Can Raynaud's Disease Get Into the Inner Ears?

[Coyotesheaven]

Anyone have this and has it caused diseases of the inner ear for you? Specifically, I am wondering whether any sufferers have had problems with their hearing, balance, and have developed tinnitus/strong hyperacusis as a result of this condition.

I am beginning to believe this could well be affecting me, and that the affected blood vessels are in my inner ear or around the TMJ.

In the present there are now many possible causes of my inner ear/CNS malfunction (drugs I was put on, nerve injury, autonomic problems, (just) migraines). However, this is always an explanation that has been knawing on me, and I know I am suffering from migraines as it is and likely vasospasm therefore. It also doesn't seem to be a coincidence that there are arteries around my ears and over my TMJ that are /always/ set off whenever my muscles in my face contract or when I put stress on my TMJ.

 

[Magster]

All I can tell you is that my Raynauds started to manifest itself about 2001. One fingertip would go white in grocery store just walking thru freezer section. Then in 2005 I noticed purple feet when I got in bathtub. Now - at 45 yrs it's worse. In 2015 I started getting intermittent ear ringing. 2016 was more often. Since feb 2017 it's 24/7. I don't think it's a coincidence that as my Raynauds worsened, tinnitus worsened. I'm learning to live with it and it no longer bothers me. I do not take much OTC (maybe a couple times per month) and I refuse all prescription meds. For now....

(however, for a few years I did take one Benadryl before sleep 5-7 days per week for sleep)

I sleep with a fan. Have for decades. I put up with the RRRRRING sound that loudly comes up and 24/7 whoosh. It took some time to accept this new norm for myself.

 

[BuzzyBee]

Have you thought about trying ginkgo? It is recommended for both tinnitus and Raynaud's.

 

[Coyotesheaven]

@Magster

Did they figure out whether your tinnitus was caused by the Raynaud's problem, and did you have other ear symptoms as well? Also, what kinds of things triggered your symptoms (aside from temperature changes)? For me there are so many to the point where it feels like my body is full of set mouse traps . The most notable for me though are sudden changes in blood pressure, or anything that naturally manipulates ICP, but there are a lot more things that those don' already cover.

I don't have visible signs occuring elswehwere in my body, unless these autonomic problems of mine aren't what I'm thinking they are (face has been pale for months now, orthostatic problems and blood pressure issues, sometimes temperature sensitivity). But I do wonder if this disease is manifesting in my cochleas.

 

[jeff W]

@Magster

Did they figure out whether your tinnitus was caused by the Raynaud's problem, and did you have other ear symptoms as well? Also, what kinds of things triggered your symptoms (aside from temperature changes)? For me there are so many to the point where it feels like my body is full of set mouse traps . The most notable for me though are sudden changes in blood pressure, or anything that naturally manipulates ICP, but there are a lot more things that those don' already cover.

I don't have visible signs occuring elswehwere in my body, unless these autonomic problems of mine aren't what I'm thinking they are (face has been pale for months now, orthostatic problems and blood pressure issues, sometimes temperature sensitivity). But I do wonder if this disease is manifesting in my cochleas.

Can you jog?