Eleanor89
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Joined:
May 23, 2021
Messages:
134
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196

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Gender:
Female
Birthday:
April 23
Location:
Barrow in Furness

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    1. Sannush
      Sannush
      May I ask what kind of operation made it all worse? keep your positive spirit alive. Hugs//
      1. sakrt and Wrfortiscue like this.
      2. Eleanor89
        Eleanor89
        Hello @Sannush
        Yes I had two very large growths removed one was the size of a grapefruit. But benign…. Resulting in total hysterectomy etc…. But I like many others couldn’t get surgery for over a year due to covid, so I spent a year on painkillers, high anxiety and not in a good place x
        I got through it but I think my body had enough after everything and t and h started a month after surgery x
        Jul 25, 2022
        Wrfortiscue likes this.
      3. Eleanor89
        Eleanor89
        Hello @Sannush
        I’m in a much better place now, it’s a slow process…
        I remember when my t started 27 years ago, it took a long time to habituate, very slowly over a couple of years or so…. That also started during a stressful time in my life…. But it got better x and yours will too . X little steps forward x
        Jul 25, 2022
        sakrt, CRGC, SamRosemary and 5 others like this.
    2. OnlyUP
      OnlyUP
      Hi @Eleanor,

      I love seeing your comments as you as so positive. Thank you! How are you doing? I am using sound therapy for H and T. My H has improved greatly, my T not so much. How have you been coping with yours? Has it gotten any less intrusive? Any tips are greatly appreciated!
      1. NYCGuy likes this.
      2. Eleanor89
        Eleanor89
        Hello @OnlyUP
        I’ve had t for 27 years but habituated to it, so I didn’t give it attention and didn’t hear it…. This time it’s a bit different but I hear it in the background, my main problem has been the h.
        I am hoping the t will fade into the background but only time will tell….
        Your doing well with the sound therapy, how bad is your t xxxxx
        Jul 4, 2022
        OnlyUP likes this.
      3. OnlyUP
        OnlyUP
        @Eleanor89 Hi there. I also had background T for 12 years, totally adjusted to it and didn't notice it. My T in my left ear is now reactive to sound and certain positions. Sometimes it ramps up and I can hear it over the sound of the car on the interstate.
        Jul 13, 2022
      4. OnlyUP
        OnlyUP
        What's your T like and have you habituated to it at all? I think I saw you are a year into your journey. My H has improved quite a bit since its worst point in April. I don't wear ear protection except on the rare occasion. My toddler's voice still causes the most discomfort.
        Jul 13, 2022
    3. DebInAustralia
      DebInAustralia
      Hey Eleanor .. curious to hear how you are going? i know you mentioned your h is improving with sound therapy. this isnt my main issue but i am glad to hear you are experiencing some improvements. how is your t? i know you are doing hrt. has it made any difference. i am noticing way more head noise which is the main bother for me. has this been the case for you with your hormonal shift?
      1. NYCGuy likes this.
      2. View previous comments...
      3. Eleanor89
        Eleanor89
        Hello @OnlyUP
        I guess I have habituated to it slowly, as I am not aware of it sometimes and that’s happening more lately, when it’s quiet I can hear it, but it was like that for years…. I’ve had it for so loooooong, like now when I’m writing this it’s there, however it took ages to habituate to it last time
        Jul 17, 2022
      4. Eleanor89
        Eleanor89
        Hello @DebInAustralia
        Yes I’m on HRT Evoral 50….
        And I do believe that menopause, my operation magnified my tinnitus and h…. Big changes and major surgery…. I still get tearful so it’s a combination of everything…. It will settle eventually….
        Jul 17, 2022
      5. Eleanor89
        Eleanor89
        It’s a difficult time in a woman’s life, a massive transition and I’ve read a great deal on the effects in the brain…. And hormones x
        Jul 17, 2022
    4. Pianist_Will
      Pianist_Will
      Hi Eleanor89,

      Hope your doing alright :)

      I’ve read a few of your posts and I’m interested in the white noise generators and the counselling. Did the NHS give them to you for free? Can I also ask who is doing your private counselling? Is it specifically for tinnitus? I might look into that as well.

      Will
      1. Eleanor89
        Eleanor89
        Hello @Pianist_Will her email is info@phoenixdramatherapy.co.uk. My generators are from the NHS and I find them great very soothing. They are PureTone Audimed for hyperacusis. I have the UPC numbers.
        May 23, 2022
    5. Damocles
      Damocles
      Hey @Eleanor89, thanks for checking in on me. I continue to be comfortable with my severe tinnitus; so all's good in that department. Only thing was, I've been suffering with constant nausea for the last 5 days now. But my downstairs neighbour is ill also and has been throwing up for several days; so I suspect I have whatever she has.
      1. Eleanor89, Daniel Lion, ZFire and 2 others like this.
      2. View previous comments...
      3. Damocles
        Damocles
        Apr 21, 2022
        Wrfortiscue likes this.
      4. Eleanor89
        Eleanor89
        Jul 5, 2022
        Damocles likes this.
      5. Eleanor89
        Eleanor89
        Jul 25, 2022
        Damocles likes this.
    6. Bry
      Bry
      Hi can you go over my thread and give feedback to my situation please? You will see lots of questions. Hope you have some insights to my problem
      1. NYCGuy likes this.
    7. IntotheBlue03
      IntotheBlue03
      Hey do you have reactive tinnitus?
      1. Eleanor89
        Eleanor89
        Hello @IntotheBlue03
        No I don’t as it has changed from all those years ago…
        I’ve had it 26 years….
        I’m eight months in following surgery and hypercusis..
        when it first started years ago I had distortions etc but it settled in time….
        Yours will too x
        You have to find a sound therapy that relaxes it,,,, this can take a while
        But it will help….
        Feb 13, 2022
        IntotheBlue03 likes this.
      2. IntotheBlue03
        IntotheBlue03
        Thank u so much I am desperate to find a sound therapy that works so far it’s been impossible to mask. Hoping the reactivity settles enough to let me do that @Eleanor89
        Feb 13, 2022
        Eleanor89 likes this.
    8. Eleanor89
      Eleanor89
      Hello @GeorgeLG Thankyou that’s kind of you to say….. Stay positive It will get better
      1. NYCGuy and ZFire like this.
    9. GeorgeLG
      GeorgeLG
      Hi Eleanor89

      I wanted you to know that the warm and kind smile in your profile picture made my day. Thank you for sharing your positive spirit.

      George
      1. NYCGuy, Eleanor89 and Wrfortiscue like this.
      2. Eleanor89
        Eleanor89
        Feb 12, 2022
    10. Roosevelt DuPree
      Roosevelt DuPree
      Hey there Eleanor89- Kind thanks for the follow. Yes, it seems we are fellow psychotherapists-with-tinnitus :) What a strange - and busy - time (Covid-19) to be in this profession! (I have worked from home the past 2 years and counting, only "meeting" with people over Zoom / telephone. Looking forward to one day sitting down in person with people again...)
      1. NYCGuy likes this.
      2. Eleanor89
        Eleanor89
        Hello @Roosevelt DuPree
        I too have worked from home…. Yes I’ve had tinnitus since 1995 but habituated
        It magnified with hyperacusis in April this year following major surgery.,,,,
        How’s yours…..
        We have to stay positive….
        Jan 21, 2022
        NYCGuy likes this.
    11. Elmer B Fuddled
      Elmer B Fuddled
      I may be lost most of the time following me could lead to nowhere
      1. sakrt, NYCGuy and Eleanor89 like this.
    12. Bruce NH USA
      Bruce NH USA
      Hi Eleanor, thanks for the "hug"! I appreciate it!

      I see that you are a psychotherapist---do you find that your professional training has helped you to better deal with your Tinnitus? I was just curious.

      Cheers from across the pond!

      Bruce
      1. Eleanor89
        Eleanor89
        Hello @Bruce NH USA
        I guess in some ways it has, however I started with t in 1995 and had habituated, it was following surgery this year that both t and h surfaced…. It’s seven months now and I’m getting better slowly.
        Everyone’s journey is different
        Please ask @Michael Leigh, he will give you wonderful advice on tinnitus as he has had it for years as well, he has written posts that may help you
        Dec 28, 2021
        NYCGuy and Bruce NH USA like this.
      2. Eleanor89
        Eleanor89
        Dec 28, 2021
        NYCGuy and Bruce NH USA like this.
      3. Bruce NH USA
        Bruce NH USA
        Glad to know that you are doing well, Eleanor. My increased T is only at six weeks, so if you are getting better at 7 months, that's great news.

        I'm hoping hearing aids can help, a bit. I have an appointment for a hearing test in three weeks. HA's aren't cheap, but the notching technology is intriguing, as discussed by several members on this forum.
        Dec 29, 2021
    13. Brian P
      Brian P
      What triggered the new T for you?
      1. View previous comments...
      2. Brian P
        Brian P
        I’ve been looking for a glimmer of hope for people who recovered from the vaccine and benzodiazepines. This has been devastating to say the least as you know
        Dec 21, 2021
      3. Eleanor89
        Eleanor89
        @Brian P
        You will get better…
        Just give it time and have faith….
        Dec 21, 2021
      4. Eleanor89
        Eleanor89
        Hello @Bruce NH USA
        Just stay positive and read @Michael Leigh's posts, he will give you advise on sound therapy etc….
        Just stay positive and remember that everyone’s journey is different….
        I’ve had t for 26 years but habituated like many others…. You will do it also….
        Sending prayers
        Dec 29, 2021
        Bruce NH USA likes this.
    14. alexvacuum
      alexvacuum
      Hi Eleanor89,, My T started after covid, but yes , I ve been stressed out . There were like 10 different sounds changing all the time, now I hear 2. headaches and hyperacusis gone, but fullness feeling in my ears still there , much more in the right ear (loudest T)... I have never get a earing test before but after T I have 35-40 db loss on 4khz ...Did hoy have hearing loss also? Can it be recovered?
    15. Eleanor89
      Eleanor89
      @LilSass yes it was there in the background but I couldn’t hear it…. It faded I’m hoping my brain remembers how to do it again
      1. LilSass and Damocles like this.
      2. Damocles
        Damocles
        Sep 30, 2021
        Eleanor89 likes this.
      3. LilSass
        LilSass
        I'm sure that it will fade again for you! It's been almost two years for me, but nothing has changed.
        Oct 4, 2021
    16. Robster
      Robster
      I hope you don't mind me asking, how loud was the Tinnitus you originally habituated to?
      1. JPGL likes this.
      2. View previous comments...
      3. Eleanor89
        Eleanor89
        @Robster every one is different…. I perceived mine as loud perhaps because my emotions were heightened due to the stress I was going through at the time….
        Can you here it through the day…
        I think it’s about getting your anxiety down and that’s key with your recovery….
        How long have you had tinnitus for
        Sep 28, 2021
      4. Robster
        Robster
        Had it since January. Can just about hear it for first few hours, after 4 or so hours it gets quite loud.
        Sep 28, 2021
      5. LilSass
        LilSass
        When you say habituated, do you mean you could no longer hear it, or it no longer bothered you? Did the volume decrease to almost non-existent?
        Sep 29, 2021
        JPGL likes this.
    17. LilSass
      LilSass
      Hi from a fellow Barrovian! I lived there from 2000-2004, but am back in Canada now. How's life in the world's longest cul-de-sac? lol :) ~Sarah
      1. Eleanor89
        Eleanor89
        Hello @LilSass
        Yes I’m from coniston but moved to barrow a few years ago…. How’s your tinnitus x
        Where abouts in Canada x
        Sep 25, 2021
      2. LilSass
        LilSass
        NIce! I used to hike the fells there, Old Man Coniston, Skafell Pike - love the Lake District! Tinnitus for almost two years from migraine meds. It's variable so volume changes from day to day. Accepted it mostly, but it still sucks. I'm living in Kitchener Ontario now. Hope you're doing okay!
        Sep 25, 2021
        Steph1710 likes this.
    18. Tommy5oh5
      Tommy5oh5
      Hi Eleanor--i see that you're a therapist too. Thanks for "following" me I'm going to thank Sandra too for the sound pillow referral as I've been using my phone for YouTube mature sounds at bedtime. How's your acclimation going?
      1. Eleanor89
        Eleanor89
        Hello @Tommy5oh5
        Yes started with it again nearly five months ago
        Had it 26 years but habituated to it….
        Hope your ok….
        Sep 25, 2021
        Tommy5oh5 likes this.
    19. Robster
      Robster
      I've had hyperacusis since an MRI this January (thanks NHS). The hyperacusis was very slowly improving, then last month it improved dramatically. It's improved more in the last month than the previous six combined and is now only mild. Give it time and hopefully you will experience the same.
      1. View previous comments...
      2. Robster
        Robster
        Apart from avoiding loud noises, I didn't do anything else. I think it just improved due to time.
        Sep 18, 2021
        ZFire likes this.
      3. Eleanor89
        Eleanor89
        @Robster I’m nearly five months in
        After habituating 26 years
        Tinnitus and hyperacusis I hope will fade over time
        Sep 24, 2021
        Robster likes this.
      4. Eleanor89
        Eleanor89
        @Damocles
        Little steps in pushing forward but we will get there
        Sep 30, 2021
        Damocles likes this.
    20. Sandra Menzie
      Sandra Menzie
      Hi Eleanor. Welcome. I am new to this forum. My tinnitus started about a year ago. Doc says hearing loss. Prescription. Xanax. Doesn't work for me. But I found a sound pillow by conair. Available at Walmart or amazon. The later charges more. It's around 37.00 dollars. Plays tones. Has timer. Can use a mp3 Player. Helps
      At bedtime.
      1. Tommy5oh5 and ALS like this.
      2. Eleanor89
        Eleanor89
        Hello, @Sandra Menzie
        I’ve had tinnitus 26 years but habituated….
        It started again four months ago but I also have hyperacusis so I’m trying to deal with that aswell
        Thankyou for getting in touch
        Sep 4, 2021
    21. Abdulrahman
      Abdulrahman
      My wish for everyone suffering from this unseen disease is that hopefully it dissipate s one day and I do hope a cure would be found someday. Tinnitus robbed my happiness away from me
      1. Eleanor89, JPGL and Vassili like this.
      2. JPGL
        JPGL
        mismo pensamirnto,enfermedad invisible,que te destruye la vida
        Aug 22, 2021
    22. Eleanor89
      Eleanor89
      Hello I’m new here,
      1. View previous comments...
      2. Lurius
        Lurius
        Hey there, hope your tinnitus will go away one day :)
        Aug 9, 2021
        Eleanor89 likes this.
      3. Oabmarcus
        Oabmarcus
        Welcome from Seattle.
        Aug 12, 2021
        Eleanor89 likes this.
      4. Abdulrahman
        Abdulrahman
        Welcome. I do hope our tinnitus dissappear one day and I do hope a cure would be found
        Aug 22, 2021
        JPGL and Eleanor89 like this.
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  • About

    Gender:
    Female
    Birthday:
    April 23
    Location:
    Barrow in Furness
    Tinnitus Since:
    1995
    Cause of Tinnitus:
    Unknown