Dr. Nagler, 11 dB SL Tinnitus and Niagara Falls

@dboy said:
the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus

.........

Just because my tinnitus can readily be heard over the roar of Niagara Falls, that doesn't mean my tinnitus is louder than Niagara Falls. All it means is that it cannot be masked by Niagara Falls. Maskability and loudness are two different things.

 

Absolutely--or listen to that wonderful music you posted on the favorite song thread. It will chill us all out.

 

I think we should all help one another succeed in our battles against tinnitus, our common enemy. Some of us have the soft touch. Some of us are more the "in your face" types. On this board nobody is forcing anybody to read anything. It's no secret that my approach here is more "in your face." I believe in attacking the problem head on. Folks know that ahead of time. If that sort of direct approach doesn't suit an individual, then I ask that individual to please not read my posts.

 

I know that. But it doesn't seem to have gotten you anywhere. So if you can set all that bitterness and resentment aside for just a few moments, why don't you tell all of us exactly what your problem is and exactly what you have been trying for the past two years. There is a lot of knowledge and experience on this board. So take advantage of it, for goodness' sakes. It's yours for the asking!

 

I cannot perceive any relevance in what you say here (a factual statement not intended to be inflammatory).

I agree with this - in spirit if not always in temperament/ability. Thanks for injecting a little sanity @RaZaH. I'm gonna try to back off this thread now.

 

I like and agree with what @Markku wrote yesterday. That is the way it should be here....

 

Your style worked for me. I didn't need coddling--I needed help and you provided that help. It is amazing to me that a doctor would take so much time to help me along on a message board. I was twice blessed because my primary care physician is also a compassionate, wonderful doc who educated himself about tinnitus.

 

@dboy posted:
"the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus"

I responded:
"Just because my tinnitus can readily be heard over the roar of Niagara Falls, that doesn't mean my tinnitus is louder than Niagara Falls. All it means is that it cannot be masked by Niagara Falls. Maskability and loudness are two different things."

@dboy responded:
"I cannot perceive any relevance in what you say here (a factual statement not intended to be inflammatory)."

...........

My mistake. I just thought that since the topic of this thread is Dr. Nagler (me), 11dB SL (which is a number that by definition takes into account hearing loss), and Niagara Falls ... that when you write "the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus," a statement that begins to explore the relationship among tinnitus, hearing loss, loud sounds, and masking might be relevant.

 

@Dr. Nagler I am just curious, how long did it take TRT to make you better?
When we spoke on the phone, you mentioned that as soon as you put the white noise generators
on, you felt immense relief.....I am wondering if that is a major sign that this therapy will be effective.

 

White noise generators don't work for reactive tinnitus, as it reacts with the white noise and could spike tinnitus. I mean, how do you treat reactive tinnitus, outside of drugs?

 

Danny there is no such thing as "reactive" tinnitus.

Therefore nothing to treat.

 

Well, there is, as I've had it and loads of people mention the same symptoms.

 

Really? My T seems to run way way up with white noise, a fan, or even the TV.

 

Oh do tell..because it simply does not exist in literature.

 

Yea..hmmm. Telis..mine too..interesting isn't it?!

but still, no sorry. . no such thing.

 

Then it needs updating. Reactive tinnitus does exist.

 

Indeed..

 

Thank you for your very good question, dan. For me, TRT took 14 months to "make me better." I experienced virtually no improvement at all for the first 12-13 months, and then things sort of took off like a rocket. The time needed and pattern of improvement varies from patient to patient, but that's how it was for me. To the best I can recall, I did not experience "immense relief" from the devices, although I did not find them bothersome. Whether or not the devices provide any degree of immediate relief is irrelevant to the ultimate success of TRT.

 

TRT works just fine for "reactive tinnitus." But it does help to have a clinician who knows how to tailor the treatment protocol to the needs of such patients.

 

Hm....really? How do they manage that?

 

Carefully, with attention to detail and to the particular pattern of reactivity. TRT is not "one size fits all" - although that is how the naysayers often portray it on this board.

 

Very vague. Ah, well...I stopped caring really.

 

I have never stopped caring. That's the only reason I am here.

 

Well, it's all about waiting for Autifony. How terribly boring.

 

speak for yourself. If it works half as well as people hope, I'll consider taking it after it's been on the market for a period of years...

Being an early adopter of new classes of drugs doesn't always end well.

 

Surprised Trobalt hasn't been withdrawn. Anyway, if it's a safe version of trobalt or better. We'll be fine.

 

So you're all about waiting. I'm all about doing. Different philosophies.

 

Well, I'm all about the research. I just want to see what Autifony's drug can do. I know trobalt works, so if Autifony's drug is a safe version of trobalt, then we're all cool.

 

Are you still cured? No T or H even without drugs?