Hi, my name is Jill. I live in South Australia.

I have had tinnitus for over 10 years.
I sustained Eustachian Tube damage in my right ear while flying while having a cold.
It is a long and sorry saga.
Surgery was performed to block the tube as I was having what is called autophony - hearing an echo in my ear when I speak.
It was major surgery through the skull behind the ear.
I ended up with 3 months of infections - the autophony was cured but then the tinnitus started.
I guess I have tried every treatment known to man and woman!
Neuromonics, low laser therapy (expensive and a rip off), supplements, sound therapy and on and on.
Currently I use a sound machine purchased through the British Tinnitus Association - it does dampen it a bit.
The things I avoid like the plague are salt, MSG and tomatoes - also some spices.
I am looking forward to being part of your group!

 

You have been through so much, and tried so many treatments. So many different kinds and causes of tinnitus as well as treatments that work for some and not others.
I have learned so much from the people on this forum and continue to look for relief in some form.
You have come to the right place for support and information, this is a worldwide group with current information.
So glad I found the people here, they have helped through some really bad days.

 

Welcome to the forum Jill, sorry to hear about your T, read up the posts lots of good info here and helpful people too. I was just reading about low level laser therapy, it said it does help one in seven people....was thinking about giving it a try.....but not quite sure....

 

Same here Jill I avoid salt, msg ,and red pepper etc....interesting about tomatoes..... Hadn't thought of it....

 

Do they offer it in Canada? Not sure about the US, was considering it too.

 

Yes Leah they have a clinic in Calgary , Alberta......and that's not where I am.... Would have to go there for a while...planning to call the clinic tomorrow and ask for the rates etc.

 

Please keep posted

 

Will do so, Leah.

 

Thank you Lea - it is good to know that there are others for support!

 

Thank you Sherri.
I hope that you have some luck with the laser therapy.
I stuck it out for about 8 sessions - part of the cost was covered by our Medicare system but there was still a "gap" to pay and it became expensive with no improvement - however, it might be great for you.
The Dr has clinics in three other states and does a lot of alternative therapies for migraine etc - I just felt that he was on a money making winner funded by Medicare.
I'm an RN and perhaps overly suspicious!

 

You're absolutely right Jill, one has to be careful, I've already lost quite a bit of money on online books etc.
You're right about tomatoes, it may spike the t as it has citric acid in it. Best wishes and hope u feel better soon xx
Thanks.

 

What makes you think Low Level Laser Therapy is a rip off? I consider doing it.

LLLT is most effective for noise damaged cochlea I believe, and most effective in young males (ME!!)

 

@jes here on the forum said he was almost tinnitus free for 10 years after laser treatment

 

I've found the facebook of overview for darkmoose and messaged him. He is undergoing the treatment atm I think. Or one month ago or something.

 

He has the same username on fb, hehe. So I just guessed.

 

Wow well done, Erlend !

 

My Story | Healing Meniere's

A blog online, seems like she had success with LLT too.

 

hi jill,
i live in canada and am an amateur astronomer , did you know you see stars and stuff that we dont see, such as the galaxies the small and large magellanic clouds,as well as you see the constellation the southern cross , we see the constellation the big dipper but you dont see that one,but your milky way is brighter than ours, just some thoughts, tinnitus sufferer in canada,kevin(astronomer)

 

Hi Kevin
so interesting!
I know that when we go out to the desert ( a thousand Kms away) the sky sparkles with the Southern Cross and the Milky Way.
Just awe inspiring.
I think we have the Little Dipper here in our skies.
The Southern Cross was the guide to the early sailors who discovered the continent of Australia.
Keep up your interesting work - fascinating
Jill

 

jill,

thanks for your reply, it feels good to be on this forum where everyone understands each other,it is amazing what you can deal with as a human being,kevin

 

Hi Kevin,
you are right about understanding each other.
I have a strong connection with Canada as my mother came from Alberta.
My father is Australian and my husband is Canadian.
My two kids were born in Canada and I have relatives in Canada and Australia!
It is a bright world when two wonderful countries are joined together.
Maybe one day you will come to Oz to see the Southern Cross.