm surprised though if that's the case as I'm over the general 2 year window
        Apr 24, 2024
        tpj likes this.
      4. ZFire
        ZFire
        @Ngo13 For what it’s worth, I have continue to see improvements in H after 2 years, even when I thought my improvements had plateaued

        I see no reason why it can’t happen to you as well :)
        Apr 25, 2024
        Ngo13 and tpj like this.
    3. Ngo13
      Ngo13
      But I enjoyed playing with my son for awhile, even though having my earplugs in makes me sad. I don't want these moments to pass me by!
      1. ECP, ZFire, Tryn2BHopeful and 6 others like this.
    4. Ngo13
      Ngo13
      I wish I got a second chance or that mild type to start. Frustrating that I never got warning before I was stuck with all these ear issues.
      1. Juliane, ECP, ZFire and 3 others like this.
    5. Ngo13
      Ngo13
      My son's bedtime story last night was about seeing fireworks. You know I added in that they put in earplugs first! Gotta start 'em young
      1. ECP, tpj, ZFire and 3 others like this.
      2. ZFire
        ZFire
        @Ngo13 ‘s parenting skills on point :)
        Apr 9, 2024
        ECP, Kiyomi and tpj like this.
      3. ECP
        ECP
        I'm a vegetarian, and at the nonprofit where I used to volunteer, we all got a good laugh when one of our members said that he used Wite-Out and a pen to rewrite children's books to make them more animal-friendly to his small children when he would read aloud to them before bed. As a sufferer of T and H, I would wholeheartedly endorse any children's book that encourages people to avoid loud noise!
        Apr 24, 2024
        Ngo13 and RunningMan like this.
    6. Ngo13
      Ngo13
      How do you get past the fear of worsening without living as a hermit in complete isolation? It seems everyone gets worse over time.
      1. ECP, Juliane, gameover and 3 others like this.
      2. View previous comments...
      3. Juliane
        Juliane
        The fear of worsening is completely rational. So I am not sure we should get past it?
        Apr 1, 2024
        ECP, Pinhead and RunningMan like this.
      4. ECP
        ECP
        I'm a tarot reader, and when I did a reading for myself on that exact same question, I drew The Hermit and The Nine of Swords and the Two of Pentacles. The Hermit is a card about staying home and isolating from others so you can rest and heal and do research. The Nine of Swords, however, is a card about insomnia and non-productive rumination.
        Apr 24, 2024
        Ngo13 likes this.
      5. ECP
        ECP
        The Two of Pentacles is about staying balanced, whether financially, physically, mentally, or emotionally.

        I think the overall message of these three cards is to find a workable balance between extreme caution and extreme anxiety. Yes, isolate yourself and protect your ears when necessary, but don't paralyze yourself with excessive fear and rumination. Find the balance that works for YOU.
        Apr 24, 2024
        Ngo13 likes this.
    7. Ngo13
      Ngo13
      Trying to stay off but my update is I'm 5 mo pregnant &very excited. I don't want to put my life on pause in case I worsen& regret in future
      1. Jon R., ECP, Jenny_S and 8 others like this.
      2. View previous comments...
      3. MadeleineHope
        MadeleineHope
        @Ngo13 I think the LDN is definitely worth a try when the time is right for you, especially given its relatively minimal side effect profile. It definitely doesn't take away the sensation fully for me, but it reduces it & makes it more of a numbness rather than a burning.
        Mar 13, 2024
        Ngo13 likes this.
      4. MadeleineHope
        MadeleineHope
        @Ngo13 I sincerely hope it is merely a 'not yet quite healing' thing or a central sensitization thing! Have you consumed any content on central sensitization? I'm currently quite enjoying Alan Gordon's podcast 'Tell Me About Your Pain.' The free Curable educational lectures are helpful as well.
        Mar 13, 2024
        Ngo13 likes this.
      5. ECP
        ECP
        Congratulations!!!
        Apr 24, 2024
        Ngo13 likes this.
    8. Juliane
      Juliane
      Hope you are doing OK <3
      1. Ngo13, BB23, gameover and 2 others like this.
      2. Ngo13
        Ngo13
        Thank you. I've been trying to take a break from this forum and it definitely helped my mental state. I still check from time to time but try to stick to success stories and research news.
        Jan 22, 2024
        Juliane likes this.
      3. Ngo13
        Ngo13
        Hope you are doing better as well @Juliane
        Jan 22, 2024
        Juliane likes this.
    9. GG_Ear
      GG_Ear
      Hi Ngo13, what did you do to reduce pain? Hope all is well. Do you still have to wear earmuffs around your son? Thankyou.
      1. Ngo13
        Ngo13
        I wear my custom plugs around my son most of the time. This is mostly preventive in case of a sudden shrill scream or cry, as well as eases my anxiety as my TTTS is particularly triggered by him. Reducing pain for me has been time and I have found some success with antiinflammatory supplements like ALA and NAC. I believe my pain stems from TTTS and associated muscle inflammation.
        Jan 22, 2024
    10. Ngo13
      Ngo13
      Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a physical problem with my ears (TTTS) now
      1. Juliane, ZFire, tpj and 1 other person like this.
      2. ZFire
        ZFire
        What kind of ear pain are we talking about? burning and stabbing pains triggered by noise around you?

        Glad to hear you recovered. Sounds scary.
        Sep 12, 2023
      3. Ngo13
        Ngo13
        @ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by noise exactly - only by TTTS movement (which is triggered by noise, lol) but especially talking, chewing, turning neck, etc. I think it was the movement of my eardrum or those muscles.
        Sep 12, 2023
        ZFire likes this.
      4. Ngo13
        Ngo13
        @ZFire Urgent care doc said my eardrums were bulging but no infection on 9/1. Still having more difficulty equalizing pressure when driving.

        It was not fun and brought lots of panic for sure.
        Sep 12, 2023
        ZFire likes this.
    11. Ngo13
      Ngo13
      Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN & gave me meds. Might help TTTS. No change in T
      1. Juliane likes this.
    12. Ngo13
      Ngo13
      I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from jaw/neck movement and TTTS thump then sound
    13. Ngo13
      Ngo13
      It's my birthday and I'm pretty sure I got noaxacusis. No trigger for it except maybe a tympanometry test a few days prior. I can't do this
      1. aab and 4alien2 like this.
      2. View previous comments...
      3. Ngo13
        Ngo13
        @RunningMan sleep was better, but no sleep again last night. I stopped the melatonin but seem to still have one sleepless night a week.
        Aug 29, 2023
        RunningMan likes this.
      4. ECP
        ECP
        I hope you feel better soon and that your birthday still has moments of joy to make up for this.
        Aug 29, 2023
        Ngo13 likes this.
      5. Ngo13
        Ngo13
        I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope it heals quickly. Stupid ENT. Need to get TTTS under control
        Aug 31, 2023
    14. Ngo13
      Ngo13
      Another audiology appointment, another time of being told my hearing and ears are perfect. Why can't my brain get that message!
      1. gameover likes this.
    15. Juliane
      Juliane
      Thinking of you!
      1. Joe Cuber likes this.
      2. Ngo13
        Ngo13
        Thank you. Had a decent weekend in spite of horrible T but my strength to pretend to be ok comes in much shorter bursts now. Really bad today. Hope you are doing better than me!
        Aug 21, 2023
        Juliane likes this.
      3. Juliane
        Juliane
        @Ngo13 My heart breaks for you ❤️ I am in a similar place
        Aug 21, 2023
    16. Ngo13
      Ngo13
      I'm in a bottomless pit of despair. No one to talk to. Therapist thinks I need antidepressant but too afraid to risk tinnitus worsening.
      1. gameover likes this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I am right there with you today.
        Aug 17, 2023
        ECP likes this.
      3. Mo8409
        Mo8409
        It's a catch 22. You could always try the very lowest dose and test the waters. If it doesn't work out then you know.
        Aug 17, 2023
        SarahMLFlemmer and ECP like this.
      4. Juliane
        Juliane
        Very sad to hear that. Things can turn around for you. I understand your concern about ADs. They do make some people worse while they really help others. So tough to decide while being depressed. Is there anything (natural) that helps your mood a bit? Walks, swimming? Seeing a friend? Perhaps try that first and then decide? Big hug!
        Aug 17, 2023
        SarahMLFlemmer likes this.
    17. Ngo13
      Ngo13
      We were supposed to be trying for 2nd child now. All I ever wanted. Waiting due to T & marriage issues. Feel like my life was stolen from me
      1. SilverFox, DeanD and Juliane like this.
      2. Juliane
        Juliane
        So sorry.
        Aug 14, 2023
        Ngo13 likes this.
      3. SarahMLFlemmer
        SarahMLFlemmer
        Oh, Ngo13. I'm so sorry. You will get there again! I believe it!
        Aug 14, 2023
        Ngo13 likes this.
    18. Ngo13
      Ngo13
      All I was doing was holding & caring for my child like a good mom should when the accident happened where I got T. I don't understand.
      1. SarahMLFlemmer and Juliane like this.
      2. Juliane
        Juliane
        It is all very illogical. I don't understand any of this either.
        Aug 14, 2023
        Ngo13 and ECP like this.
      3. ECP
        ECP
        I don't understand it either. You absolutely deserve another chance to recover, and it may still come.
        Aug 15, 2023
        Ngo13 and Juliane like this.
    19. Ngo13
      Ngo13
      Depressed when I see so many stories of people recovering after one-off events. What made me so unlucky? Why didn't I get another chance?
      1. Juliane
        Juliane
        Your chance can still come. Nothing is too late.
        Aug 14, 2023
        ECP likes this.
    20. Ngo13
      Ngo13
      I've been trying so very hard to be hopeful. I just want some relief. Anything. Been trying everything no help. I can't live my life w this
      1. Juliane and SilverFox like this.
    21. Ngo13
      Ngo13
      Day 2 of no sleep. Seems to be the norm for me now. Ringing has been gradually getting worse the last few months for no reason.
      1. Juliane
        Juliane
        ❤️
        Aug 14, 2023
        Ngo13 likes this.
      2. RunningMan
        RunningMan
        Sorry to hear you're going through this. I had nights in the early months, sometimes back to back with no sleep. It was tough but did get better to where I would at least get few hours of broken sleep. I still struggle and don't get enough, though. Hopefully, yours will improve faster and better than mine has.
        Aug 14, 2023
        Ngo13 likes this.
    22. Ngo13
      Ngo13
      And no one will want someone who has a young kid and ear problems. Just lots of tears. Sorry for the vent but helps to write it out
      1. ECP
        ECP
        I'm so sorry. I wish your hubby could show a little more compassion right now. You've gone through so much this past year. Even without T and H, it's very stressful for a couple to raise their first child.
        Aug 12, 2023
        Ngo13, tpj and MadeleineHope like this.
      2. Guywithapug
        Guywithapug
        Vent away :) I'm sorry about your current situation, hopefully you have a strong support circle to help you through.
        Aug 12, 2023
        ECP, Ngo13 and tpj like this.
      3. Ngo13
        Ngo13
        Thanks everyone. Unfortunately I'm realizing I'm very much alone in my suffering.
        Aug 14, 2023
        ECP likes this.
    23. Ngo13
      Ngo13
      Yes maybe the probs were already there but were manageable before. I feel very unloved. I honestly don't know if we will make it.
      1. haha ear go eeee likes this.
      2. ECP
        ECP
        Are you and your husband open to marriage counseling? Just a thought.
        Aug 12, 2023
      3. Ngo13
        Ngo13
        @ECP we tried but counselor said we weren't good candidates due to needing to work through our own personal issues first :( hubby just started therapy, I've been in for a year
        Aug 14, 2023
      4. ECP
        ECP
        Having individual therapy is still better than nothing. I'll keep you in my thoughts and hope that the two of you can come to an understanding soon, with or without the aid of a marriage counselor.
        Aug 15, 2023
    24. Ngo13
      Ngo13
      T has changed my whole life. I wish I got it when I was old and at least got through the child rearing years.
      1. SilverFox, Utdmad89, Juliane and 2 others like this.
      2. scared8
        scared8
        @Ngo13 So sorry to hear you’re going through this. Please know that this is NOT your fault.
        Aug 12, 2023
        Ngo13 likes this.
      3. Ngo13
        Ngo13
        Thank you @scared8. Let's hope for better days for us all soon
        Aug 14, 2023
    25. Ngo13
      Ngo13
      Anxious, easily overwhelmed, pessimistic, etc. Used to be a big go getter and didn't require much support. Now I'm "asking for too much"
      1. haha ear go eeee likes this.
      2. Juliane
        Juliane
        Of course you are! You are going through trauma. All normal reactions!!
        Aug 14, 2023
    26. Ngo13
      Ngo13
      Could use a hug tonight. My T was the catalyst for destroying my marriage. Husband says he doesn't like the person I've become
      1. haha ear go eeee likes this.
      2. View previous comments...
      3. MadeleineHope
        MadeleineHope
        I sincerely hope that however the relationship between you & your husband unfolds, you remember that you were/are not to blame. Sending much love ❤️
        Aug 12, 2023
        Ngo13 and ECP like this.
      4. Ngo13
        Ngo13
        Thanks for the kind words. Helps me feel a little less alone.
        Aug 14, 2023
        MadeleineHope and Joe Cuber like this.
      5. Juliane
        Juliane
        So sad to hear that. I know from experience how the people close to you can behave in unimaginable ways when you need them the most. I don't know why. I hope you know that nothing is your fault. I mean, of course we change for the worse when our lives are being sabotaged by torturous symptoms! Big hug ❤️
        Aug 14, 2023
        Ngo13 likes this.
    27. flutter21
      flutter21
      Do you still experience ttts?
      1. Ngo13
        Ngo13
        Yes I do
        Aug 11, 2023
    28. MadeleineHope
      MadeleineHope
      Hey, just wondering how your doctor diagnosed the fluid in your middle ear.... did they use a simple otoscope or did you have tympanometry done?
      1. Ngo13
        Ngo13
        They looked in my ear and shined a light.
        Aug 8, 2023
        MadeleineHope likes this.
    29. Ellaenchanted868
      Ellaenchanted868
      hi, what were ur initial symptoms of H and how long did the onset take?
      1. View previous comments...
      2. Ngo13
        Ngo13
        Honestly, time is the only thing that really helped. I protected my ears around uncomfortable sounds and gradually stopped protecting so much as I felt more comfortable.
        Aug 8, 2023
      3. Ellaenchanted868
        Ellaenchanted868
        i'm happy to hear that! yeah definitely think i have TTTS the way u described it. does TTTS always come with h? i'm still going to protect myself regardless of it's H or anxiety
        Aug 8, 2023
      4. Ngo13
        Ngo13
        @Ellaenchanted868 no TTTS doesn't always come with H. It's actually really rare. I would definitely protect when you are uncomfortable, and if you can use natural sound enrichment as much as possible like being outside
        Aug 11, 2023
    30. Ngo13
      Ngo13
      My ears are loud today, the new tone from a few months ago hasn't faded yet but I don't feel like crying over it so I guess that's a win?
      1. SarahMLFlemmer likes this.
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  • About

    Tinnitus Since:
    01/2022
    Cause of Tinnitus:
    Baby scream (acoustic trauma)