Botox Might Help You — It Helped Me

Discussion in 'Success Stories' started by Botoxgirl, Jan 4, 2019.

    1. Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      Hi, all. I've had tinnitus since 1990. This past July I had a flare up of tinnitus and hyperacusis that was so severe I couldn't walk through the streets because passing cars, buses and motorcycles were impossibly loud. People all around me were going about their business, completely undisturbed by the noise, so I knew it was just me. I burst into tears in public. I was thinking: if it stayed like this, I'd never be able to concentrate again; if I couldn't concentrate, I'd lose my job. If I lost my job... well, you get the idea. That was literally the worst day of my life.

      I started doing hours and hours of research. (I went to an ENT specialist, by the way, and he asked me: "What can I tell you that you don't already know?" Gee, thanks, doc!) Tinnitus forums offered me a LOT of help, so I'd like to thank everyone who put up information over the years. But all the info was scattered here and there, and I had to piece them together bit by bit, over the course of months. Around October, I saw somewhere that there is a 50% correlation between tinnitus and temporomandibular disorder. I have that too, but so mild it's never bothered me. I read that TMD can be helped with botox. All of you know that a drowning man grasps at straws, so I grasped at this. I found a dentist who specializes in treating TMD with botox, and told him my thoughts on the tinnitus connection. He agreed to treat me. I'm not sure this is important, but he told me he uses only the most expensive variety. So I have no idea whether other varieties are appropriate for this.

      The dentist gave me 5 injections in my lower left jaw, 5 in the lower right, then 4 various places around my left ear, and 4 around my right. All these parts of your face are interconnected with muscles and nerves. I had my treatment at 10am, and by 6pm my tinnitus had decreased so much that if it had stayed at that level for the rest of my life, I would have happily accepted that. It has now been one week, and my tinnitus has stayed very low. It used to be very high in the mornings; now it's the same all day, and I can ignore it pretty easily. The dentist said that it takes at least a week to fully take effect, so I might still see further improvement. Botox usually lasts 3 months. It will be interesting to see what my tinnitus is like three months from now. Be warned that it's very expensive. I have insurance, but this dentist was out of network, so my initial consultation was $500 and the treatment itself was $1200. Insurance will only pay for some of it. On the other hand, it has worked all week, and I'm beginning to feel confident that it will work longer, so it was worth every penny. Remember, I had this for 28 years, and this is the first time I've had this much quiet for this prolonged a period. I'd forgotten what quiet was like.

      PLEASE NOTE THIS MIGHT NOT WORK FOR EVERYONE. I'll give you some details about my tinnitus characteristics and if they match up with yours, botox might help you too.

      1) I have temporomandibular disorder (clicking of the jaw). It's worse on my left side, and so was my tinnitus, which is a clue they could be related.

      2) Sometimes when my jaw clicks, the sound of my tinnitus changes.

      3) Several years ago, when I had to have a filling and the dentist numbed the tooth with lidocaine, my tinnitus went away for two days.

      4) When I had to have exploratory surgery, I was given propofol, and that also suppressed my tinnitus for two days.

      5) If I press my fingers to the side of my head, my tinnitus changes.

      6) Acupuncture has worked for me, though very short term. It has never lasted more than 48 hours. But if acupuncture can suppress your tinnitus for even one hour, that proves that your tinnitus can be suppressed. Not every acupuncturist can do this! I've been to some useless acupuncturists. If you're near a Chinatown, look for recommendations on Yelp.

      7) Sometimes, just for 2-3 seconds, my tinnitus would go away, and when it did, it felt like a muscle in my ear was contracting. I don't know if I have muscles in my ears. Just saying what it felt like. If your tinnitus has any of these characteristics, it might be worth it to look into botox.

      Again, I want to thank everyone who gave me so many useful clues to look into. All of you taught me so much more than any doctor ever did. There's so much about tinnitus that sucks, including that most people don't believe you have it and have no idea how deeply it impacts every aspect of your life.
       
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    2. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      That's great news! I really, truly hope that you'll get better in time.

      I am going through what seems to be T that reacts to certain sounds, and it seems that Stapedial Myoclonus might be the issue. I'm also having neck pain that seems to affect my jaw as well. If you've really done a lot of research, do you think you might be able to confirm if I am going through something similar if I were to link my recent threads?
       
    3. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      Very interesting. My hyperacusis does not allow me to walk the streets except with earmuff and plugs, and not busy streets even then. I have an appointment on Monday with a neurologist, and their clinic does Botox injections so I am planning to bring this up. I also have TMD. And fentanyl (propofol) gave me silence for a while a year ago.

      My question is, did your hyperacusis decrease from the Botox injection as well?
       
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    4. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      This is interesting. Was it fentanyl or propofol that gave you silence. They are not the same thing.
       
    5. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      It was Fentanyl. But I think that is old news...?
       
    6. AUTHOR
      AUTHOR
      Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      In reply to Johan_L who asked if my hyperacusis improved after botox: I'm not sure. Weeks of acupuncture treatments (2 or 3 times a week for more than 3 months) brought my hyperacusis down significantly before I had the botox. This morning I walked past a construction site which, only a couple of months ago, I went out of my way to avoid. Today it was still unpleasant, but it was entirely bearable. Note I still wear ear plugs when I walk through the streets, as I never know what's going to sneak up on me - a sudden siren, a very loud truck horn, etc. Today ear plugs were sufficient to protect me. On the day I described in my initial post, I was wearing both head phones and ear plugs, and still found myself in tears.
       
    7. AUTHOR
      AUTHOR
      Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      1/16/19 update on my condition

      Hi, all.

      Follow up on the 12/28/18 botox-for-TMD treatment that significantly helped my T.

      I had a small setback on the 7th day. I did a back stretch that day that involved making my head the lowest part of my body, instead of my feet. After about 5 minutes, when I came up from the stretch, my near-silence was gone, and my tinnitus had returned. It wasn't HORRIBLE, but it was back. On 1/13/19 I visited the acupuncturist again - first time in almost a month, which is the longest I've gone without acu. since my June flare-up. I told her how well the botox treatment had worked for me, and asked her if she could insert the needles as deeply as the dentist had to see if needles alone, without botox, could have the same effect. She politely refused, saying that was not the way she had been trained. I was disappointed, but I get it. She did the responsible thing - she had no way of knowing what the outcome would be, so she treated me in the manner she knew would be safe.

      She also mentioned, based on what I told her, that my T might be "positional", and might relate to "crystals" in my ears. I have since done a little research on that, and while I believe I might very well have crystals in my ears, it's hard to believe my T is primarily positional. It's also hard to believe that the good work of the botox (or the depth of the needles), could be undone as easily as that. Also, crystals seem to relate to dizziness/vertigo, and I don't suffer from that.

      My T was audible when I lay down for that day's acu. treatment, and hadn't changed when I got up. (It can take more than a day to take effect.) Yesterday - two days later - my T got mercifully quiet again. I could still hear it, but it had moved from foreground noise to background noise. I can't be sure whether that means the botox is still working, but simply can't be expected to work in a linear manner (i.e., with no setbacks at all), or whether the acu. treatment functioned like a booster for the botox.

      A friend of mine suggested I look into "dry needling", which is, in effect, injections without serum. Turns out there is dry needling for TMD, and the dentist who treated me with botox can also treat me with dry needling. Physical therapists also do dry needling, so if you're interested, it would be worth finding out if they are less expensive, or covered by insurance. I haven't looked into that yet. And since botox is dreadfully expensive, it would be great if dry needling worked just as well as injections with serum.

      This morning I woke with noise (I almost always do), but 10 minutes under running shower water brought it down ("residual inhibition"?), and it's still down, several hours later, as I write this. I can't help but think that either the botox or the deep needles are stimulating damaged nerves to do their job better. Before the botox treatment, residual inhibition would probably not have lasted this long.

      I will at some point do the dry needling - hopefully in the same injection sites. Right now, I'm wondering when it's best to do that - before the botox has run its (usually) 3 month course, to act as a booster? Not till after the three months are over? As soon as my T gets loud again? I'm mulling all of this over, because there is no predetermined protocol.
       
    8. Chad Lawton

      Chad Lawton Member

      Tinnitus Since:
      2/19/18
      Cause of Tinnitus:
      Possible Ototoxicity + Noise Exposure
      I would not recommend botox to anyone. It is a neurotoxin, it is literally poison for your nerves. Look up botox and hearing loss. Lots of people have experienced hearing loss and tinnitus from using it.
       
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    9. jacob21
      Amazed

      jacob21 Member Benefactor

      Tinnitus Since:
      2008 > 2009 "cured" >2nd onset June 2016
      Cause of Tinnitus:
      Noise Induce ( loud music )
    10. lis

      lis Member

      Tinnitus Since:
      severe 2020
      Cause of Tinnitus:
      acoustic trauma
      I received botox at a cosmetic clinic in the masseter (jaw muscles), 30-35 units each side for TMJ pain due to clenching at night from tinnitus stress. I woke up with shockingly reduced tinnitus the next day! I was astounded with some silent moments in the day. Before this, tinnitus was resistant to treatment as I had not found any changes or relief in SEVERE multi-tone ringing and distortions. Botox takes full effect after 10 days, so it can only get better from here.

      The paper linked above has impressive results! 14 out of 17 patients with disabling tinnitus saw improvement, with disappearance in 11! That's 82% improvement and 65% cured! The sites of injection were the temporals and masseter. Botox costs $9-$13 a unit at cosmetic offices.

      Tinnitus sedation after botulinum toxin injection into the manducator muscles

      https://doi.org/10.1016/j.neuchi.2018.05.010

      Introduction
      The treatment of bruxism by injection of the manducator muscles aims to reduce the tone of the temporals and masseters, requiring non-negligible amounts of botulinum toxin, accompanied by inevitable diffusion of the product. In a retrospective study carried out on a cohort of patients treated for bruxism, we observed remarkable efficacy of botulinum toxin in some of them with tinnitus, whatever the origin.

      Material and methods
      This is a retrospective study of 288 patients treated for bruxism in the same institution. All the patients were injected into the masseter and temporal muscles with botulinum toxin (Botox *: Allergan Pharmaceuticals, Westport, Ireland), the injected doses varying according to the intensity of the contractions observed between 30 and 100 U at the level of the masseter and between 10 and 50 U in the temporal muscle. The files were reviewed over a period of 2 years, between 2015 and 2016.

      Results
      Out of 288 files reviewed, 17 patients suffered from disabling tinnitus, resistant to any form of drug therapy. Fourteen saw their symptoms decrease (in 3 cases) or disappear completely (11 cases), with an effectiveness persisting at least until the following session (3 months).

      Discussion
      By their common innervation by the trigeminal nerve, neuromuscular dysfunction of the masticatory muscles could induce reflex hypertonicity of the muscles of the middle ear, as well as myoclonus of the palate resulting in tinnitus. Some of them could have a toxic origin, by excessive release of glutamate in the ear. N-methyl-D-aspartate (NMDA-Rs) receptors are located at each synapse of the auditory pathways, and are characterized by a slow response, with a long refractory period, after excitation by glutamate, allowing protection of the system in the event of a sound attack. An over-excitation beyond the possibilities of repair would be involved in the occurrence of hearing loss related to noise, presbycusis and the occurrence of tinnitus.

      Conclusion
      Our series is the first to demonstrate a possible effect, probably by inhibiting the release of glutamate, at the receptors of the inner ear. An open and prospective study, ideally multicenter, will be necessary to confirm the validity and the reproductive character of our results.
       
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    11. GBB

      GBB Member Hall of Fame

      Location:
      NYC
      Tinnitus Since:
      2016-2019 (Mild, Cured) 8/2020 (Severe)
      Cause of Tinnitus:
      Virus / Microsuction / Acoustic Trauma
      Do you know if your tinnitus was noise induced?
       
    12. Kimberley8

      Kimberley8 Member

      Tinnitus Since:
      3 weeks
      Cause of Tinnitus:
      TMJ? Unknown
      Hi lis,

      Was just wondering how you are going post Botox injections for your TMJ and tinnitus?
      it’s so great to hear you had improved so soon after having it, hope it continued for you.

      I’m in a similar situation with TMJ issues and some tinnitus, have extremely tight and sore muscles on right TMJ and right sided tinnitus, for few months so dentist who specialises in TMJ says Botox could be worth a try.

      Hope you are going well,
      Thanks,
      Kim
       
    13. KWC

      KWC Member

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Ear Infection/TMJ ??
      Interested as well. I have right ear tinnitus and right side TMJ since January. I have not tried Botox. Currently 11 weeks into splint therapy. Seems to help with TMJ but no tinnitus change.

      Ken
       
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    14. lis

      lis Member

      Tinnitus Since:
      severe 2020
      Cause of Tinnitus:
      acoustic trauma
      @KWC
      @Kimberley8

      The reduction was short lived for me; I was blasted with a fire alarm and the tones returned. However, keep in mind I only had one of the two areas treated in the paper, the masseters. I then happened to take magnesium citrate which eradicated the severe tones in my left ear! Both magnesium and botox reduce glutamate, so perhaps it was the synergistic effect. I plan to have the temporalis muscles injected soon to see if that will kill the remaining distortion as well as the mild ringing in the right ear.

      Are either of you planning to try this? Let me know how it goes!

      Full version of the paper:
      Nice Side Effect of the Bruxism Treatment by Botulinum Toxin: Stopping Tinnitus
      https://www.jscimedcentral.com/EarNose/earnose-3-1035.pdf

      Remark on musculoskeletal theory (aside from the neurological glutamate surge theory above):
      In a recent Daily Mail article, Dr. Martin Scurr highlights a case where he recommended that a patient try Botox to treat the unpleasant symptoms of bruxism. While the patient expressed the classic symptoms, he also complained of tinnitus (ringing in the ear).

      Dr. Scurr stated that tinnitus could be related to the jaw muscles since the trigeminal nerve in the head supplies part of the muscle system for jaw movement and the muscles in the middle ear, which might irritate the nerve from the repetitive jaw clenching, thereby affecting the middle ear.
       
    15. donotringatme

      donotringatme Member Benefactor

      Tinnitus Since:
      09/2020
      Cause of Tinnitus:
      ETD, TMD, CI
      I’m new to all this but from what I’ve read so far it seems to be a cause of muscles, movement and nerves. Masseter and temporal, TMJ movement and the trigeminal nerve. This is a situation that can and will get worse in time if left untreated so it would explain why people get progressively worse tinnitus or an improvement for a while when they receive therapy to those muscles and their jaw. TMJ and those muscles also affect the Eustachian tubes function without the need for a sinus issue.

      Weird stuff but we all know our faces change based on age and habits so I wonder how many have gotten somatic tinnitus which then escalated and for some induced permanent ear damage which then brought tinnitus to a whole new level.
       
    16. Kimberley8

      Kimberley8 Member

      Tinnitus Since:
      3 weeks
      Cause of Tinnitus:
      TMJ? Unknown
      Hi there, just wanted to post that I have had Botox injections done to my masseters muscles and my temporal muscles yesterday.

      There were several injections, but they were over very quickly and not very painful.
      Dentist who specialises in TMJ says may get some relief in 4 or 5 days but it takes about 2 weeks to really take effect, where he will assess tightness and symptoms and see if more units need to be injected.

      Had some short times yesterday and today where one of my lower humming tinnitus tones was reduced, so hoping this will continue to improve.

      Little bit sore/achy in jaw today, but no problems eating, smiling etc.
      It’s very early but will update on how I get on.

      Happy to answer questions as reading other people’s experience with this was very helpful. Wish everyone the best.

      Cheers Kim
       
    17. Travis Henry
      Cynical

      Travis Henry Member

      Location:
      Dallas,TX
      Tinnitus Since:
      10/2021
      Cause of Tinnitus:
      1 Moderna Vac, Noise and stress I guess, its killing me
      Anyone else had Botox done? I'm dying. Gotta find a doctor in Dallas area that does it.
       
    18. Uklawyer

      Uklawyer Member

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Medication - antidepressants
      @Travis Henry, this was mentioned to me today by a physio that treats TMJ. I am waiting to do an MRI to see about inflammation of jaw, but may look into this soon.
       
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