I Lost My Respect and Faith in Doctors or Modern Medicine

@yaom You obviously have been seen by specialists(ENT and Neurologist) where do you live?

 

Sounds like my story with doctors whenever I need them, and have in mind I am the educated understanding patient that cooperates and I still get push around.

in 2006 I developed asthma and it took doctors One year to finally come down with an asthma diagnosis, since my asthma is seasonal this cretin "I mean expert" couldn't understand why I had it just during a certain season and kept giving me motrin.

One time I went to a friends house and I couldn't breath and she gave me a pill of something called Aerius for allergies and my asthma disappeared within minutes, so I figured it's allergies and made an appointment with an allergy doctor, got tested and the stupid nurse lost the positive results, so I had to get a second test and it was negative, so I had to wait for another attack to finally get the right diagnosis and the type of allergy I had. Then comes the fight to get them to prescribe me Aerius (The actual medicine that works for me), they kept giving me allegra which wouldn't do it.

And then I developed bad neck pain and took me two years to get one to prescribe me a CT scan, I kept getting tylenol, rest and ice it and chiropractors come with expensive packages, I'll treat you 600 times and we'll see how you do!

I had to google and found that I had something called trigger points and diagnose myself with it and find a masseuse who massaged the crap out of it my neck liberating me from the pain and the doctor that was treating me never even bothered to call me to see why I had never gone back to see him.

I also have vertigo and waiting for a referral (maybe it'll happen in 2015)

I don't think all doctors are bad, but I have yet to find one I trust; it frightens me in a way.

There are two kind of doctors, those who were born to be doctors and care about their patients (mostly the old school kind), and those who are doctors for the prestige and the money that comes with it (the newer generation)

 

Yaom I've had balance Swaying /rocking for 3 years now every day every waking hour ,it's relentless ,so come here when really ticked off,yes it helps ,but try not to argue it out. No one benifits from it ,Your T ends up getting spiked ,your Virtigo becomes more aggravated .
I get frustrated ,yes I get down days due to having this and the T plus I suffer from Rhinitis ,so I've got fair amount going on. All 3 at once .
So deep breaths ,take it you've looked through the threads ,good to look at the past ones .
So many here and on other sites with balance probs seems to be an epidemic going on .
Glad you've found TT ,hope like me we find the answer to our balance .
I suffer from anxiety,so I try and keep as calm as I possibly can ,it's a terrible time we've found ourselves in ,not by choice it just happens to be us ,it will be others tomorrow guarenteed .

 

have you been diagnosed with anything?

good luck to you!

 

Karen thank you so much, I was here having another panic attack and sadly thinking of suicide and reading your message made me feel better!

Do you mind telling the name of the maneuvers or exercises the chiropractor did with you?

did they ever find the cause? maybe some vertebra or something?


Thank you so much for calming me down!

 

Look up benign paroxysmal positional vertigo on Google and you will find quite a few maneuvers that will reset the crystals in your tube.

 

Hi Yaom ,I've never found the cause of mine but my belief it was after a visit to an osteopath for my bad sinuses ,went on a Saturday ,woke up with this balance going on the second day after visit been this way ever since ,I was fine when I went through his door Yaom .So I'm as much in the dark how to get it sorted as you and others are .
Is it a thyroid problem ,that's what I'm looking at now ,after that avenue I'm back in the dark once again ,if not that
I've tried various exercises all to no avail ,tried tablets for seasickness ,wore magnets on wrists ,behind both ears ,I've had Serc tabs on prescription etc again no use .
So here I am 3 yrs on trying to fit it all back together ,is it just down to neck ache ,? Is it crystals inside ears blocking ears up ?
I find if I'm having a bad T. Rhinitis day my balance just gets me sat down ,can't do anything else your stuck the whole day like that .No one truly knows why or what truly starts it ,you have an idea as to when it began and what had happened prior ,as did Karen .Think ones gut feeling plays a good part to giving you a clue .I say go with it and run with it ,tell any dr you see where you know it began and what you were doing ,if you can remember .Thats got to help dr you see clue wise .
So don't think it won't ever go ,I don't just got to keep at it with Drs ,I'm in the UK and have the NHS so treatments and cost not an issue. I see you have to pay. That's stressful for you ,I can see that,but Drs don't ,just piles the misery on to you .The calmer you are the better ,I find it's far worse if your continually wound up .
Hey I've been on that road ,so I do fully understand how you feel ,believe me .Now I just take it one day at a time .Never know can wake up one fine morning and it's gone overnight God willing .X

 

http://www.betterhealth.vic.gov.au/.../Vertigo_benign_paroxysmal_positional_vertigo

http://vestibular.org/understanding-vestibular-disorder

http://www.menieres.org/talk/

 

Hiya Karen ,just saw your post yes I'd say to try these never know one might just be required ,think one to avoid is the Valsalva one as that involves pressure blowing on the ears ,but to try all others.
Lots do seem to be getting both ,don't know what that's all about I'm sure ,most have mentioned neck ache from what I've read ,on TT and F/B and my UK site .
Well it's 3 am here ,time to put light out ,been long day .
Speak soon ,enjoy weekend Karen xxx

 

I went through the same merry go round with my doctors .Yaom you are right but I strarted thinking about my own
suffering and after 5 months I realized I was the one letting the medical system run me a around.I am currently in the care of my psychiatrist inwhich through him I am getting CBT .ENT docs can't stop T,GP docs can't stop T doctors that do know about T can only provide therapy to speed up mabe or give us a better chance to habituate inwhich is the best thing next to a cure.Dr. Nagler has had T he knows what it is like and we all should have the respect for him as he has given this site alot of info based on medical data on the treatment of tinnitus."Just because you have tinnitus doesn't mean you have to suffer with it" .This quote has given me more hope than anything else since I got tinnitus.
Tinnitus is not fair and we all get upset at times and we all know how tinnitus makes us feel.I have recently tried to accept tinnitus and even though I still do feel helpless acceptance gives me alittle more control.Since I have accepted T it has started to habituate .I am at the stage where I'm pushing on with my life .I think we all go through stages with T and when we feel ready we accept it and move on with our lives.Accepting T is the hardest part ,T loves to fight so don't fight it accept it and ignore it and move on .Yea easier said than done ,but I believe it can be done It is started to happen for me . Everybody stay positive and We all are gonna be alright.
(Uncle Vikin)

 

Well said @yaom .. my doctor clearly cared about his commission and ordered a bunch of tests which were absolutely unnecessary.. he told me to get an MRI brain..i did that..the receptionist swaped someone else's MRI spine by mistake and gave it to me..i didnt notice that and immediately went to the doctor to show him the results..he saw the MRI and report and told me everything is fine..can you believe that??? I came out of the doctors cabin and found out that I had the wrong MRI which even the MD didnt see...i went back to him and he said "oh let me check with the receptionist" ..duh!

He further told me to have the complete health checkup which was ridiculous.. the thought that medical community didnt take tinnitus seriously in 80s 90s and many many years after that makes me sick and frustrated..maybe if they started all this research back then we would have had a good treatment today..its sad to see that most doctors still dont give a heck about tinnitus..why???? I have had many terrible experiences with ENTs and neuros..they are all same..nobody wants to get involved when it comes to T..i got a concussion and i know much more than the so called experts after doing some research online..give them an annoying sound in their brains and tell them keep this forever now, see what happens...we know more about the surface of the moon, the Mariana trench, the Bermuda triangle and the Mars than tinnitus..millions suffer in silence..its a huge unmet medical need..still nobody gives a fuck.. its a shame and heights of negligence!

 

The big problem is patient doctor communication; many patients don't ask questions and expect magic from doctors and many doctors do not explain what they're doing and treat patients without informing them of what's going on.

I ALWAYS ask tons of questions (I am paying I can do it) and I have yet to meet a doctor who has refused to answer whatever questions I have.

I do agree with Dr. Nagler, in 2015 tinnitus has no cure and going to an ENT looking for a cure or answers is not gonna help you, instead of ENT go to a therapist who can teach you coping techniques so that you can live a better quality of life with your tinnitus.

I suffered tremendously because of doctor's negligence when I first got asthma, I kept coughing and coughing and since I had never had any health issues I never really asked questions, I went to this doctor who kept sending me all kind of medicine and at the time I thought that would cure me. When I found out I has asthma it was hard because I learned I had to live with it, eventually I embraced it, got to know its triggers, and don't even remember I have asthma most of the time, in fact I just remember in the summer when its triggered, with tinnitus is the same; I have had my panic here and there but I notice I am starting to not realize is there.

As far as vertigo, I don't think vertigo stays forever, from my understanding the brain starts to compensate for the lack of balance, the exceptions are menieres disease, old age or strokes (If I am not mistaken) I am not a doctor though

http://www.mc.vanderbilt.edu/documents/billwilkerson/files/Your Balance in 4 pages FINAL.pdf

this is an excellent little brochure explaining the inner ear, your balance and how the brain compensates

what did you osteopath do? could it be that you need some cervical alignment?

have you tried trigger point therapy on the sternocleidomastoid muscle? (it is though this muscle when tense cause perpetual dizziness)

 

Conbsgc I don't know what he done ,I only knew he he moved my head a fair bit ,was in there an hour ,to drain sinuses ,I've had neck pain since I got a head virus 9 years ago. To which he knew about .
I have had a ct scan on neck ,to which came back as 2 bones were out ( since balance ) ,these were put back in place by another osteopath ,painful to do ,was hoping that was the problem going to be sorted ,but no still the same .will have a good read up today on what you wrote and make notes .Did manage to get the threads as to balance last night. So will have another good read to them .
My next door neighbour has same problem ,neck ache ,now balance trouble ,but no T so go figure that both of us ,next door to each other. She to went to the same first osteopath as me ,for neck ache ,now she has balance problem so I'm positive this is where mine began from that visit .
I'm a great believer in gut instincts I always trust it always ,as my daughter in law a nurse says it will never let you down,that's why we have it .
Hope your having a good T day,Up and onwards as we say thanks for what you placed .

 

People, I do believe some complaints are legitimate. It would be nice if we were allowed to air our grievances and allow others to know the Doctor's name. I imagine there would be some repeat offenders. One easy suggestion to a Tinnitus patient would be to avoid exposure to low noise. You'd be surprise how many doctors do not offer that little information. As for 'whine' I like it sweet.

 

Viktor ,just keep popping in and out at will ,I take things with a pinch of salt ,not everyone's reaction is according to no text book ,why because the books not been written period .If that were the case we'd have how to deal with it off pat I'd say no problem .So stick around .

 

Thank you Marelene. I will continue to visit...i love this site as it is very informative and helpful. Today i have been having a terrible bout with this thing...i don't even want to say its name anymore. Thank you.

 

There are losers in every profession. My first ENT didn't map my t or measure my h threshold. His secretary did the audiogram. She had a thick accent but that didn't prevent her from reading for the voice recognition. The test took all of 5 minutes. He Refused to treat my ETD. 3 office visits before he even mentioned TRT. Told me if I want to have another hearing test I'd have to wait 4 months. I see another ENT this week who will do these things for me. Why do you think he will do these things? Because people on this site have made it clear that a good ENT should do these things. So I guess in a way bitching about your ENT can in a round about way help people. Also make sure you rate them on line so others can have a heads up. A lack of business might make them rethink their ways.

 

Hi Viktor we understand where your coming from ,even the best of us get these days. I'm one for sure ,like I've said in past on here not everyone's T is the same think others should bear that in mind .I certainly do .
So I want to see you here okay ,as I said pop in and out ,lots do .good or bad days whatever ,that's why this site is the best we've got .
I'm at an age ,I don't give a hoot at much these days .Tell it as it is ,you to okay .
Tomorrow's another day ,hope your is a better one .Its tough going for lot of us .get good nights kip hopefully.
We're be okay ,your see ,got through today .Yes .I will be looking for your Dog Avitar xx

 

An ENT is not a loser, tinnitus has no cure, it is a simple as that!!!

so going to an ENT to look for a cure for your tinnitus and then claiming ENT's are a waste of money because all he/she did was check your ear and found nothing is silly of your part!!!

if you cannot cope with a harmless condition like tinnitus, reach out to therapy groups, they are the ones who can help you in those situations!!! they teach you how to cope and deal and you'll eventually be pretty much ok!

 

I went to my GP with T and he sent me to the ENT so I'd expect that at least he would have some knowledge to share on the topic, none was given. He did find damage to my ear and sent me for a CAT scan then said that he could do nothing to improve the situation. I wanted an audiogram to map my t and measure h thresholds and these were denied. T is not a harmless condition for many. Obviously you got a mild version or you wouldn't be saying this. I also mentioned that there are winners and losers in all professions.

 

tinnitus is subjetive, so what might be mild for some might be unbearable for others, I remember reading an article about tinnitus that showed that many tinnitus sufferers who claim their tinnitus is unbearably loud can hear their own breathing and even watches ticking when close to their ears, yet their claims is that their tinnitus is horribly loud and feel like they can't hear many things (that shows you that tinnitus level is in big part due to the mind and inner peace)

when I am depressed my tinnitus wakes me up and sounds like a tea kettle, then I start to dwell on it and boy it gets loud!! yet when I am relaxed happy chill my tinnitus is virtually so low that unless I go to a quiet place and put my fingers in my ears and look for it, I wouldn't hear it at all!!!

It's also interesting how I only hear my tinnitus when in my mind I remember tinnitus and then I go, its there!!! yet minutes before I was completely calmed and not hearing it!

Understand, I am not putting anyone down, but tinnitus is one of those things you really control with your mind, no ENT is going to give u a cure because it doesnt exist!!! what exists is therapy to calm u down, teach you coping techniques and ways to feel more at peace with yourself!

I even read the story of a man who was suicidal obsessively looking for a cure for his tinnitus on google, had to be taken into a mental institution, over there he received cognitive therapy that helped him get out of that (Must look for answers and a cure) mindset, as the therapies went on he started to focus slowly on other things (his life that he had neglected thanks to tinnitus) and when he was released from the hospital his tinnitus was so low he couldn't even hear it unless he was in quiet rooms and he reported back saying he felt like before he had tinnitus (not a care in the world)