Cure for Hyperacusis??

Discussion in 'Support' started by TheDanishGirl, Sep 28, 2017.

    1. VRZ78

      VRZ78 Member Benefactor

      Tinnitus Since:
      08/2016
      Cause of Tinnitus:
      Viral Infection
      For me habituation is when you hear your T only when you think about it, and when you think about T only once in a while. It's like you forget you have it.
       
    2. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      You have described habituation quite well @VRZ78 . Some people are looking for a complete cure from their tinnitus and hyperacusis. With this kind of mindset they will find it very difficult to accept tinnitus or hyperacusis and therefore never habituate. A person can hear their tinnitus when it is mild or moderate, as I do and can go about their day doing everything that they want to without it being a problem. When tinnitus is intrusive devices like white noise generators and sound therapy can be helpful.
       
      Last edited: Dec 31, 2017
    3. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      Can we get this post back on a cure about H?
       
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    4. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      From what I've been reading most of the researched treatment seems to be from private institutes. Sometimes it's hogwash and others eh there's something substantial. But what seems to be the case in most of them is they aren't getting to the root of the problem. They are just masking it for example the Round and Oval Reinforcement. It just seems like a glorified earplug.
       
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    5. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Hyperacusis can be cured but this will not be the case for everyone that has it. The best treatment for it is using sound therapy, wearing white noise generators for up to 10hrs a day and using a sound machine at night, to desensitise the auditory system. Regular counselling with a Hearing Therapist/ Audiologist is advised. Hyperacusis can improve on its own without treatment. Whether a person has treatment or not, it can take many months up to 2 years to cure or reduce to a level where it is not too problematic. If hyperacusis is left untreated or doesn't improve by itself over time, it can cause tinnitus to spike, due to the auditory system being hypersensitive to sound.

      Michael
       
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    6. lapidus

      lapidus Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      No, since the root isn't even known.
       
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    7. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use

      You're right :/

      Part of me thinks there's something wrong within the brain or the nerves. Oh that brain that we barely know anything about. :(
       
    8. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Hall of Fame Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      12/2013
      my h is dramatically improved with adipose derived stem cells
       
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    9. lapidus

      lapidus Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      Well, there's a lot of stuff happening in the research world at the moment that gives me hope.
       
      • Agree Agree x 1
      • Optimistic Optimistic x 1
    10. Taylorslay
      Happy

      Taylorslay Member Benefactor

      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Years of excessively loud headphone use
      In a way same but man if I have to take some kinda drug for this gosh I will. Something, anything. Not something that'll fix part of it, all of it.
       
      • Agree Agree x 1
    11. SilverSpiral
      Sad

      SilverSpiral Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      ACOUSTIC TRAUMA
      Woah there... no complaints? That doesn't sound true. I've got a big complaint about your conduct towards me and my condition which I feel is bullying.

      As do several others regarding your attitude towards hearing conditions. For Example:
      ^expand that quote, it is great insight into a thread where his help received many complaints.


      and further

      And Tom commenting on Michael's stance on marginalizing people with a hearing condition that differs from his..
      You can say you try to help, because that is probably what you genuinely believe, but don't say you've never had a complaint.

      Your words have made aggravated depressed and suicidal ideation at the worst of times for me. I don't want to see it happen to others.

      @Telis @Lex and several others have some complaints too i believe. Not just in this thread but several others.
       
      • Agree Agree x 2
    12. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I'm really hoping this is the case so hair cell regeneration will solve hyperacusis/reactive tinnitus and give me my higher frequencies and better quality hearing back.
       
      • Agree Agree x 2
    13. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Loud noises make me feel very uncomfortable and scary without any pain . Is that Hyperacusis or phonophobia@ Does anybody know?
      Even people talking loud in cafeterias make me uncomfortablle .
       
    14. Hania
      Hurting

      Hania Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Acoustic trauma
      There is 0,000001 percent chance they are going to find a effective cure for tinnitus , for hyperacusis those chances are wayyyyyyy slimmer ... Im hopefull about Susan shore her device for tinnitus for im afraid that it will induce one's hyperacusis in the long term.. So sad the medical field is letting us down
       
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    15. AUTHOR
      AUTHOR
      TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Me too, I have developed some form of Phonophobia.

      I think if one is an anxiety prone person with T, like I am, then it is 100% impossible not to develop at least slight Phonophobia.
       
    16. Tony Phylactou

      Tony Phylactou Member

      Location:
      Limassol
      Tinnitus Since:
      sept 2016
      Cause of Tinnitus:
      Cement factory noise lowT,then stress high T
      Thank you for your reply I agree with you.The question is should we protect our ears from noise or just ignore it?
      What do you do?
       
    17. AUTHOR
      AUTHOR
      TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      A bit of both....I try to go with my gut feeling or instinct and make sure I do not overprotect....at least too much....but if I am in fairly noisy enviroment for a longer time then I do plug my ears.
       
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    18. dingaling
      Asleep

      dingaling Member

      Location:
      London UK
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      unknown, probably loud music
      Wow, just been reading through this thread and we don't need all of this mud-slinging....

      I am really interested in hyperacusis and one day, hopefully one day, there'll be positive moves towards a definitive cure. But of course, there are varying degrees of hyperacusis and whilst some individuals can be successfully treated with TRT, sadly, others aren't as lucky

      Even more sad, is that there is no cure for those with facial nerve paralysis proximal to the branching of the stapedius muscle (such as through the shingles virus) or for those with global hypersensitivies such as those on the autistic spectrum (including Aspergers).

      Many people with H will need psychotherapy, CBT and practice relaxation techniques to bring down their state of hypervigilance

      Can we stop all of this playground nonsense and talk about possible cures for H ?
       
    19. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      Hyperacusis can be cured or at least suppressed to a very low level. For many people the auditory system will desensitize over time. The danger is the overuse of hearing protection as this can lower the loudness threshold of the auditory system and make it more sensitive to sound. My post: Hyperacusis, As I see it, in the link below explains how hyperacusis can be treated with self help. I once had very severe hyperacusis. It has been completely cured for 20 years.

      Michael


      https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/
       
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    20. dingaling
      Asleep

      dingaling Member

      Location:
      London UK
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      unknown, probably loud music
      Indeed Michael and as much I like your posts, for some people (with the example conditions I posted), TRT simply doesn't work for them and treatment becomes more challenging

      Re your link, for those with vestibular-induced hyperacusis, this is common in people with superior semicircular canal dehiscence (SSCD) where there is a "fault" or excess thinning of the bone that requires surgical "patching up"
       
    21. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      @Michael Leigh as much as I disagree with you on TRT, you offer very good advice about hyperacusis.
       
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    22. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Noise induced
      @dingaling

      All my posts including those on my "Started Threads" are advice and treatment for tinnitus and hyperacusis caused by "Noise Trauma" to the auditory system. Typically, this is caused by using headphones at high volume levels, or going to places where loud music is played or other environments where one is exposed to overly loud sounds, resulting in tinnitus with or without hyperacusis.

      Tinnitus is complex and can be caused by many things. Since my tinnitus was originally caused by noise trauma, I mostly advise about this as it's what I'm familiar with.

      In many cases a person doesn't need TRT or CBT treatment. I would advise someone new to tinnitus not to start these treatments no sooner than 6 months in and perhaps longer. Many people habituate to tinnitus within the first 6 to 18months with or without specialist treatment.

      Michael
       
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    23. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Youtube Video - 54-Min. - Describes a new and relatively-noninvasive surgery for H. The video is a little drawn out, but the surgery sounded promising to me (sounded almost less invasive than a dental visit). There's a discussion with about 4-5 people who've had it done, and has greatly improved their hyperacusis and quality of life.

      A New Treatment For Hyperacusis 2016 2nd Seminar Master
       
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    24. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      CBT is useless. TRT to me sounds so archaic, this isn't 1960 but 2018. We need to have seriously a drug or some sort of T reducing treatment.
       
      • Agree Agree x 3
    25. IvanRus

      IvanRus Member

      Tinnitus Since:
      04/2017
      Cause of Tinnitus:
      ototoxicity
      How is hyperaucosis treated? Is there any advice?
      Did someone have hyperacusis from taking prednisolone?
       
    26. John_foster26

      John_foster26 Member

      Tinnitus Since:
      March 2016
      Cause of Tinnitus:
      Noise Trauma
      Many people wish there were a drug or treatment available that would reduce tinnitus to complete silence, or to a very low level but there isn't at the moment and we have to accept it. If possible try and get whatever treatment you can.
       
    27. Marko Nakovski
      Bored

      Marko Nakovski Member Benefactor

      Location:
      North Macedonia
      Tinnitus Since:
      27.04.2017
      Cause of Tinnitus:
      Loud music
      @DebInAustralia Hello
      Can you please tell me more about adipose derived stem cells ? I suffer from severe hyperacusis, any advice about this cells would be great to hear. Thanks
       
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