16 kHz Hearing Loss — Intratympanic Steroids or Stem Cells?

Yeah, she did put herself and the baby in an unsafe situation too. People just don't understand. But we have to put ourselves and our own best interest first. If someone offered me free tickets to go to a concert with him or her I would probably say no. I have a problem with saying no to people, but I'm getting better at it. I was in a situation like that today and I said no, I will not go with you to that loud place, I currently have a problem with my hearing. If they are your true friends they will understand. I really hate it that it has come to this, but I am trying really hard not to avoid hanging out with people just because of my condition. At the moment I have to avoid loud places.

 

What kind of IT injections? You mean steroids? I'm not sure what you mean by "acting now" but don't we all go through this mourning process? It's like having lost someone dear to us. I mean the realization that we have lost hearing and it's not coming back. That's tough! I have a -45 dB loss at about 1 kHz in my left ear, and it's no fun either. Everything sounds awful in that ear now. Plus all these new noises in that ear and in my head.

I see that your tinnitus started a very long time ago. So it's not an option for you now, but they do say that intratympanic (IT) steroid injections are an effective first line treatment of sudden hearing loss of up to -50 dB (if you a have a greater loss than that then oral steroids are better), it's just something I've read on John Hopkins website. I don't think this is a common practice, still, in the world today. It's probably more common in the US. In other places, they just tell you to play the waiting and resting game. I for one would have liked to get some steroids.

 

What happens if you sneeze? Do they have to do it again? I'm just curious... By the way, IT injections is how Frequency Tx will be be administering FX-322. It's a very common mode of access to the middle ear and now the inner ear in the "developed" part of the world. Hopefully this practice will spread throughout the world. Intratympanic injections of steroids is unheard of in Sweden, and I'm pretty sure it's very uncommon in all of Europe. Changing medical practice is difficult, even when evidence of efficacy is there in front of your nose... it's a sad state of affairs. I wish we had access to something like IT steroid injections at clinics over here.

So all these things you list, these are all possible consequences of IT administration of a drug? I have honestly not heard or read much about adverse effects of IT injections of any kind. Even Frequency Tx talks about patient's tolerance to the drug, there was not much mention about their tolerance to the method of administration.

I see your tinnitus started in 2001. Why are you interested in IT steroid injections now? To prevent further damage or decline?