“Tinnitus Truths”

.......er.....I’ve heard about your place OUT.....
surely it can’t be that bad......?

 

Bahahaha Do you speak because of experience Jaz!???
Always nice to stop by and say hi Jaz...great stuff here.

{{{Big Hug}}}}

 

I've seen this as well. I was first alerted to some of the "fickle nature" of TT participants when I read THIS POST by @Zimichael. I was new to the forum when I first read it, and didn't quite know what to think about it, or whether it was true. But I've since learned that what he had to say about some of the "unresponsive" people on this forum was pretty accurate. -- I try to think in terms of unresponsive, instead of ungrateful.

I've had to adjust my expectations accordingly. Sadly, I find myself continuing to lower my expectations, to the point where I often wonder why I (and others on this forum) even try to offer support anymore. Many recipients don't acknowedge it, or even seem to appreciate it (though not all!). Worse yet, other members seem to troll this site, looking for opportunities to snipe at somebody else, just for the sake of--I really don't even know what for. Maybe just to vent, or perhaps to act superior so they can try to reclaim a sense of control over their lives.

Perhaps much of this is just "the nature of the beast". A condition so debilitating (and dehumanizing) that people forget they're on a forum with other human beings hurting as much as they are, and who deserve acknowledgement just as much as they do. But it often seems all they can think of are themselves, and can't seem to move outside the tiny circle they've created for themselves. -- Though I can empathize with their "paralysis", as I was not very functional in the beginning of my own sojourn.

So I agree with you about @Jazzer's contributions. I appreciate them as well, and usually look at them as a breath of fresh air, and a respite from some of the ingratitude that often fills this forum. His thoughts and musings (and humor) often touch on how to again expand the tiny circles we've been forced into. And who can't use a few more ideas on that count??? That perhaps may be more important than anything else. Learning how to reclaim our sense of calm and self-empowerment, and not take our struggles out on those around us.

 

Dear OUT - thank you so much for the visit,
you’re good for me, do you know that.
I enjoy doing this thread.
No science, no research - just an arty place where hopefully souls can meet.
(Don’t mind me - I’m an incurable romantic.) x

 

@Lane - I am so pleased that you see some value in this thread.
Sometimes when I am out and about, driving, shopping, doing this and that, maybe in plenty of noise - I think to myself - it’s okay - when I get back I can talk to some nice friendly people.

Our greatest value is in our shared humanity.

Best
Dave x
Jazzer

 

@Daniel Lion @Lane @OnceUponaTime @TuxedoCat and @Jazzer

This morning I had severe pain in my entire mid section - front and back. Cause in such a large area could be so many things. So I decided to call my wife home from work and have her drive me to the trauma hospital where I was once a service partner. Service partners are mostly therapists of different sorts, but two or three of us assisted doctors on each shift and did research.

I had lots of tests, but nothing was found. Here come the facial expressions that I must have became nuts since getting tinnitus. Most alarming was that I needed medication for pain. I decided on a medium amount of Toradol placed into a IV. Big mistake, but the doctor said that only aspirin can increase tinnitus.

Several of the staff today didn't know what tinnitus was. I had my noise blocking headphones when I went for a cat scan. They said you can't use them and I said yes I will and I did. I kid you not, one nurse thought tinnitus was flat feet problems. If the word hyperacusis is mentioned, just about all the staff will get a dumb look on their faces.

AND of course my luck was on the day of the monthly fire drill and then there was a code silver - someone with a lethal weapon.

 

@Greg Sacramento Oh no! So sorry you had to go through all of that today Greg.
You are so right....no one knows what tinnitus is and forget about hyperacusis...
We really need to push for more awareness.

How are you doing now??? Did the pain killers made your tinnitus worst? Or was it the scan or the fire drill??
Dear Lord, "When it rains, it pours."

I hope you are ok, please report back to us.
In the mean time, I wish you a good night sleep.

Once

 

So true.

I got a spike within minutes of the IV pain med and I still have it. As my luck would have it, the doctor just started talking to me when the fire drill started so I didn't place my noise blockers on.

Using 5 oz of Dye Free Magnesium Citrate oral (liquid) for three days. That seemed to knock my med spikes down before.

 

Hey @Greg Sacramento -- I'm really sorry to hear what a difficult day you've been through, and likely still going through. I do hope things can settle down for you, and that this evening and tomorrow may bring at least somewhat of a respite for you. All the Best...

 

Of course! Isn't always like that for us with this darn tinnitus!? Never fails...
Same thing happened to me before, and I, trying to be polite, didn't cover my ears and got a spike! Won't do that mistake twice for sure!!! (The spike settled, thank goodness)

Sweet dreams Greg, get some rest.
Tomorrow is another day.
Once

 

Good Grief! Just when I thought things could not get any worse for you, I read this.

Flat feet, eh? I'd trade tinnitus any day for flat feet.

Hope you get some rest, Greg. We are thinking about you- please let us know how you are doing.

TC

 

@Greg Sacramento, @OnceUponaTime,
@Lane, @Daniel Lion, @TuxedoCat
Greg - my dearest buddy - how hateful these conditions are, and I am only aware of just some of your other complications.
My heart bleeds for you buddy, and for all of us.
Ordinary people literally have no idea just how heroic our determination to even survive is.

So often it seems to me that current seemingly haphazard circumstances actually conspire to make our situations ten times worse.

How could life turn out so badly for us?
Why?
All we are left with is noise, pain, and our stoical determination to somehow survive by coping.
It is very hard to think of any consolations for us with this predicament, but one is our obvious love and care for each other.
Amazing really.
In actuality, those of us speaking here have never met - and yet, in the truest and deepest sense of the word, we have.
We share a very reluctant membership of this unfortunate club, but I would not want to be here without you lovely people.
Dave x

 

@Jazzer and all or most of us.

Just a vent as there just to much to consider to either justify or not in awareness of our conditions. So I will just highlight a few things. My spike and tinnitus at this moment is like a fire alarm so I will be short and incomplete of topic discussion that many of us have discussed about our experiences.

I'll speak for myself with high severe hearing loss and very sensitive hearing/ears. Going into this ER trauma medical center was a noisy situation where I needed to go and had no control with noise blocking headphones. I had worked in this place 1o years before so I knew what I was up against and the stupidity of medical workers not understanding tinnitus and hyperacusis. I didn't expect most to understand my conditions, but they should had been trained in knowing that tinnitus and hyperacusis is a disability when told by a patient. For them who are told why would you need noise blocking headphones for a cat scan with tinnitus from the radiology tech.

I suppose that I remember before I had tinnitus about a few with concerning tinnitus (average of one a week) who entered the hospital. There was non concern and lack of understanding of those with tinnitus. Maybe people like me need to wear a shirt or hoodie that says I am sensitive to loud sounds.

We really do need more condition awareness of tinnitus. More practicing health providers to truly investigate physical tinnitus and use treatment from research studies. What good is it to have thousands of professional cause and treatment studies for physical tinnitus, hyperacusis and sometimes pulse tinnitus when they just waste away in medical journals or on the net.

The aspects of hearing loss with tinnitus appears to be our genes and to brain functions and that's an area where gene study therapies are needed. Placing aside hearing loss tinnitus as discussion, the medical world should at least be aware on what tinnitus is and the concerns when one says that they have loss hearing tinnitus. And not to think that we are all deaf and speak louder into our ears or that loud noises won't brother us.

 

I am so very sorry to hear this, @Greg Sacramento.

 

I could not agree with you more. Let's hope that real change happens soon, we need to be heard and understood.

I hope you are doing better this morning, Greg.

 

@Greg Sacramento I hope you are better today Greg.

 

Folks - this is ‘Percival’ my Pussycat super star.
You may have seen him with his brother ‘TimTom’ and sister ‘Annie’ on my threads
‘Pussycat Therapy’ and More Pussycat Therapy.’
Here he is demonstrating this morning’s new Yoga position, simply called ‘Meditation.’

 

I met this guy while walking around Amersfoort today - and had to agree that we are all unique - there is only one of any of us - thank goodness.

That ‘Normal’ sign may be stretching things a bit?

 

I woke up one morning with severe Tinnitus.
I couldn’t get off the couch for days.
I literally wished to die.
My silence was gone for ever.
My music was also gone for ever.
My life, as I knew it, was gone for ever.
My beautiful pussycats knew that
something was wrong.
They started to love me better.
I have needed to find other things to live for.