Mister Muso

H has taken my music - I'm pretty reactive T too. It has to be so low or it spikes. Benzo helped my H more than I knew. I got amitriptyline, but not taken, is it worth it?

Hey @James1977 , amitriptyline really helped my hyperacusis and my noise-induced tinnitus too. Search for my posts about my experiences. I can now listen to most of the music that was previously off-limits when my symptoms were at their worst around the middle of last year.

So sorry about your mom. :( I suggest you don't add another sedative. Mixing meds can complicate things.

Thank you @OnceUponaTime. My mother passed away this week. Finding sleep very difficult.

I'm sorry for your loss. :(

They can be quiet loud.. drums are the worst instrument though

I do always use at least musician's earplugs. Sometimes foam. Sometimes with ear defenders on top depending on what I'm playing. But yes we must always still be careful... Sucks doesn't it?

Two in my bad ear and one in my good ear. I then got all kinds of TTTS symptoms after this. I’m not really sure what brought on these strange spikes. I’d never had them before or since (so far anyway).

Perhaps my kids. I don’t protect enough around them

It must be hard having young kids with our conditions. Mine are teenagers now so they aren't as bad usually, but sometimes my daughter gets over-excited.

Was it a hiss earlier? If so, how long have you had it?

Hey Bill, yes the default tone is a reactive hiss, sometimes more in one side than the other. But about once or twice a week it will solidify into a loud ringing that fills my head and needs some loud masking to keep me sane.

Here on TT, we've got 24/7/365 Christmas spirit.

What happened?

Tired of being tired all the time. Crazy dreams every night. The return of my stress related breathing difficulties. It's not been helping much with anything lately so I may as well come off it and see what happens. Feeling pretty good physically after one week off it, sleeping ok, but starting to feel moody and broody again.

Thanks for asking btw.

I'm only on 20mg, tbh i feel like i slept better on 10mg.. back back then i wasn't as stressed haha. I don't really dream anymore..

I stuck with 10mg. Actually ended up cutting them into two, then 4 as I tapered off. The reduced hyperacusis has continued but I wonder if it's starting to crank back up a little again I might go back on it depending on what my doctor says.

If you need a middle ground, try cutting them in half! It's what I do when I still need to hear people clearly but want some protection

I've tried not sticking them all the way in, but I don't want it to look too obvious if I'm speaking to someone. So I might give that a try!

I don't mind if it increases my tinnitus a bit. I'm persisting as it seems to be helping my hyperacusis.

I'm glad that it does, I wish I could say the same!

It helped for the first week or two I was on it, but seems to have reached a plateau. I'd stopped taking the amitriptylene for a while due to the brutal side-effects, so I may have slipped back a little. I don't notice any effect either way on my tinnitus levels. But those crazy dreams - wow!

NAC to the rescue!

Well, that appointment would have been very useful about four months ago when my T and H were at their peak...

Ask them about neuromodulation and stem cells and stuff!

I asked about treatments/cures but she said she didn't think they were likely to be offered by the NHS in the UK any time soon as most of the research is happening outside the UK. She did say she had tinnitus herself and thought mine would keep on reducing if I kept doing what I'm doing. I've just gone and spiked it again due to family staying with us but hopefully just another temporary setback.

The first flight was painless in spite of being a Boeing. Next leg is an Airbus!

You are riding the carousel of pointless ENT visits. Many before you have rode, and got no where. It's about time you get off.

Yep, I'm done with the docs. They keep waffling about tinnitus in general terms, saying "you'll get used to it", "I have a bit of tinnitus too". None of them understands hyperacusis, or that white noise doesn't work for everyone. We have to be the masters of our own "recovery", as far as one is possible