Development of Tinnitus Post Bilateral Cochlear implants

Discussion in 'Introduce Yourself' started by CICathy, Nov 19, 2017.

    1. CICathy

      CICathy Member

      Tinnitus Since:
      Cause of Tinnitus:
      Cochlear Implant
      I received Bilateral Cochlear Implants in July as HA were not enough anymore.

      At activation the T started. Very loud electronic sounds with repeating patterns and actually creepy sounding. I hear that I should give it more time, but I am upset now.

      I will do everything I can to work through this with positive attitude, but all my residual hearing is gone. I can deal with the "learning to hear in a new way", but the T sucks.

      Curious if others have had this experience....
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    2. Kolisar
      No Mood

      Kolisar Member Benefactor

      Tinnitus Since:
      Cause of Tinnitus:
      Hi @CICathy , Welcome. I have not, but I have seen others mention Cochlear implants on this forum. I would suggest searching for that phrase and reading the posts (if you have not already).

      You are right, it absolutely does. But, fortunately, you have come to the right place. There are a lot of extremely knowledgable people on this forum (I, certainly am not one of them, but I know who they are and I will point you towards their writings on the subject).

      The first suggestion I will make is to search out posts by @Michael Leigh. He is extremely knowledgable about Tinnitus and Hyperacusis and has written a lot here on those subjects. The first post of his I recommend will give you a lot of general information on tinnitus, habituation, treatment options, etc.. Where you have the implants, obviously you will want to consult with your doctor before attempting anything that involves medication, supplements, or anything beyond maintaining a positive attitude.

      Speaking of positive attitudes (this is great, I usually do not have such a natural segue). Keeping a positive attitude is very important. As you read though this forum you will see many people mention its benefits, and you will find many people for whom maintaining a positive attitude has helped tremendously.

      @billie48 wrote his success story demonstrating how positivity helped him habituate.

      @Michael Leigh wrote the following, excellent post on the importance of positivity: and the following on negativity and tinnitus

      And to help maintain the positive attitude (wow, the segues are lining up perfectly today :) ) where your tinnitus is fairly new, there is a good chance that it will go away on its own.

      @Bill Bauer wrote the following post discussing studies that show a fairly high recovery rate from tinnitus ( )

      I am not sure how applicable this is to you, due to your implants, but it will hopefully give you hope in that your tinnitus may end. Reading through the forum it seems that most people's tinnitus will go away in a year or two. I know that seems like a very long time to suffer with this (and tinnitus can be debilitating), it is better than the lifetime sentence some of us are serving.

      I wish you well, I hope you find all you are looking for here, and please keep us updated on your progress.
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