Acoustic Neuroma

Discussion in 'Support' started by BobDigi, Jun 9, 2014.

    1. BobDigi
      Kick ass

      BobDigi Member

      Location:
      UK
      Tinnitus Since:
      5.6.14
      Cause of Tinnitus:
      Loud noise
      34, tinnitus for a week in left ear, no fluid or wax, no infection, doctor today suspects acoustic neuroma, having MRI soon.

      I wondered if anyone here has had an acoustic neuroma, and what their outcome was?

      If i have it, and i have an operation, will i lose the tinnitus and hearing, or just hearing?

      I've got lots of questiobs, but no one to give me any answers.

      Thanks, Bob.
       
    2. attheedgeofscience
      No Mood

      attheedgeofscience Member Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      Hhmmm... If the doctor suspects that, then he/she should indicate why that is. These tumours are rare.

      An operation for acoustic neuroma - and the outcome - would need to be discussed on a case-by-case basis.

      Unless the doctor specifically indicated a likelihood of acoustic neuroma, then I would not be worried in your case.
       
      • Informative Informative x 1
    3. awbw8
      Balanced

      awbw8 Member Benefactor

      Tinnitus Since:
      04/2013
      Hi Bob,

      I'm sorry you're experiencing tinnitus, that is no fun. It could be caused by many things though, I wouldn't jump to the acoustic neuroma conclusion too soon. The best thing you can do right now is try to relax and continue getting the tests your doctor recommends. I've heard @Dr. Nagler say it before, but I don't think coming here for medical advice (i.e. will I lose my hearing and tinnitus or just hearing if I have surgery) is the best idea - no one here can answer that for you because it has so much to do with your specific body, history and circumstances.

      The best person to ask these questions is your doctor :)

      Good luck and try not to worry, you don't even know if you have one yet!
       
    4. AUTHOR
      AUTHOR
      BobDigi
      Kick ass

      BobDigi Member

      Location:
      UK
      Tinnitus Since:
      5.6.14
      Cause of Tinnitus:
      Loud noise
      Yeah i know. Thanks. I must admit i've kind of resigned myself to the fact i've got it. Must be more positive and wait for results.
       
      • Hug Hug x 1
    5. Cazb78

      Cazb78 Member

      Location:
      UK
      Tinnitus Since:
      10/2008
      Cause of Tinnitus:
      No idea - yet!
      How did you get on BOb?
       
    6. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      temporarily banished from this plane of existence.
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      There is a whole forum just for this condition, anforum I think, Google it. Good luck.

      The president of my company had one of these and had it operated, he's doing well.
       
    7. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      I second what others have said: this is a rare condition, so don't be too sure that this is your problem. Hopefully, your test results will be back soon and all will be well.
       
    8. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Acoustic nuroma is a very slow growing tumour on your vestibulocochlear nerve, and can go years and years with little growth and not cancerous.
      A MRI is usually done to keep an eye on it and no treatment done unless it is needed.
      Try not to worry and see what a MRI shows......lots of love glynis
       
      • Like Like x 2
    9. Skip G

      Skip G Member

      Tinnitus Since:
      08/2010
      Cause of Tinnitus:
      acoustic neuroma, right side deaf
      A sure symptom is pressure in your ear along with tinnitus and slight hearing loss. I had this followed by an MRI which confirmed acoustic neuroma. Mine was small and was recommended for watch and wait as these rare tumors grow very slowly. Unfortunately mine doubled in a year and I lost 80% of hearing. There are numerous treatment options and each person is different. The best place to go for the operation solution is the House Clinic in California. I consulted with them but it was 3000 miles away and cost prohibitive. I would suggest joining the ANA (Acoustic Neuroma Association), they are the premier site for AN patients.
       

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