Mister Muso

Hey thanks for asking. My tinnitus was noise-induced so I guess I've got to live with it, and the hyperacusis too. They are both manageable with care. At least with all concerts off this year, we are all in the same boat with normal-hearing people, for this year anyway. Hope you're doing well today.

Ahahahaha! This made me laugh!

@Steph1710 I often get random song lyrics flying round my brain. I was going to add "stuck in the middle with you" in case nobody got it. Then thought about "Stuck in the middle with VROOM" to represent my low-frequency pulsatile tinnitus but thought that might be too confusing for those who don't experience that. Did I mention I'm an over-thinker? :-)

This happened to me a few months ago. Got blasted by my TV at a full volume.

@pinklights98 Were you OK? Happened to me a handful of times but I always managed to kill the volume within about a second and suffered no lasting damage.

I spiked for about two weeks when it happened, but it went down. I ended up never using Alexa again

Well things calmed down a bit in general. Found a dentist that would treat me as an emergency. Still battling the breathing problems but getting more exercise helps a lot.

Check with the drummer, maybe he has T in both ears :D

@Julien87 Haha Last I heard he was still playing the drums. He also has Huntington's disease so he's probably just glad to be alive!

I do still have problems with plastic bags rustling, ripping cardboard and sellotape, pots and pans in the kitchen, supermarket trollies and bleeping checkouts. I always carry earplugs with me for such events.

Does these spike you or do some make a glassy sound? Last week a pressure washer motor gave me a high piercing spike. It took two hours to come down.

@James1977 I can get a spike or more likely ear fullness lasting up to an hour from plastic bag rustling. Up to a couple of days from a door banging or cutlery falling to the floor. My susceptibility to such incidents is gradually reducing thankfully.

So sorry about your mom. :( I suggest you don't add another sedative. Mixing meds can complicate things.

Thank you @OnceUponaTime. My mother passed away this week. Finding sleep very difficult.

I'm sorry for your loss. :(

They can be quiet loud.. drums are the worst instrument though

I do always use at least musician's earplugs. Sometimes foam. Sometimes with ear defenders on top depending on what I'm playing. But yes we must always still be careful... Sucks doesn't it?

Two in my bad ear and one in my good ear. I then got all kinds of TTTS symptoms after this. I’m not really sure what brought on these strange spikes. I’d never had them before or since (so far anyway).

Perhaps my kids. I don’t protect enough around them

It must be hard having young kids with our conditions. Mine are teenagers now so they aren't as bad usually, but sometimes my daughter gets over-excited.

Was it a hiss earlier? If so, how long have you had it?

Hey Bill, yes the default tone is a reactive hiss, sometimes more in one side than the other. But about once or twice a week it will solidify into a loud ringing that fills my head and needs some loud masking to keep me sane.

Here on TT, we've got 24/7/365 Christmas spirit.

What happened?

Tired of being tired all the time. Crazy dreams every night. The return of my stress related breathing difficulties. It's not been helping much with anything lately so I may as well come off it and see what happens. Feeling pretty good physically after one week off it, sleeping ok, but starting to feel moody and broody again.

Thanks for asking btw.

I'm only on 20mg, tbh i feel like i slept better on 10mg.. back back then i wasn't as stressed haha. I don't really dream anymore..

I stuck with 10mg. Actually ended up cutting them into two, then 4 as I tapered off. The reduced hyperacusis has continued but I wonder if it's starting to crank back up a little again I might go back on it depending on what my doctor says.

If you need a middle ground, try cutting them in half! It's what I do when I still need to hear people clearly but want some protection

I've tried not sticking them all the way in, but I don't want it to look too obvious if I'm speaking to someone. So I might give that a try!

I don't mind if it increases my tinnitus a bit. I'm persisting as it seems to be helping my hyperacusis.

I'm glad that it does, I wish I could say the same!

It helped for the first week or two I was on it, but seems to have reached a plateau. I'd stopped taking the amitriptylene for a while due to the brutal side-effects, so I may have slipped back a little. I don't notice any effect either way on my tinnitus levels. But those crazy dreams - wow!