ENT Appointment — Another Waste of Time!

Discussion in 'Support' started by Mister Muso, Jul 12, 2019.

    1. Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      You guys were right - Episode 112...

      Sorry but this is going to be a bit of a vent.

      I'm just back from a private appointment with an ENT consultant who was supposed to have an interest in tinnitus and nasal congestion - two of my main concerns (the first being obvious here). Now, our NHS in the UK is wonderful, but only if you're prepared to wait weeks to be seen. So I forked out the £100 through my employer's insurance scheme, hoping this was the man to help me.

      Sadly he did no more than the GPs I have seen, and his basic message was "learn to live with it".

      Because I "only" have tinnitus, and no significant hearing damage, he seemed to think there was nothing more to be done. I did mention the fact that each ear went practically deaf for an hour at the time of their initial traumas, but he didn't seem concerned about that at all. Really?!?!

      I asked about prednisone, but like most doctors in the UK he won't prescribe it due to lack of positive "evidence-based studies". I said there is lots of anecdotal evidence about it stopping tinnitus in its tracks, rather than leaving the patient to deal with the issue for the rest of their life. But he wouldn't budge. He said the drug can have a big impact on your life. I responded that my tinnitus was already having a major impact on my life. To no avail. He said to me "No more Metallica concerts then!" and he was laughing as he said it. Yeah right, hilarious. I left the appointment in tears, having been made to feel that I was just a worrier who was wasting his time. Well guess what he's just wasted my time and my money!!

      He did talk about my bruxism, with which I've been diagnosed. He said I should wear the mouthguard that was made for me a few years ago. I never persisted with it, but based on his examination of me he said there is evidence that bruxism is still an issue I should deal with. Well I knew that, but that's not going to address the damage that's been done now, is it?

      So what next? Back to the NHS and get into one of their tinnitus clinics? Or continue to treat myself through experimenting with masking tracks/pillow speakers/whatever? Or find a private tinnitus clinic and be willing to pay out more money on the off-chance that it might help?

      My hyperacusis and original noise trauma damage do seem to be settling down slowly to a more predictable pattern, but the new tones in my other ear following a subsequent incident are disturbing my sleep more. They sound like wind through a pipe, or sometimes a sine wave. There are multiple notes, sometimes chords, and the tone drops down to the next harmonic when I yawn. I told the consultant these details, hoping it would help with his diagnosis, but he just said I should stop analysing things so much. Sigh.
       
      • Hug Hug x 2
    2. BrStan@

      BrStan@ Member

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      Hi Mister Muso, I can agree with you the ENT and tinnitus don't mix very well. Actually the reason my tinnitus increased was listening to the ENT. He said that my tinnitus will not worsen any further and that my sound is the same and that I am just more focused on it now and that makes it sound louder. Such an idiot. If your ears are not blocked with wax and you don't have ear infection you should not go to ENT as they don't know anything about tinnitus.
       
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    3. AUTHOR
      AUTHOR
      Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      What irks me most is that this ENT doc had tinnitus on his list of areas of interest. So I thought I would get more than the usual brush-off from him.

      He asked about the results of my hearing test - which was with the NHS not his hospital so he didn't have the results - and I just said I thought it was relatively normal. So he hasn't even seen the actual results yet, and he based his diagnosis on hearsay through me. Is that common?

      I've heard you can get hearing tests up to 16kHz not just 8kHz, so I thought I might be more likely to get that as it's a specialist hospital. I guess I'll just wait for the letter that he's going to send to me/my GP and I can respond to that. Much though I'd like to phone the hospital and complain to them now, probably best not to do that in my current state of mind!

      Edit: I use this site to do a DIY online test: https://hearingtest.online/ It does show some continuing worsening of my hearing in the one that's been affected by trauma most recently. I'll probably try sending these results to him and ask if he has anything further to suggest.
       
      • Like Like x 1
    4. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      but you experience noise induced pain, isn't that serious hearing damage?

      This is very good advice.


      Btw did you mention to them hyperacusis and noise pain?
      Jaw and face pain and aches after extremely loud noise exposure is no coincidence.
       
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    5. AUTHOR
      AUTHOR
      Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      @Contrast, I did stress the hearing loss at the time of the damage. I think I mentioned the facial pain too. But his reasoning seemed to be that, because my recent audiology test came back as normal for my age, this meant I had recovered from those incidents. But he said this without seeing any hard data from my tests in front of him.

      He only seems to take tinnitus seriously when there is ongoing hearing loss associated with it. And he blames my bruxism for my hyperacusis and noise pain.
       
    6. AUTHOR
      AUTHOR
      Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      Here are my results from doing my own hearing tests online each month since I found the site. Does anyone else think this looks like my hearing loss may be gradually worsening? Of course as the caveat says, these are not clinical tests, which may give our friend in ENT his excuse to dismiss them. Does anyone else use this site and can they vouch for its accuracy or otherwise compared with real audiology results?

      Edit: I'm using the same noise-cancelling headphones on the same laptop for each test. I think this shows my results starting out on the borderline between Normal Hearing and Mild Hearing Loss, getting slightly worse towards the higher frequencies. The red circle which is consistent at 4k indicates my right ear has been borderline between mild and moderate hearing loss throughout.

      Hearing Test Online results May-July.PNG
       
    7. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      Please read these resources about hyperacusis(s) and hidden hearing loss and make up your mind regarding what to believe.

      https://www.entandaudiologynews.com...avelling-the-mystery-of-hyperacusis-with-pain

      https://www.entandaudiologynews.com...iological-mechanisms-of-hyperacusis-an-update

      https://hyperacusisfocus.org/innerear/#hiddenloss
       
    8. AUTHOR
      AUTHOR
      Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      Well I've just taken the test again, and it doesn't look so bad this time. Maybe it was a bit noisier earlier, or I was a bit tired. I guess the same could apply to any audiology tests that anyone takes anywhere, though. Anyway. I don't know. Another day on Planet Tinnitus.
       
    9. AUTHOR
      AUTHOR
      Mister Muso
      Busy

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      I've read those all now. It's good to know there is more research going on into the topic. I guess I don't have it as bad as some, though it has been bad recently and I fear it could easily get spiked again.

      I almost feel that tinnitus on its own would be relatively easy to deal with, as long as it settles into a predictable steady tone. It's when you have a series of tones, or tones that change frequently, which I find more difficult. But the hyperacusis is a whole different thing and is affecting every area of my life currently. I thought it was getting better, till I played the piano for 10 minutes a couple of weeks ago (with earplugs and earmuffs on), and then my T went crazy over the next few days.

      When we start seeing clinics labelled "Tinnitus and Hyperacusis Treatment" then there may be more reason to be optimistic. In the meantime we can only look after ourselves as best we can.
       

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