Botox Might Help You — It Helped Me

Discussion in 'Success Stories' started by Botoxgirl, Jan 4, 2019.

    1. Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      Hi, all. I've had tinnitus since 1990. This past July I had a flare up of tinnitus and hyperacusis that was so severe I couldn't walk through the streets because passing cars, buses and motorcycles were impossibly loud. People all around me were going about their business, completely undisturbed by the noise, so I knew it was just me. I burst into tears in public. I was thinking: if it stayed like this, I'd never be able to concentrate again; if I couldn't concentrate, I'd lose my job. If I lost my job... well, you get the idea. That was literally the worst day of my life.

      I started doing hours and hours of research. (I went to an ENT specialist, by the way, and he asked me: "What can I tell you that you don't already know?" Gee, thanks, doc!) Tinnitus forums offered me a LOT of help, so I'd like to thank everyone who put up information over the years. But all the info was scattered here and there, and I had to piece them together bit by bit, over the course of months. Around October, I saw somewhere that there is a 50% correlation between tinnitus and temporomandibular disorder. I have that too, but so mild it's never bothered me. I read that TMD can be helped with botox. All of you know that a drowning man grasps at straws, so I grasped at this. I found a dentist who specializes in treating TMD with botox, and told him my thoughts on the tinnitus connection. He agreed to treat me. I'm not sure this is important, but he told me he uses only the most expensive variety. So I have no idea whether other varieties are appropriate for this.
      The dentist gave me 5 injections in my lower left jaw, 5 in the lower right, then 4 various places around my left ear, and 4 around my right. All these parts of your face are interconnected with muscles and nerves. I had my treatment at 10am, and by 6pm my tinnitus had decreased so much that if it had stayed at that level for the rest of my life, I would have happily accepted that. It has now been one week, and my tinnitus has stayed very low. It used to be very high in the mornings; now it's the same all day, and I can ignore it pretty easily. The dentist said that it takes at least a week to fully take effect, so I might still see further improvement. Botox usually lasts 3 months. It will be interesting to see what my tinnitus is like three months from now. Be warned that it's very expensive. I have insurance, but this dentist was out of network, so my initial consultation was $500 and the treatment itself was $1200. Insurance will only pay for some of it. On the other hand, it has worked all week, and I'm beginning to feel confident that it will work longer, so it was worth every penny. Remember, I had this for 28 years, and this is the first time I've had this much quiet for this prolonged a period. I'd forgotten what quiet was like.

      PLEASE NOTE THIS MIGHT NOT WORK FOR EVERYONE. I'll give you some details about my tinnitus characteristics and if they match up with yours, botox might help you too.

      1) I have temporomandibular disorder (clicking of the jaw). It's worse on my left side, and so was my tinnitus, which is a clue they could be related.

      2) Sometimes when my jaw clicks, the sound of my tinnitus changes.

      3) Several years ago, when I had to have a filling and the dentist numbed the tooth with lidocaine, my tinnitus went away for two days.

      4) When I had to have exploratory surgery, I was given propofol, and that also suppressed my tinnitus for two days.

      5) If I press my fingers to the side of my head, my tinnitus changes.

      6) Acupuncture has worked for me, though very short term. It has never lasted more than 48 hours. But if acupuncture can suppress your tinnitus for even one hour, that proves that your tinnitus can be suppressed. Not every acupuncturist can do this! I've been to some useless acupuncturists. If you're near a Chinatown, look for recommendations on Yelp.

      7) Sometimes, just for 2-3 seconds, my tinnitus would go away, and when it did, it felt like a muscle in my ear was contracting. I don't know if I have muscles in my ears. Just saying what it felt like. If your tinnitus has any of these characteristics, it might be worth it to look into botox.

      Again, I want to thank everyone who gave me so many useful clues to look into. All of you taught me so much more than any doctor ever did. There's so much about tinnitus that sucks, including that most people don't believe you have it and have no idea how deeply it impacts every aspect of your life.
       
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    2. Hariz Nonis
      Loved

      Hariz Nonis Member

      Location:
      Singapore
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Unknown
      That's great news! I really, truly hope that you'll get better in time.

      I am going through what seems to be T that reacts to certain sounds, and it seems that Stapedial Myoclonus might be the issue. I'm also having neck pain that seems to affect my jaw as well. If you've really done a lot of research, do you think you might be able to confirm if I am going through something similar if I were to link my recent threads?
       
    3. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      Very interesting. My hyperacusis does not allow me to walk the streets except with earmuff and plugs, and not busy streets even then. I have an appointment on Monday with a neurologist, and their clinic does Botox injections so I am planning to bring this up. I also have TMD. And fentanyl (propofol) gave me silence for a while a year ago.

      My question is, did your hyperacusis decrease from the Botox injection as well?
       
      • Good Question Good Question x 1
    4. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      This is interesting. Was it fentanyl or propofol that gave you silence. They are not the same thing.
       
    5. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      It was Fentanyl. But I think that is old news...?
       
    6. AUTHOR
      AUTHOR
      Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      In reply to Johan_L who asked if my hyperacusis improved after botox: I'm not sure. Weeks of acupuncture treatments (2 or 3 times a week for more than 3 months) brought my hyperacusis down significantly before I had the botox. This morning I walked past a construction site which, only a couple of months ago, I went out of my way to avoid. Today it was still unpleasant, but it was entirely bearable. Note I still wear ear plugs when I walk through the streets, as I never know what's going to sneak up on me - a sudden siren, a very loud truck horn, etc. Today ear plugs were sufficient to protect me. On the day I described in my initial post, I was wearing both head phones and ear plugs, and still found myself in tears.
       
    7. AUTHOR
      AUTHOR
      Botoxgirl

      Botoxgirl Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      not sure - cold infection???
      1/16/19 update on my condition

      Hi, all.

      Follow up on the 12/28/18 botox-for-TMD treatment that significantly helped my T.

      I had a small setback on the 7th day. I did a back stretch that day that involved making my head the lowest part of my body, instead of my feet. After about 5 minutes, when I came up from the stretch, my near-silence was gone, and my tinnitus had returned. It wasn't HORRIBLE, but it was back. On 1/13/19 I visited the acupuncturist again - first time in almost a month, which is the longest I've gone without acu. since my June flare-up. I told her how well the botox treatment had worked for me, and asked her if she could insert the needles as deeply as the dentist had to see if needles alone, without botox, could have the same effect. She politely refused, saying that was not the way she had been trained. I was disappointed, but I get it. She did the responsible thing - she had no way of knowing what the outcome would be, so she treated me in the manner she knew would be safe.

      She also mentioned, based on what I told her, that my T might be "positional", and might relate to "crystals" in my ears. I have since done a little research on that, and while I believe I might very well have crystals in my ears, it's hard to believe my T is primarily positional. It's also hard to believe that the good work of the botox (or the depth of the needles), could be undone as easily as that. Also, crystals seem to relate to dizziness/vertigo, and I don't suffer from that.

      My T was audible when I lay down for that day's acu. treatment, and hadn't changed when I got up. (It can take more than a day to take effect.) Yesterday - two days later - my T got mercifully quiet again. I could still hear it, but it had moved from foreground noise to background noise. I can't be sure whether that means the botox is still working, but simply can't be expected to work in a linear manner (i.e., with no setbacks at all), or whether the acu. treatment functioned like a booster for the botox.

      A friend of mine suggested I look into "dry needling", which is, in effect, injections without serum. Turns out there is dry needling for TMD, and the dentist who treated me with botox can also treat me with dry needling. Physical therapists also do dry needling, so if you're interested, it would be worth finding out if they are less expensive, or covered by insurance. I haven't looked into that yet. And since botox is dreadfully expensive, it would be great if dry needling worked just as well as injections with serum.

      This morning I woke with noise (I almost always do), but 10 minutes under running shower water brought it down ("residual inhibition"?), and it's still down, several hours later, as I write this. I can't help but think that either the botox or the deep needles are stimulating damaged nerves to do their job better. Before the botox treatment, residual inhibition would probably not have lasted this long.

      I will at some point do the dry needling - hopefully in the same injection sites. Right now, I'm wondering when it's best to do that - before the botox has run its (usually) 3 month course, to act as a booster? Not till after the three months are over? As soon as my T gets loud again? I'm mulling all of this over, because there is no predetermined protocol.
       
    8. Chad Lawton

      Chad Lawton Member

      Tinnitus Since:
      2/19/18
      Cause of Tinnitus:
      Possible Ototoxicity + Noise Exposure
      I would not recommend botox to anyone. It is a neurotoxin, it is literally poison for your nerves. Look up botox and hearing loss. Lots of people have experienced hearing loss and tinnitus from using it.
       
      • Hug Hug x 1
    9. jacob21
      Amazed

      jacob21 Member Benefactor

      Tinnitus Since:
      2008 > 2009 "cured" >2nd onset June 2016
      Cause of Tinnitus:
      Noise Induce ( loud music )

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